Agencies Displayed by Patients, Medical Teams, and Caregivers at the End of Life from the Perspectives of Family Members – A Qualitative Study

Datos Bibliográficos

ID13628249
AutoresYoel Tawil (The Gertner Institute for Epidemiology and Health Policy Research, autor de correspondencia), Moran Bodas (0000-0002-6182-6362, The Gertner Institute for Epidemiology and Health Policy Research, autor de correspondencia), Adir Shaulov (0000-0002-9620-781X, Hadassah Medical Center and Faculty of Medicine), Arnona Ziv (0000-0003-1147-8686, The Gertner Institute for Epidemiology and Health Policy Research), Gustave Kaplan (0000-0001-9341-1332, The Gertner Institute for Epidemiology and Health Policy Research), Baruch Velan (0000-0002-2725-3249, The Gertner Institute for Epidemiology and Health Policy Research)
Año2023
Volumen91
Número4
Páginas1890-1908
Fecha de publicación2023-03-29
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaOMEGA - Journal of Death and Dying (JOURNAL)
Identificadores de la revistaISSN: 0030-2228 • E-ISSN: 1541-3764
EditorialSAGE Publishing (PUBLISHER • US)
DOI10.1177/00302228231166736
PMID36989510
OpenAlexW4361282555
IdiomaEN
Referencias citadas31

Background: End-of-life (EoL) Care is challenging for terminally-ill patients and their caregivers. This research is aimed to examine the relational agencies of the patients, the caregivers, and the medical teams in the context of EoL care, with a particular emphasis on the caregivers. Methods: This study is based on the qualitative analysis of interviews with 12 individuals who were closely supported a loved one to their death from a terminal illness. Results: Information collected revealed several agency-related themes. Family caregivers are significant entities in managing the 'case' of a seriously ill individual. At the final or more advanced stages of the EoL process, caregivers gradually shift from a supportive role to being active agents, but not always backed by the necessary experience, knowledge, or the requisite emotional resilience. Conclusions: Based on recognizing their agentic proactivity, a clear and elaborate articulation of the family caregivers' roles is needed

End-of-life care · Family caregivers · Family medicine · Medical education · Palliative care · Qualitative research · Social science · Sociology · Ethics in medical practice · Medicine · Nursing · Palliative Care and End-of-Life Issues · Patient Dignity and Privacy · Psychology · Gerontology