Research Done in “A Good Way”

The Importance of Indigenous Elder Involvement in HIV Community-Based Research

Datos Bibliográficos

ID11031072
AutoresSarah Flicker (0000-0001-6202-5519, Sarah Flicker, Renée Monchalin, and Jesse Thistle are with the Faculty of Environmental Studies, York University, Toronto, Ontario. Patricia O’Campo is with the Centre for Research on Inner City Health, St. Michael’s Hospital, University of Toronto, Toronto, Ontario. Catherine Worthington is with the School of Public Health and Social Policy, Victoria, British Columbia. Renée Masching is with the Canadian Aboriginal AIDS Network, Dartmouth, Nova Scotia. Adrian Guta is with Carleton University, Ottawa,...), Patricia O’campo (0000-0003-4549-7324, Sarah Flicker, Renée Monchalin, and Jesse Thistle are with the Faculty of Environmental Studies, York University, Toronto, Ontario. Patricia O’Campo is with the Centre for Research on Inner City Health, St. Michael’s Hospital, University of Toronto, Toronto, Ontario. Catherine Worthington is with the School of Public Health and Social Policy, Victoria, British Columbia. Renée Masching is with the Canadian Aboriginal AIDS Network, Dartmouth, Nova Scotia. Adrian Guta is with Carleton University, Ottawa,...), Renée Monchalin (0000-0002-3676-1405, Sarah Flicker, Renée Monchalin, and Jesse Thistle are with the Faculty of Environmental Studies, York University, Toronto, Ontario. Patricia O’Campo is with the Centre for Research on Inner City Health, St. Michael’s Hospital, University of Toronto, Toronto, Ontario. Catherine Worthington is with the School of Public Health and Social Policy, Victoria, British Columbia. Renée Masching is with the Canadian Aboriginal AIDS Network, Dartmouth, Nova Scotia. Adrian Guta is with Carleton University, Ottawa,...), Jesse Thistle (Sarah Flicker, Renée Monchalin, and Jesse Thistle are with the Faculty of Environmental Studies, York University, Toronto, Ontario. Patricia O’Campo is with the Centre for Research on Inner City Health, St. Michael’s Hospital, University of Toronto, Toronto, Ontario. Catherine Worthington is with the School of Public Health and Social Policy, Victoria, British Columbia. Renée Masching is with the Canadian Aboriginal AIDS Network, Dartmouth, Nova Scotia. Adrian Guta is with Carleton University, Ottawa,...), Catherine Worthington (0000-0003-3075-8229, Sarah Flicker, Renée Monchalin, and Jesse Thistle are with the Faculty of Environmental Studies, York University, Toronto, Ontario. Patricia O’Campo is with the Centre for Research on Inner City Health, St. Michael’s Hospital, University of Toronto, Toronto, Ontario. Catherine Worthington is with the School of Public Health and Social Policy, Victoria, British Columbia. Renée Masching is with the Canadian Aboriginal AIDS Network, Dartmouth, Nova Scotia. Adrian Guta is with Carleton University, Ottawa,...), Renee Masching (Sarah Flicker, Renée Monchalin, and Jesse Thistle are with the Faculty of Environmental Studies, York University, Toronto, Ontario. Patricia O’Campo is with the Centre for Research on Inner City Health, St. Michael’s Hospital, University of Toronto, Toronto, Ontario. Catherine Worthington is with the School of Public Health and Social Policy, Victoria, British Columbia. Renée Masching is with the Canadian Aboriginal AIDS Network, Dartmouth, Nova Scotia. Adrian Guta is with Carleton University, Ottawa,...), Adrian Guta (0000-0002-1380-2016, Sarah Flicker, Renée Monchalin, and Jesse Thistle are with the Faculty of Environmental Studies, York University, Toronto, Ontario. Patricia O’Campo is with the Centre for Research on Inner City Health, St. Michael’s Hospital, University of Toronto, Toronto, Ontario. Catherine Worthington is with the School of Public Health and Social Policy, Victoria, British Columbia. Renée Masching is with the Canadian Aboriginal AIDS Network, Dartmouth, Nova Scotia. Adrian Guta is with Carleton University, Ottawa,...), Sherri Pooyak (0000-0002-9829-6406, Sarah Flicker, Renée Monchalin, and Jesse Thistle are with the Faculty of Environmental Studies, York University, Toronto, Ontario. Patricia O’Campo is with the Centre for Research on Inner City Health, St. Michael’s Hospital, University of Toronto, Toronto, Ontario. Catherine Worthington is with the School of Public Health and Social Policy, Victoria, British Columbia. Renée Masching is with the Canadian Aboriginal AIDS Network, Dartmouth, Nova Scotia. Adrian Guta is with Carleton University, Ottawa,...), Wanda Whitebird (Sarah Flicker, Renée Monchalin, and Jesse Thistle are with the Faculty of Environmental Studies, York University, Toronto, Ontario. Patricia O’Campo is with the Centre for Research on Inner City Health, St. Michael’s Hospital, University of Toronto, Toronto, Ontario. Catherine Worthington is with the School of Public Health and Social Policy, Victoria, British Columbia. Renée Masching is with the Canadian Aboriginal AIDS Network, Dartmouth, Nova Scotia. Adrian Guta is with Carleton University, Ottawa,...), Cliff Thomas (Sarah Flicker, Renée Monchalin, and Jesse Thistle are with the Faculty of Environmental Studies, York University, Toronto, Ontario. Patricia O’Campo is with the Centre for Research on Inner City Health, St. Michael’s Hospital, University of Toronto, Toronto, Ontario. Catherine Worthington is with the School of Public Health and Social Policy, Victoria, British Columbia. Renée Masching is with the Canadian Aboriginal AIDS Network, Dartmouth, Nova Scotia. Adrian Guta is with Carleton University, Ottawa,...)
Año2015
Volumen105
Número6
Páginas1149-1154
Fecha de publicación2015-06-01
Peer ReviewedSí
Open AccessNo
TipoARTICLE
RevistaAmerican Journal of Public Health (JOURNAL)
Identificadores de la revistaISSN: 0090-0036 • E-ISSN: 1541-0048
EditorialAmerican Public Health Association (PUBLISHER • US)
DOI10.2105/ajph.2014.302522
PMID25880963
PMCIDPMC4431085
OpenAlexW2112176323
IdiomaEN
Citas recibidas47
Referencias citadas32

