Co-Creating Descriptors and a Definition for Person-Centred Coordinated Health Care

An Action Research Study

Datos Bibliográficos

ID12833591
AutoresAmanda Phelan (0000-0001-7225-2467, Trinity College Dublin, autor de correspondencia), Daniela Rohde (0000-0001-8834-2539, University College Dublin), Mary Casey (0000-0003-3305-0074, University College Dublin), Gerard Fealy (0000-0002-0505-9808, University College Dublin), Patrick Felle (University College Dublin), Gabrielle O’Kelly (University College Dublin), Helen Lloyd (0000-0002-2916-1874, University of Plymouth), Áine Carroll (0000-0002-4383-8650, University College Dublin)
Año2021
Volumen21
Número1
Páginas11-11
Fecha de publicación2021-01-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaInternational Journal of Integrated Care (JOURNAL)
Identificadores de la revistaISSN: 1568-4156 • E-ISSN: 1568-4156
EditorialUbiquity Press (PUBLISHER • GB)
DOI10.5334/ijic.5575
PMID33716594
OpenAlexW3119933654
IdiomaEN
Citas recibidas3
Referencias citadas28

The aim of this study was to co-create a definition and generic descriptors for person-centred coordinated care for Ireland generated from service users' narratives. An overarching action research approach was used to engage and empower people to tangibly impact health policy and practice. Through focus groups and a qualitative survey, primary data were collected from a national sample of health services users, caregivers and health care service users' representative groups. Thematic analysis was used to analyse the data. Three major themes were co-produced as essential care elements. These were: 'My experience of healthcare', 'Care that I am confident in' and 'My journey through healthcare'. Through an IPPOSI partner project steering group and their membership groups' contribution, these themes were further refined into a definition of person-centred coordinated care and nineteen related generic descriptors. Key findings demonstrate that within complex, fragmented healthcare systems, the subjective expectations of service users should be integrated into care delivery, with a scaffolding of services to meet service users' needs between care settings and disciplines and over time

Action (physics · Action research · Business · Focus group · Health care · Integrated care · Knowledge management · Political science · Public relations · Qualitative research · Service (business · Sociology · Thematic analysis · Chronic Disease Management Strategies · Computer Science · Healthcare innovation and challenges · Medicine · Mental Health and Patient Involvement · Nursing · Psychology · Marketing