Examining the Experiences and Decisions of Parents/Guardians

Participant Directing the Supports and Services of Adults With Significant Intellectual and Developmental Disabilities

Datos Bibliográficos

ID12364701
AutoresJudith M S Gross (University of Kansas, Lawrence, USA, autor de correspondencia), Luchara Wallace (Western Michigan University, Kalamazoo, USA), Martha Blue-Banning (University of Kansas, Lawrence, USA), Jean Ann Summers (University of Kansas, Lawrence, USA), Ann P Turnbull (University of Kansas), Ann Turnbull (University of Kansas, Lawrence, USA)
Año2012
Volumen24
Número2
Páginas88-101
Fecha de publicación2012-04-09
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaJournal of Disability Policy Studies (JOURNAL)
Identificadores de la revistaISSN: 1044-2073 • E-ISSN: 1538-4802
EditorialSAGE Publishing (PUBLISHER • US)
DOI10.1177/1044207312439102
OpenAlexW2142419261
IdiomaEN
Citas recibidas9
Referencias citadas25

Participant direction is a service delivery model in which the consumer of public benefits, or his or her surrogate decision maker, exercises some level of choice and control over the consumer’s supports and services. In this case study, the authors examined the decisions and experiences of parents/guardians who directed supports and services for an adult with significant intellectual and developmental disabilities (SIDD). Respondents included the parents/guardian of the adult as well as others in the circle of support identified by the parents/guardians. Data analysis revealed an overarching theme in which respondents perceived participant direction as a means to achieve an end, with the end being their desired outcomes for the adult with SIDD. Implications for policy include developing and providing supportive services to adults with SIDD and their parents/guardians due to the increased responsibilities associated with directing supports and services for the adult with a SIDD

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