Health-Related Quality of Life Assessments by Children and Adolescents with Sickle Cell Disease and Their Parents in Portugal
Datos Bibliográficos
| ID | 15719829 |
|---|---|
| Autores | Clara Abadesso (Hospital Prof. Dr. Fernando Fonseca, autor de correspondencia), Susana Pacheco (0000-0002-5503-8845, Hospital Prof. Dr. Fernando Fonseca, EPE—Amadora, 2720-276 Amadora, Portugal), Susana Rebelo Pacheco (Hospital Prof. Dr. Fernando Fonseca), Maria Do Céu Machado (0000-0003-2927-5174, University of Lisbon), Maria Céu Machado (University of Lisbon), G Allen Finley (0000-0003-4579-7749, Dalhousie University) |
| Año | 2022 |
| Volumen | 9 |
| Número | 2 |
| Páginas | 283-283 |
| Fecha de publicación | 2022-02-18 |
| Peer Reviewed | Sí |
| Open Access | Sí |
| Tipo | ARTICLE |
| Revista | Children (JOURNAL) |
| Identificadores de la revista | ISSN: 2227-9067 • E-ISSN: 2227-9067 |
| Editorial | Multidisciplinary Digital Publishing Institute (PUBLISHER • CH) |
| DOI | 10.3390/children9020283 |
| PMID | 35205003 |
| OpenAlex | W4212815130 |
| Idioma | EN |
| Referencias citadas | 31 |
SCD significantly affects children's HRQL. Parents can provide a good proxy report, although both evaluations are beneficial. Disease status, like number of hospitalizations and frequency of pain, influences HRQL. Interventions in SCD should consider improvements in HRQL as an important outcome
Disease · Ethnic group · Population · Psychiatry · Psychosocial · Quality of life (healthcare · Clinical Psychology · Hemoglobinopathies and Related Disorders · Iron Metabolism and Disorders · Medicine · Prenatal Screening and Diagnostics · Internal Medicine · Pediatrics
| Velocidad de citación | historical |
|---|---|
| Altamente citado | No |