Personal perspectives on patient and public involvement - stories about becoming and being an expert by experience

Datos Bibliográficos

ID2249696
AutoresMarjaana Jones (0000-0003-3012-7945, Faculty of Social Sciences University of Tampere Tampere Finland, autor de correspondencia), Ilkka Pietilä (0000-0002-3830-3619, Faculty of Social Sciences University of Helsinki Helsinki Finland)
Año2020
Volumen42
Número4
Páginas809-824
Fecha de publicación2020-05-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaSociology of Health & Illness (JOURNAL)
Identificadores de la revistaISSN: 0141-9889 • E-ISSN: 1467-9566
EditorialWiley (PUBLISHER • GB)
DOI10.1111/1467-9566.13064
PMID32072657
OpenAlexW3008752584
IdiomaEN
Citas recibidas14
Referencias citadas32

Patient and public involvement activities bring 'lay participants' and their accounts of lived experiences to the centre of health service development and delivery. For individuals, these accounts can provide an important resource, offering a sense of control and an opportunity to re-frame past events. Furthermore, as involvement activities and the use of personal accounts have become more prominent, it is timely to examine the involvement process from the perspective of the 'lay participants'. Hence, the aim of this study is to explore how people become involved and how they construct the accounts of their lived experience. We analyse the stories of people with lived mental illness or caring experiences, who have become experts by experience (n = 13). We argue that becoming an expert by experience can help to re-contextualise past experiences and support the re-discovery of skills and expertise, leading experts by experience to construct both professionalised and politicised identities. The process has the potential to enforce narratives that portray illness experiences as motivators for social action and change. Additionally, we claim that the stories experts by experience share with health services and the public are not 'lay accounts' or ad hoc tales, but accounts constructed to serve specific purposes

Action (physics) · Construct (python library) · Lived experience · Narrative · Perspective (graphical) · Political science · Psychotherapist · Public relations · Resource (disambiguation) · Sociology · Healthcare innovation and challenges · Mental Health and Patient Involvement · Mental Health and Psychiatry · Psychology · Social Psychology