Cultural adaptation of an intervention for caregivers of young autistic children

Community members' perspectives

Datos Bibliográficos

ID21319909
AutoresAdriana Kaori Terol (0000-0002-2858-7371, Department of Special Education University of Illinois Urbana Champaign Champaign Illinois USA, autor de correspondencia), Hedda Meadan (0000-0001-7098-6176, Department of Special Education University of Illinois Urbana Champaign Champaign Illinois USA), Laura R Gómez (0009-0006-6351-0165, School of Special Education, School Psychology, and Early Childhood Studies University of Florida Gainesville Florida USA), Sandy Magaña (0000-0003-1994-061X, Steve Hicks School of Social Work The University of Texas at Austin Austin Texas USA)
Año2024
Volumen63
Número2
Páginas691-710
Fecha de publicación2024-06-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaFamily Process (JOURNAL)
Identificadores de la revistaISSN: 0014-7370 • E-ISSN: 1545-5300
EditorialWiley (PUBLISHER • GB)
DOI10.1111/famp.12999
PMID38605389
OpenAlexW4394758632
IdiomaEN
Referencias citadas44

Caregivers of autistic children in low‐to‐middle‐income countries experience many barriers to access resources to support their child's development. Caregiver training is considered an evidence‐based practice and may be a cost‐effective way to support caregivers of autistic children in such settings. This study focuses on the cultural adaptation of Parents Taking Action (PTA; Magaña et al., Family Process , 56 , 57–74, 2017) to support caregivers of autistic children in Paraguay. We conducted focus groups and individual interviews with 28 caregivers, autistic individuals, and professionals in Paraguay to understand caregivers' needs and to explore needed cultural adaptations of PTA to achieve contextual fit. Participants identified caregivers' need for accurate and reliable information, strategies to support children's growth, and emotional support and strategies to manage stress. Additionally, participants provided recommendations for adapting PTA considering the dimensions within the Cultural Adaptation Checklist (Lee et al., International Journal of Developmental Disabilities , 2023). This study is the first step in the iterative process of culturally adapting an intervention and the process described in this study may be appropriate for culturally adapting other interventions

Adaptation (eye) · Autism · Checklist · Cultural diversity · Developmental psychology · Focus group · Intervention (counseling) · Psychiatry · Psychological intervention · Psychotherapist · Social support · Assistive Technology in Communication and Mobility · Autism Spectrum Disorder Research · Clinical Psychology · Family and Disability Support Research · Psychology