Negotiating pace, focus and identities
Patient/public involvement/engagement in a palliative care study
Datos Bibliográficos
Patient and public involvement and engagement (PPIE) is an increasingly important component of research conduct to enhance processes and potential for impact, yet is rarely critically interrogated. This paper draws on Foucauldian analysis to highlight the disciplinary powers and tensions arising in PPIE. The paper draws on a nested evaluation interview study with three PPIE members and eight academics, who had been involved in an implementation science study focused on palliative care. PPIE members were involved in the whole study and are co-authors of this article. Through shared values and commitments to the study, a team culture of equality was developed. Yet while power was dispersed and taken-up by all team members, in so doing a self-governance approach within the team was developed. The pace and focus of discussions was at times more subjugating than co-production. Identities and positions were porous; the simplistic division of 'academic' and 'PPIE' did not stand up to scrutiny, with an increasing blurring of boundaries as people's experiences and insights changed over time. Continual, subtle, negotiations of roles, inputs and identities were manifest throughout the project. PPIE in research involves subtle, complex and ongoing disciplinary practices enacted by all members of the team
Corporate governance · Discipline · Government (linguistics · Management · Negotiation · Pace · Political science · Power (physics · Public relations · Scrutiny · Social science · Sociology · Health Policy Implementation Science · Interprofessional Education and Collaboration · Law · Mental Health and Patient Involvement
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The complexities of developing equal relationships in patient and public involvement in health research
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Participation, discourse and power
Using thematic analysis in psychology
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Power, Privilege and Knowledge
Discipline and Punish
Political power beyond the State
Political and ethical dilemmas in multi-agency participatory research
Critical perspectives on 'consumer involvement' in health research
Introduction to special issue
The practice of participatory action research
You're there because you are unprofessional
Ignorance is bliss sometimes
Exploring what the Notion of 'Lived Experience' Offers for Social Policy Analysis
| Obras citantes distintas | 3 |
|---|---|
| Citas por año | 1,5 |
| Intervalo de citas | 2024 - 2025 (2) |
| Velocidad de citación | recent |
| Altamente citado | No |
| Tipos de cita | Neutras: 3 |