Performingcare
Emotion Work and 'Dignity Work' - A Joint Autoethnography of Caring for Our Mum at the End of Life
Datos Bibliográficos
| ID | 2249792 |
|---|---|
| Autores | Samantha Wilkinson (0000-0002-1564-5472, Manchester Metropolitan University Manchester UK, autor de correspondencia), Christopher Wilkinson (0000-0002-9313-6585, Liverpool John Moores University Liverpool UK) |
| Año | 2020 |
| Volumen | 42 |
| Número | 8 |
| Páginas | 1888-1901 |
| Fecha de publicación | 2020-11-01 |
| Peer Reviewed | Sí |
| Open Access | Sí |
| Tipo | ARTICLE |
| Revista | Sociology of Health & Illness (JOURNAL) |
| Identificadores de la revista | ISSN: 0141-9889 • E-ISSN: 1467-9566 |
| Editorial | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/1467-9566.13174 |
| PMID | 32946128 |
| OpenAlex | W3087686677 |
| Idioma | EN |
| Citas recibidas | 12 |
| Referencias citadas | 51 |
In this paper we, twin sisters, present a joint autoethnographic account of providing end of life care for our mum who had terminal cancer. Using the theoretical framing of performance from Goffman's theory of Dramaturgy, we present the findings from a joint autoethnography, focusing on two key themes: performing emotion work and performing what we conceptualise as 'dignity work'. This paper's contributions are twofold. First, conceptually, this paper offers an important contribution to literature concerned with the sociology of illness, by critically engaging with Goffman's notion of frontstage and backstage performance, applied to the context of home care provided by family carers. The second contribution of this paper is methodological; we promote the under-utilised approach of a joint autoethnography and argue for its usefulness in the context of end of life care. We contend that the process of writing this paper was emotionally challenging, yet arriving at the final paper, which serves as a legacy of our mum, was cathartic. We argue for the usefulness of written diaries as a backstage arena through which other informal carers can think through, and come to terms with, experiences of death and dying
Aesthetics · Art · Autoethnography · Context (archaeology · Dignity · Dramaturgy · Emotional labor · Epistemology · Framing (construction · Psychoanalysis · Sociology · Emotional Labor in Professions · Gender Studies · Grief, Bereavement, and Mental Health · Law · Psychology · Qualitative Research Methods and Ethics · Social Psychology
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Research Ethics for Social Scientists
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Autoethnography as a research method
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Autoethnography as Method
What informal caregivers actually do
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Toward a Sociology of (Gendered) Disgust
Reflexive Accounts and Accounts of Reflexivity in Qualitative Data Analysis
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Conceptualising body work in health and social care
Finding dignity in dirty work
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Rehabilitative bodywork
Locating care at the end of life
Changing faces
Down the rabbit hole" - "curiouser and curiouser
Emotion Work, Feeling Rules, and Social Structure
| Obras citantes distintas | 12 |
|---|---|
| Citas por año | 3 |
| Intervalo de citas | 2022 - 2026 (5) |
| Velocidad de citación | current |
| Altamente citado | No |
| Tipos de cita | Neutras: 12 |