Objectives. We examined the role that Indigenous Elders can play in ensuring that community-based research (CBR) is conducted ethically. Methods. We present data from a larger qualitative study exploring ethical issues that occur in HIV-related CBR through the experiences of researchers engaged in CBR. Between May 2010 and July 2011, we interviewed 51 academic and community research team leaders of federally funded HIV CBR studies. We used thematic analysis techniques to identify themes. Results. Participating researchers engage Elders in research because Elders are keepers of Indigenous knowledge, dynamic ethical consultants, community protectors, and credible sources of information who are able to counsel and support, mediate conflict, provide local context and history, and conduct ceremonial roles. Potential challenges cited by participants to engaging Elders in research include finding the right “fit,” approaching Elders in a culturally appropriate way, and bureaucratic environments that do not honor Indigenous processes. Conclusions. Culturally appropriate Elder engagement in HIV CBR with Indigenous communities is vital for promoting positive relationships and culturally safe research that respects ceremony and Indigenous ways of knowing

Ceremony · Community-based participatory research · Context (archaeology) · Culturally appropriate · Family medicine · Geography · Honor · Human immunodeficiency virus (HIV) · Indigenous · Participatory action research · Political science · Public relations · Qualitative research · Social science · Sociology · Thematic analysis · Indigenous Health, Education, and Rights · Medicine · Mental Health and Patient Involvement · Participatory Visual Research Methods · Gerontology