In a vigilant state of chronic disruption
How Parents With a Young Child With Type 1 Diabetes Negotiate Events and Moments of Uncertainty
Datos Bibliográficos
| ID | 2249752 |
|---|---|
| Autores | Natasja Kingod (0000-0002-6797-9917, Education, Steno Diabetes Center Copenhagen Denmark, autor de correspondencia), Dan Grabowski (0000-0002-4323-2974, Diabetes Management Research Steno Diabetes Center Copenhagen Copenhagen Denmark) |
| Año | 2020 |
| Volumen | 42 |
| Número | 6 |
| Páginas | 1473-1487 |
| Fecha de publicación | 2020-07-01 |
| Peer Reviewed | Sí |
| Open Access | Sí |
| Tipo | ARTICLE |
| Revista | Sociology of Health & Illness (JOURNAL) |
| Identificadores de la revista | ISSN: 0141-9889 • E-ISSN: 1467-9566 |
| Editorial | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/1467-9566.13123 |
| OpenAlex | W3035994380 |
| Idioma | EN |
| Citas recibidas | 9 |
| Referencias citadas | 36 |
Living as a parent and self-care surrogate of a young child with type 1 diabetes (T1D) is demanding and a disruption to 'normal' routinised daily living. Research has mainly focused on the time of diagnosis as a one-time biographical disruption. In this article, we will show how, in the case of families with young children with T1D, the biographical disruption can be viewed as a continuous state of vigilance that affects family functioning and 'normal' living. We will show this by focusing on the temporal events and moments that keep the families in a state of what we will term 'chronic disruption'. The events are the transitions from hospitalisation to home, home to nursery, nursery to daycare, and daycare to school and preparations for social activities concerning the child. The moments are more fluid, ranging from daily interruptions when daycare workers and teachers call parents with doubts about self-care to negotiations with institutions and municipalities and a constant state of worry
Developmental psychology · Diabetes mellitus · Negotiation · Psychiatry · Sociology · State (computer science) · Type 1 diabetes · Worry · Adolescent and Pediatric Healthcare · Family and Disability Support Research · Family Support in Illness · Medicine · Psychology · Gerontology
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Dads and Digital Devices
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Everyday attentiveness
Ethical issues in qualitative research on internet communities
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Parents' information and support needs when their child is diagnosed with type 1 diabetes
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Risk society
Ethnography for the Internet
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Online Peer-to-Peer Communities in the Daily Lives of People With Chronic Illness
Factish relations
The tinkering m-patient
Embodied Action, Enacted Bodies
Noise as Dysappearance
On the Limits of Life Stages in Ethnography
Learning in focus groups
Critical Moments
Self-Care at the Margins
Ideology in the clinical context
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| Obras citantes distintas | 9 |
|---|---|
| Citas por año | 1,8 |
| Intervalo de citas | 2021 - 2026 (6) |
| Velocidad de citación | current |
| Altamente citado | No |
| Tipos de cita | Neutras: 7 |