Caring for loved ones as community
Supporting caregivers of Native Hawaiians living with dementia
Datos Bibliográficos
Caregiving interventions can reduce caregiver burden and promote caregiver competence, yet caregiving is rooted in culture, with differing impacts of the caregiving role. Culturally adapted interventions may better address the unique experiences of diverse family caregivers. In this exploratory study, we aimed to adapt the Savvy Caregiver Program (SCP), an evidence-based caregiving intervention, with a Native Hawaiian community in Hawaiʻi. First, a community action board (CAB) and research team tailored the curriculum to include Hawaiian values, language, proverbs and examples while maintaining the program core components. Then, Native Hawaiian adults participated in the preliminary adapted program, ʻAuamo Kuleana O Nā Maʻi Poina (ʻAuamo Kuleana). We describe the experiences of caregiving for a Native Hawaiian adult living with ADRD and how we obtained feedback to refine ‘Auamo Kuleana prior to pilot testing. Individuals who participated in the 7-week session of ʻAuamo Kuleana ( N = 6) were asked to complete a survey and a focus group or interview to share their experiences and provide feedback that informed a process evaluation of the program. The CAB and research team analyzed qualitative data using thematic analysis. Only one participant was actively providing care; the other five participants were interested in proactive training to support their community. Caring as a community was a common theme. Participants shared positive feedback about ʻAuamo Kuleana and participants appreciated the tailored content. As such, no changes were made to the program. Two suggestions were identified: include all family members in the program to be in alignment as a ʻohana (family) in providing care and add information about planning for their own care. Future Native Hawaiian-focused caregiving interventions should consider incorporating cultural practices and values, proactive training about dementia and caregiving, caring as a community, and family-centered (rather than dyadic) caregiving
Dementia · Environmental health · Native Hawaiians · Dementia and Cognitive Impairment Research · Family Caregiving in Mental Illness · Intergenerational Family Dynamics and Caregiving · Medicine · Psychology · Gerontology · Internal Medicine
The updated Consolidated Framework for Implementation Research based on user feedback
A systematic review of the use of the Consolidated Framework for Implementation Research
The FRAME
The Cultural Adaptation of Prevention Interventions
Development of a framework and coding system for modifications and adaptations of evidence-based interventions
The Lives of Native Hawaiian Elders and Their Experiences With Healthcare
An intersectional mixed methods approach to Native Hawaiian and Pacific Islander men’s health
Feasibility of the Savvy Caregiver Program for LGBTQ+ Caregivers of People Living with Alzheimer’s Disease and Related Dementias
Implementation outcomes of a culturally adapted diabetes self-management education intervention for Native Hawaiians and Pacific islanders
Translating Diabetes Prevention Into Native Hawaiian and Pacific Islander Communities
Culturally Based Solutions to Preserve the Health of Native Hawaiians
One size fits all? What counts as quality practice in (reflexive) thematic analysis
Effect of Race on Cultural Justifications for Caregiving
Exploring community knowledge, attitudes and perceptions of Alzheimer's Disease/Alzheimer's Disease‐Related Dementias and healthy ageing in Asian American, Native Hawaiian and Pacific Islanders
Listening to the Voices of Native Hawaiian Elders and ‘Ohana Caregivers
A Critical Analysis of Approaches to the Development of Preventive Interventions for Subcultural Groups
Our Own Liberation
Using thematic analysis in psychology
Cultural adaptations of behavioral health interventions
Cultural sensitivity in substance use prevention
Social Identity Map
| Obras citantes distintas | 1 |
|---|---|
| Citas por año | 1 |
| Intervalo de citas | 2026 - 2026 (1) |
| Velocidad de citación | current |
| Altamente citado | No |
| Tipos de cita | Neutras: 1 |