Saltar al contenido principal

ETHNOS_APP

Inicio • Búsqueda • Revistas • Lista 0

Relational citizenship

Supporting Embodied Selfhood and Relationality in Dementia Care

Datos Bibliográficos

ID2249155
AutoresPia Kontos (0000-0002-8893-2544, Toronto Rehabilitation Institute‐University Health Network Toronto Canada, autor de correspondencia), Kathy L Miller (0000-0001-7583-6724, Toronto Rehabilitation Institute), Karen‐Lee Miller (Toronto Rehabilitation Institute‐University Health Network Toronto Canada), Alexis P Kontos (Human Rights Law Section Department of Justice Canada Canada)
Año2017
Volumen39
Número2
Páginas182-198
Fecha de publicación2017-02-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaSociology of Health & Illness (JOURNAL)
Identificadores de la revistaISSN: 0141-9889 • E-ISSN: 1467-9566
EditorialWiley (PUBLISHER • GB)
DOI10.1111/1467-9566.12453
PMID28177149
OpenAlexW2586592628
IdiomaEN
Citas recibidas69
Referencias citadas52

We draw on findings from a mixed-method study of specialised red-nosed elder-clowns in a long-term care facility to advance a model of 'relational citizenship' for individuals with dementia. Relational citizenship foregrounds the reciprocal nature of engagement and the centrality of capacities, senses, and experiences of bodies to the exercise of human agency and interconnectedness. We critically examine elder-clown strategies and techniques to illustrate how relational citizenship can be supported and undermined at the micro level of direct care through a focus on embodied expressions of creativity and sexuality. We identify links between aesthetic enrichment and relational practices in art, music and imagination. Relational citizenship offers an important rethinking of notions of selfhood, entitlement, and reciprocity that are central to a sociology of dementia, and it also provides new ethical grounds to explore how residents' creative and sexual expression can be cultivated in the context of long-term care

Aesthetics · Citizenship · Dementia · Disease · Embodied cognition · Epistemology · Political science · Politics · Sociology · Counseling, Therapy, and Family Dynamics · Law · Medicine · Mental Health and Patient Involvement · Participatory Visual Research Methods · Philosophy · Psychology

  • ‘Lost in time like tears in rain’

    Open Access•Stephen Katz, Stephen I Katz et al.•Critical Dementia Studies•2023

  • Rethinking Spaces of Leisure

    Open Access•Christopher Russell, Holly Collison et al.•International Journal of the…•2023

  • Translating relational theories into dementia care using research-informed drama

    Sherry L Dupui, Pia Kontos et al.•Educational Gerontology•2025

  • Medical clowning’s contribution to the well-being of older adults in a residential home

    Deby Babis, Orly Korin et al.•Educational Gerontology•2022

  • What is person-centered care? Explorations from participant observations at a care home for persons living with dementia

    Open Access•Akiko Ichinose, Els-Marie Anbäcken•Educational Gerontology•2026

  • Performing the Lived Experience of Dementia

    Julia Henderson, Colleen Reid et al.•Canadian Theatre Review•2022

  • Discours sur la démence et le déclin au Royaume-Uni

    Sébastien Libert, Georgina Charlesworth et al.•Gérontologie et société•2022

  • A New Process Model for Relationship‐Centred Shared Decision‐Making in Physical Medicine and Rehabilitation Settings

    Open Access•Christina Papadimitriou, Marla L Clayman et al.•Health Expectations•2024

  • Improving Collaboration Between Staff, Family Members, and Artists in Long-Term Dementia Care

    Open Access•Lieke De Kock, Barbara Groot et al.•Qualitative Health Research•2025

  • Rethinking repetition in dementia through a cartographic ethnography of subjectivity

    Open Access•J M Jeong, Jong-Min Jeong•Medicine Anthropology Theory•2020

  • ‘My father is a gardener … ’

    Open Access•Rita Newton, John Keady et al.•Health & Place•2021

  • Visualizing dementia and stigma

    Open Access•Emma Putland, G Brookes•Visual Communication•2024

  • Growing closer

    Open Access•Hoang Nguyen, Cassandra Thomson et al.•Wellbeing Space and Society•2025

  • Everyday built environments of care

    Open Access•Samantha Biglieri, Jennifer Dean•Wellbeing Space and Society•2021

  • Religion and the everyday citizenship of people with dementia in Nigeria

    Open Access•Elizabeth Onyedikachi George, Ruth Bartlett•African Journal of Disability•2024

  • Perceived experiences of adults with mild cognitive impairment

    Open Access•Poursoleiman Leila, Rooddehghan Zahra et al.•BMC Psychology•2025

  • Palliative Care, Intimacy, and Sexual Expression in the Older Adult Residential Care Context

    Open Access•Catherine M Cook, Mark Henrickson et al.•International Journal of…•2022

  • Raising the curtain on stigma associated with dementia

    Open Access•Pia Kontos, Alisa Grigorovich et al.•Critical Public Health•2018

  • Co-creating resilience with people living with dementia through intergenerational arts

