Sharing stories

A meta-ethnographic analysis of 12 autobiographies written by people with dementia between 1989 and 2007

Datos Bibliográficos

ID11201593
AutoresSean Page (0000-0001-6799-6592, Greater Manchester Mental Health NHS Foundation Trust, autor de correspondencia), John Keady (0000-0001-8243-6913, Greater Manchester Mental Health NHS Foundation Trust)
Año2010
Volumen30
Número3
Páginas511-526
Fecha de publicación2010-04-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaAgeing and Society (JOURNAL)
Identificadores de la revistaISSN: 0144-686X • E-ISSN: 1469-1779
EditorialCambridge University Press (CUP) (PUBLISHER)
DOI10.1017/s0144686x09990365
OpenAlexW2097487449
IdiomaEN
Citas recibidas13
Referencias citadas21

People with dementia are finding increasingly creative and diverse ways of making their voice heard in society and one such method is through the publication of autobiographical accounts. Following set inclusion criteria, this meta-ethnographic analysis compares and contrasts the contents of 12 books written by people with dementia and published between 1989 (the year of publication of the first text) and the end of 2007 (the selected cut-off point for inclusion). Of the 12 books, three authors were published twice, five were male, eight were from the United States of America, one was Australian and all nine had a professional background. Eight of the authors had Alzheimer's disease and one had fronto-temporal dementia. The average age of the narrator was 51.5 years (age range 38–61 years). Meta-ethnographic analysis of the 12 books inductively generated five themes that linked each story and these were: (a) awareness of change; (b) experiencing loss; (c) standing up and bearing witness; (d) sustaining continuity; and (e) liberation and death. The importance of reconstructing identity appeared a pivotal process in living with the onset and progression of dementia together with maintaining key social relationships and networks

Aesthetics · Art · Dementia · Disease · Ethnography · Identity (music) · Inclusion (mineral) · Linguistics · Sociology · Witness · Aging and Gerontology Research · Anthropology · Dementia and Cognitive Impairment Research · Gender Studies · History · Medicine · Mental Health and Patient Involvement · Psychology · Gerontology