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Choreographing a good death

Carers' experiences and practices of enacting assisted dying

Datos Bibliográficos

ID2250344
AutoresSophie Lewis (0000-0003-4639-217X, Sydney School of Health Sciences The University of Sydney Sydney New South Wales Australia, autor de correspondencia), Camille La Brooy (0000-0003-1428-2224, Monash University Monash Victoria Australia), Ian Kerridge (0000-0001-7445-4660, Sydney Health Ethics University of Sydney Sydney New South Wales Australia), Alex Holmes (0000-0003-3879-9471, Department of Psychiatry University of Melbourne Royal Melbourne Hospital Parkville Victoria Australia), Ian Olver (0000-0001-5478-1576, School of Psychology University of Adelaide Adelaide South Australia Australia), Peter Hudson (0000-0001-7877-7854, Centre for Palliative Care St Vincent’s Hospital Melbourne Melbourne Victoria Australia), Michael Dooley (0000-0002-5765-1870, Alfred Health Prahran Victoria Australia), Paul A Komesaroff (0000-0002-1360-3375, Monash University), Paul Komesaroff (Monash University Monash Victoria Australia)
Año2024
Volumen46
Número7
Páginas1345-1363
Fecha de publicación2024-09-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaSociology of Health & Illness (JOURNAL)
Identificadores de la revistaISSN: 0141-9889 • E-ISSN: 1467-9566
EditorialWiley (PUBLISHER • GB)
DOI10.1111/1467-9566.13761
PMID38386331
OpenAlexW4392035940
IdiomaEN
Citas recibidas7
Referencias citadas47

The proliferation of assisted dying legislative reforms globally is a significant change in the social and medico-legal landscape of end-of-life care. Understanding the impacts of these legislative reforms on family members who care for a dying person is vital, yet under-theorised in research. In this article, drawing on semi-structured interviews with 42 carers for a person who has sought assisted dying in Australia, and extending ideas of ontological choreography we explore the new and complex choreographies enacted by carers in their endeavour to arrange a 'good death' for the dying person. We find that desires to fulfil the dying person's wishes are often accompanied by normative pressures, affective tensions and complexities in bereavement. Enacting assisted dying requires carers to perform a repertoire of highly-staged practices. Yet, institutional obstacles and normative cultural scripts of dying can constrain carer assisted dying practices. Understanding the nuances of carers' experiences and how they navigate this new end-of-life landscape, we argue, provides critical insights about how assisted dying legislation is producing new cultural touchpoints for caring at the end of life. Moreover, we show how emerging cultural scripts of assisted dying are impacting in the lives of these carers

Art · Choreography · End-of-life care · Legislation · Legislature · Normative · Palliative care · Political science · Scripting language · Sociology · Feminism, Gender, and Sexuality Studies · Grief, Bereavement, and Mental Health · Law · Legal and cultural studies analysis · Medicine · Nursing · Psychology

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Obras citantes distintas7
Citas por año3,5
Intervalo de citas2024 - 2026 (3)
Velocidad de citacióncurrent
Altamente citadoNo
Tipos de citaNeutras: 7
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