    Chloé Bradwell•Research in Drama Education The…•2021

  • Dramaturgy of assistance

    Julia Henderson•Research in Drama Education The…•2019

  • Green spaces, dementia and a meaningful life in the community

    Open Access•Nkolika Janet Mmako, Helen Courtney-Pratt et al.•Health & Place•2020

  • Moving Beyond Clinical Imaginaries

    Open Access•Daryl Martins, Dara Ivanova et al.•Journal of Medical Humanities•2024

  • Age is not just a number

    Open Access•José De São José, Virpi Timonen•Journal of Aging Studies•2025

  • How might the cultural significance of storytelling in Deaf communities influence the development of a life-story work intervention for Deaf people with dementia? A conceptual thematic review

    Open Access•A Young, Emma Ferguson‐coleman et al.•Ageing and Society•2018

  • Re-conceptualising the political subject

    Monique Lanoix•International Journal of Care and…•2019

  • Open to All

    Open Access•Timothy J Senior•Frontiers in Sociology•2019

  • Preserving the self with artificial intelligence using Vipcare—a virtual interaction program for dementia caregivers

    Open Access•Linda E Francis, Moojan Ghafurian•Frontiers in Sociology•2024

  • Alzheimer's Patient Organizations' Role in Enabling Citizenship Projects

    Open Access•Sayani Mitra, Silke Schicktanz•Frontiers in Sociology•2020

  • Markings

    Open Access•Helena Cleeve•Design and Culture•2019

  • Enacting agency

    Rossio Motta-Ochoa, Natalia Incio Serra et al.•Arts & Health•2021

  • Medical clowning in hospitals

    Orly Korin, Deby Babis•Medical Humanities•2023

  • Social citizenship when living with dementia

    Hanne Peoples, Jakob Varming et al.•Journal of Occupational Science•2022

  • Intentionality, capacity, and communication

    Open Access•Lori Birrell, Katrina Windon•Archival Science•2025

  • Rethinking Restriction in Residential Aged Care

    Open Access•Angela Rong Yang Zhang, Tanya Zivkovic•Space and Culture•2023

  • Relational Solidarity and Conflicting Ethics in Dementia Care in Urban India

    Open Access•Bianca Brijnath, Rachita Rao et al.•The Journals of Gerontology…•2024

  • Artificial intelligence and visual discourse

    Open Access•Emma Putland, Chris Chikodzore-Paterson et al.•Social Semiotics•2023

  • Living with dementia, interdependence and citizenship

    Sarah Keye, SARAH E KEYES et al.•Disability & Society•2018

  • Inclusive (social) citizenship and persons with dementia

    Open Access•Ruth Bartlett•Disability & Society•2021

  • (Not) Lovely

    Open Access•Chloé Bradwell•Journal of Aging Studies•2025

  • Buffer or Blade

    Open Access•Elizabeth Gallagher, Renée L Beard•Journal of Aging Studies•2020

  • From ethical approval to an ethics of care

    Open Access•Jayme Tauzer, Fiona Cowdell et al.•Journal of Aging Studies•2023

  • This is Me

    Open Access•Kristina Niedderer, Vjera Holthoff‐Detto et al.•Journal of Aging Studies•2021

  • Co-creativity, well-being and agency

    Open Access•HANNAH ZEILIG, Victoria Tischler et al.•Journal of Aging Studies•2019

  • Choral singing and dementia

    Open Access•Ashley A Berard, André P Smith et al.•Journal of Aging Studies•2022

  • If you do not find the world tasty and sexy, you are out of touch with the most important things in life”

    Open Access•Julia Brassolotto, Lisa Howard et al.•Journal of Aging Studies•2020

  • Forced continuity

    Open Access•Tobias Haeusermann•Journal of Aging Studies•2019

  • Rethinking musicality in dementia as embodied and relational

    Open Access•Pia Kontos, Alisa Grigorovich•Journal of Aging Studies•2018

  • Discovering deviance

    Open Access•James Rupert Fletcher•Journal of Aging Studies•2018

  • From rural citizenship to the rural citizen

    Open Access•Claire Kelly, Richard Yarwood•Journal of Rural Studies•2018

  • Death in Advance? A critique of the “Zombification” of people with dementia

    Open Access•Mark Schweda, Karin R Jongsma et al.•History & Philosophy of the Life…•2022

  • The Affective Self

    Open Access•Linda E Francis, Kathryn J Lively et al.•Social Psychology Quarterly•2020

  • Facilitating creativity in dementia care

    Open Access•Jane M Robertson, Vikki Mccall•Ageing and Society•2020

  • Art, authenticity and citizenship for people living with dementia in a care home

