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Rare Disease and Quality of Life

Questionnaire and Indicators on Epidermolysis Bullosa in Italy

Datos Bibliográficos

ID2064672
AutoresPaolo Mariani (0000-0003-4293-1009), Paolo Mariani (0000-0002-8848-8893, University of Milano-Bicocca), Andrea Marletta (0000-0002-4050-5316, University of Milano-Bicocca), Mariangela Zenga (0000-0002-8112-5627, University of Milano-Bicocca, autor de correspondencia)
Año2024
Volumen175
Número3
Páginas1219-1233
Fecha de publicación2024-12-01
Open AccessSí
TipoARTICLE
RevistaSocial Indicators Research (JOURNAL)
Identificadores de la revistaISSN: 0303-8300 • E-ISSN: 1573-0921
EditorialSpringer Science and Business Media LLC (PUBLISHER)
DOI10.1007/s11205-024-03405-9
OpenAlexW4401314596
IdiomaEN
Citas recibidas2
Referencias citadas35

Context (archaeology · Disease · Environmental health · Health care · Mood · Pathology · Public health · Quality of life (healthcare · Quality of Life Research · Autoimmune Bullous Skin Diseases · Clinical Psychology · Medicine · Nail Diseases and Treatments · Nursing · Skin and Cellular Biology Research · Gerontology

  • Psychometric Properties and Factor Structure of the Revised Epidermolysis Bullosa Burden of Disease (EB-BoD-R) Family Score

    Open Access•Gayle Salamon, Sophie Strobl et al.•Social Indicators Research•2026

  • Special Issue

    Open Access•Leonardo Salvatore Alaimo, Venera Tomaselli et al.•Social Indicators Research•2025

  • Delphi methodology in healthcare research

    Open Access•Prashant Nasa, Ravi Jain et al.•World Journal of Methodology•2021

  • Defining consensus

    Open Access•Ivan R Diamond, Robert C Grant et al.•Journal of Clinical Epidemiology•2014

  • A Comparative Review of Generic Quality-of-Life Instruments

    Open Access•Stephen Joel Coons, Sumati Rao et al.•PharmacoEconomics•2000

  • Using and Reporting the Delphi Method for Selecting Healthcare Quality Indicators

    Open Access•Rym Boulkedid, Hendy Abdoul et al.•PLoS ONE•2011

  • Eq-Sd

    Open Access•Rosalind Rabin, Frank De Charro•Annals of Medicine•2001

  • Coefficient alpha and the internal structure of tests

    Open Access•Lee J Cronbach•Psychometrika•1951

  • Generic and Disease-Specific Measures in Assessing Health Status and Quality of Life

    Donald L Patrick, Richard A Deyo•Medical Care•1989

  • Happiness is everything, or is it? Explorations on the meaning of psychological well-being

    Carol D Ryff•Journal of Personality and Social…•1989

  • The structure of psychological well-being revisited

    Carol D Ryff, Corey Lee M Keyes•Journal of Personality and Social…•1995

Citas por año2
Intervalo de citas2025 - 2026 (2)
Altamente citadoNo

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