A qualitative insight of HIV / Aids patients' perspective on disease and disclosure

Datos Bibliográficos

ID19508355
AutoresImran Ahmed Syed (School of Pharmaceutical Sciences Universiti Sains Malaysia (USM) Penang Malaysia), Syed Azhar Syed Sulaiman (0000-0002-0775-859X, School of Pharmaceutical Sciences Universiti Sains Malaysia (USM) Penang Malaysia), M A Hassali (0000-0001-9575-403X, Universiti Sains Malaysia), Kaeshalya Thiruchelvum (School of Pharmacy International Medical University Kuala Lumpur Malaysia), Christopher KC Lee (Hospital Sungai Buloh), Christopher K C Lee (Department of Medicine Hospital Sungai Buloh Selangor Malaysia)
Año2015
Volumen18
Número6
Páginas2841-2852
Fecha de publicación2015-12-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaHealth Expectations (JOURNAL)
Identificadores de la revistaISSN: 1369-6513 • E-ISSN: 1369-7625
EditorialWiley (PUBLISHER • GB)
DOI10.1111/hex.12268
PMID25228140
OpenAlexW2002520252
IdiomaEN
Citas recibidas5
Referencias citadas29

BACKGROUND: Understanding patients' knowledge and belief towards disease could play a vital role from an outcome perspective of disease management and HIV/AIDS patients are not exception to that. METHODS: Qualitative methodology was used to explore Malaysian HIV/AIDS patients' perspectives on disease and status disclosure. A semi structured interview guide was used to interview the patients and a saturation point was reached after the 13th interview. All interviews were audio-recorded and subjected to a standard content analysis framework. RESULTS: Understandings and beliefs towards HIV/AIDS and Perspective on disease disclosures were two main themes derived from patients' data. Beliefs towards causes and cure emerged as sub-themes under disease understandings while reasons for disclosure and non-disclosure were resulted as main sub-themes under disease disclosure. Majority of patients apprehended HIV/AIDS and its causes to acceptable extent, there were elements of spirituality and lack of education involved with such understandings. Though beliefs existed that knowing status is better than being ignorant, fear of stigma and discrimination, social consequences and family emotions were found important elements linked to disease non-disclosure. CONCLUSIONS: The outcomes provided basic information about patients' perceptions towards disease and status disclosure among HIV/AIDS patients which can help in the designing and improvising existing strategies to enhance disease awareness and acceptance and will also serve as baseline data for future research further focusing on this subject

Disease · Family medicine · Pathology · Psychiatry · Qualitative research · Sociology · Clinical Psychology · Family Caregiving in Mental Illness · HIV-related health complications and treatments · HIV/AIDS Research and Interventions · Medicine · Psychology