    Open Access•JULIAN C HUGHES, Jordan Baseman et al.•Ageing and Society•2022

  • Ways of being’ in the domestic garden for people living with dementia

    Open Access•Christina Buse, Andrew Balmer et al.•Ageing and Society•2024

  • New analytical tools and frameworks to understand dementia

    Open Access•Suzanne Cahill•Ageing and Society•2022

  • Singing with my mum

    Open Access•Christina Buse•Ageing and Society•2026

  • Home as mind

    Open Access•Joachim Krueger•Synthese•2025

  • Producing the public caregiver

    Open Access•Laura M Funk, Janna Klostermann et al.•International Journal of Care and…•2024

  • Putting responsive behaviours in place

    Open Access•Rachel V Herron, Meghan Wrathall et al.•Social Science & Medicine•2018

  • Making the visible seen

    Open Access•Christina Papadimitriou, Louise Lindemann et al.•Social Science & Medicine•2023

  • Is living well with dementia a credible aspiration for spousal carers

    Edward Tolhurst, Malcolm Carey et al.•Health Sociology Review•2019

  • Supporting Inclusion and Participation for People Living With Dementia

    Open Access•Lucie Hogger, Nina Fudge et al.•International Journal of…•2023

  • Embracing Complexity Within Creative Approaches to Dementia Research

    Open Access•Sarah Campbell, Robyn Dowlen et al.•International Journal of…•2023

  • Dementia as Zeitgeist

    Open Access•Jonathan Parker, Clare Cutler et al.•Sociological Research Online•2021

  • An Aesthetic of Relationality

    Open Access•Julia Gray, Pia Kontos•Qualitative Inquiry•2018

  • Sustaining relational subjectivity

    Open Access•Edward Tolhurst, Bernhard Weicht et al.•Sociology of Health & Illness•2023

  • Maintaining ordinariness in dementia care

    Open Access•Trude Gjernes, Per Måseide•Sociology of Health & Illness•2020

  • Please call my daughter

    Open Access•J M Jeong•Hau Journal of Ethnographic Theory•2020

  • Distributed Selves

    Open Access•James Rupert Fletcher•Symbolic Interaction•2020

  • Broadening the dementia debate

    Open Access•Ruth Bartlett, Deborah O'Connor et al.•Broadening the dementia debate•2010

  • The experience of dementia

    Tom Kitwood•Aging & Mental Health•1997

  • Forget Memory

    Anne Basting, Anne Davis Basting•Forget memory•2009

  • From civil rights to … civic engagement? Concerns of two older critical gerontologists about a “new social movement” and what it portends

    Open Access•Meredith Minkler, Martha B Holstein et al.•Journal of Aging Studies•2008

  • That Others Matter

    Tula Brannelly•Ethics and Social Welfare•2011

  • Citizenship in action

    Ruth Bartlett•Disability & Society•2014

  • Sexuality, dementia and residential care

    Open Access•Carole Archibald•Health & Social Care in the…•1998

  • Brainhood, anthropological figure of modernity

    Open Access•F Vidal•History of the Human Sciences•2009

  • Beyond words

    Open Access•Gill Hubbard, AILSA COOK et al.•Journal of Aging Studies•2002

  • Pathologizing behavior

    Open Access•Sherry L Dupui, Elaine Wiersma et al.•Journal of Aging Studies•2012

  • From personhood to citizenship

    Open Access•Ruth Bartlett, Deborah O'Connor et al.•Journal of Aging Studies•2007

  • Caring in the third way

    Open Access•Selma Sevenhuijsen•Critical Social Policy•2000

  • Engaging with Involuntary Service Users in Social Work

    Mark Smith, Michael Gallagher et al.•The British Journal of Social Work•2012

  • Racial and Ethnic Disparities in Social Engagement Among US Nursing Home Residents

    Yue Li, Xueya Cai•Medical Care•2014

  • The painterly hand

    Open Access•Pia Kontos, Pia C Kontos•Journal of Aging Studies•2003

  • Three Approaches to Qualitative Content Analysis

    Open Access•Hsiu-Fang Hsieh, Sarah E Shannon•Qualitative Health Research•2005

  • Dementia

    Open Access•Daniel H J Davis, Daniel Davis•Social Science & Medicine•2004

  • Grounded Theory and Sensitizing Concepts

    Open Access•Glenn A Bowen•International Journal of…•2006

  • Expressions of personhood in Alzheimer's

    Open Access•Pia Kontos, Pia C Kontos et al.•Qualitative Research•2006

  • Tackling Indifference-Clowning, Dementia, and the Articulation of a Sensitive Body

    Ruud Hendriks•Medical Anthropology•2012

Obras citantes distintas69
Citas por año8,63
Intervalo de citas2018 - 2026 (9)
Velocidad de citacióncurrent
Altamente citadoNo
Tipos de citaNeutras: 69
Ethnos_APP • Proyecto Open Source • Licencia MIT • Frontend v2.0.0 • Privacidad y Cookies • Documentación de la API: api.ethnos.app/docs • Código de la API: GitHub • DOI: 10.5281/zenodo.17049435 • Código del Frontend: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae