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Caregiver role strain in caring for vulnerable persons living with HIV

Correlates of caregiver and care recipient reports

Datos Bibliográficos

ID19438643
AutoresMiaisha M Mitchell (0000-0001-6984-5085, Friends Research Institute, autor de correspondencia), Mary Mitchell (0000-0001-6594-9194, Friends Research Institute, Baltimore, MD, USA), Eric Hansen (0000-0001-8469-190X, Roswell Park Comprehensive Cancer Center), Tuo‐Yen Tseng (0000-0002-5634-3374, Johns Hopkins University), Tuo-Yen Tseng (Johns Hopkins Bloomberg School of Public Health, Department of Health, Behavior and Society, Baltimore, MD, USA), Mary R Shen (0000-0002-8923-4174, Johns Hopkins University), Mary Shen (Johns Hopkins Bloomberg School of Public Health, Department of Health, Behavior and Society, Baltimore, MD, USA), Zachary Catanzarite (0000-0003-1555-6995, Johns Hopkins Bloomberg School of Public Health, Department of Health, Behavior and Society, Baltimore, MD, USA), Dulce M Cruz‐Oliver (0000-0002-6131-2812, Johns Hopkins University), Dulce Cruz-Oliver (Johns Hopkins University School of Medicine, Baltimore, MD, USA), Lauren Parker (0000-0002-3143-2979, Johns Hopkins Bloomberg School of Public Health, Department of Health, Behavior and Society, Baltimore, MD, USA), Amy Knowlton (Johns Hopkins Bloomberg School of Public Health, Department of Health, Behavior and Society, Baltimore, MD, USA), Amy R Knowlton (0000-0001-9124-4315, Johns Hopkins University)
Año2022
Volumen34
Número10
Páginas1314-1320
Fecha de publicación2022-10-03
Peer ReviewedSí
Open AccessNo
TipoARTICLE
RevistaAIDS Care (JOURNAL)
Identificadores de la revistaISSN: 0954-0121 • E-ISSN: 1360-0451
EditorialInforma UK Limited (PUBLISHER • GB)
DOI10.1080/09540121.2021.1968997
PMID34445898
OpenAlexW3194734995
IdiomaEN
Citas recibidas5
Referencias citadas30

Informal care of family and friends is important for the health and well-being of disadvantaged persons living with HIV (PLWH). Caregiver role strain may threaten the function and continuity of their main relationships and their health impacts. Data were from a disadvantaged, primarily African American, sample of PLWH care recipients. Caregiver role strain was operationalized as a latent factor measured by variables including PLWH's perceptions of their caregiver not wanting or complaining about helping them or wanting a break. We found that greater caregiver role strain was associated with higher levels of HIV-related stigma and depressive symptoms. Lower role strain was associated with more collaborative problem solving and shared medical treatment decision-making. Caregiver role strain was linked to disadvantaged PLWHs' worse stigma and mental health; collaborative engagement in care and coping assistance were protective of role strain. Caregiving relationship-focused research and interventions are needed for resourcing and sustaining disadvantaged African American communities' caregiving and health

Disadvantaged · Mental health · Operationalization · Psychiatry · Psychological intervention · Clinical Psychology · Family Caregiving in Mental Illness · HIV/AIDS Research and Interventions · Maternal Mental Health During Pregnancy and Postpartum · Medicine · Psychology · Gerontology

  • A digital mindfulness application for African American caregivers of people living with HIV/Aids

    Open Access•K Alexander, S B Carswell et al.•AIDS Care•2026

  • Affiliate stigma among family caregivers of people living with HIV/Aids

    Open Access•Chuying Chen, Zhongfang Yang et al.•AIDS Care•2026

  • Burden of mental health symptoms and access to needed mental health care among people with HIV in New England

    Open Access•Elizabeth M Olsen, Kayla K Giorlando et al.•AIDS Care•2026

  • Pathways to perceived HIV-related stigma among people living with HIV

    Open Access•Yukun Elliot Zhang, Yan Hu et al.•BMC Public Health•2026

  • Role Strain Among Parents Who are Medical Cannabis Patients in Pennsylvania

    Maddy Finkelstein, Elizabeth Salerno Valdez et al.•Journal of Psychoactive Drugs•2025

  • Families Caring for an Aging America

    Committee on Family Caregiving for Older Adults, Board on Health Care Services…•Families Caring for an Aging…•2016

  • Stigma, burden, social support, and willingness to care among caregivers of PLWHA in home-based care in South Africa

    D K Singh, Dinesh Singh et al.•AIDS Care•2011

  • Latent growth curve analyses of emotional support for informal caregivers of vulnerable persons with HIV/Aids

    Miaisha M Mitchell, Mary M Mitchell et al.•AIDS Care•2015

  • The role of chronic pain and current substance use in predicting negative social support among disadvantaged persons living with HIV/Aids

    Miaisha M Mitchell, Mary M Mitchell et al.•AIDS Care•2016

  • Mental Health and Social Support Among HIV-Positive Injection Drug Users and Their Caregivers in China

    Open Access•M Claire Greene, Jianping Zhang et al.•AIDS and Behavior•2013

  • Chronic Pain Predicting Reciprocity of Support Among Vulnerable, Predominantly African-American Persons Living with HIV/Aids

    Open Access•Miaisha M Mitchell, Mary M Mitchell et al.•AIDS and Behavior•2017

  • Caregiver Role Overload and Network Support in a Sample of Predominantly Low-Income, African-American Caregivers of Persons Living with HIV/Aids

    Open Access•Miaisha M Mitchell, Mary M Mitchell et al.•AIDS and Behavior•2011

  • Informal Caregiver Characteristics Associated with Viral Load Suppression Among Current or Former Injection Drug Users Living with HIV/Aids

    Open Access•Miaisha M Mitchell, Mary M Mitchell et al.•AIDS and Behavior•2015

  • Quality of Life Among Caregivers of a Vulnerable Population Living with HIV

    Open Access•Amy R Knowlton, Trang Quynh Nguyen et al.•AIDS and Behavior•2020

  • Drug Use and Conflict in Inner-City African-Anterican Relationships in the 2000s

    Andrew Golub, Eloise Dunlap et al.•Journal of Psychoactive Drugs•2010

  • An examination of actor-partner social support effects on HIV-related problems and interpersonal outcomes among a sample of HIV-positive African American dyads

    Katie E Mosack, Katherine A Rafferty et al.•Cultural Diversity & Ethnic…•2015

  • Distinctions between social support concepts, measures, and models

    Open Access•Manuel Barrera•American Journal of Community…•1986

  • Depression and social context

    Open Access•Amy R Knowlton, Aaron D Curry et al.•Journal of Community Psychology•2009

  • Growing Older With HIV/Aids

    Sean Cahill, Robert Valadéz•American Journal of Public Health•2013

  • Resilience to Urban Poverty

    Anne E Sanders, Sungwoo Lim et al.•American Journal of Public Health•2008

Obras citantes distintas5
Citas por año5
Intervalo de citas2025 - 2026 (2)
Velocidad de citacióncurrent
Altamente citadoNo
Tipos de citaNeutras: 2
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