Sociocultural Dimensions of Community‐Based Palliative Care in Brazil and Indonesia

An Ethnographic Study

Datos Bibliográficos

ID12288397
AutoresAnnemarie Samuels (0000-0002-7379-5591, Leiden University, autor de correspondencia), Hanum Atikasari (0000-0003-1263-9306, Leiden University), Natashe Lemos Dekker (0000-0001-5523-4523, Amsterdam University of Applied Sciences)
EditoresQing-Wei Chen
Año2025
Volumen2025
Número1
Fecha de publicación2025-01-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaHealth & Social Care in the Community (JOURNAL)
Identificadores de la revistaISSN: 0966-0410 • E-ISSN: 1365-2524
EditorialWiley (PUBLISHER • GB)
DOI10.1155/hsc/4624886
OpenAlexW7117566226
IdiomaEN
Referencias citadas34

Background Palliative care services are increasingly implemented in diverse sociocultural settings around the world. Aim Our ethnographic project aimed to explore the sociocultural and organizational dimensions of community‐based palliative care in Brazil and Indonesia. Methods We used ethnographic research methods to study local models of palliative care provision in Brazil and Indonesia. These countries were chosen because of similarities in stages of palliative care service development and yet differences in healthcare organization and dominant religion. After scoping initiatives, in each country, one thriving community‐based initiative was selected for an in‐depth case study through semistructured interviews and participant observation. Thematic analysis was first done for the individual cases and then compared across cases in team meetings. Results The case studies of community‐based initiatives reveal (1) how local values are included in the development and practice of palliative care; (2) how these initiatives build on existing local health care structures; and (3) how local palliative care workers introduce the term “palliative care” with sensitivity to the local cultural context. Conclusion As palliative care services are implemented in various sociocultural settings, a better understanding of successful community‐based models for palliative care provision is needed to adapt services to local contexts

Ethnography · Health care · Palliative care · Participant observation · Sociocultural evolution · Thematic analysis · Thriving · Grief, Bereavement, and Mental Health · Palliative and Oncologic Care · Palliative Care and End-of-Life Issues