Parental illness work across the attention deficit hyperactivity disorder diagnostic journey
Datos Bibliográficos
| ID | 2250397 |
|---|---|
| Autores | Tom Nicholson (0000-0003-3211-5788, Faculty of Health & Life Sciences Northumbria University Newcastle UK, autor de correspondencia), Richard Lee (0000-0002-2196-4859, Faculty of Health & Life Sciences Northumbria University Newcastle UK) |
| Año | 2024 |
| Volumen | 46 |
| Número | 8 |
| Páginas | 1647-1667 |
| Fecha de publicación | 2024-11-01 |
| Peer Reviewed | Sí |
| Open Access | Sí |
| Tipo | ARTICLE |
| Revista | Sociology of Health & Illness (JOURNAL) |
| Identificadores de la revista | ISSN: 0141-9889 • E-ISSN: 1467-9566 |
| Editorial | Wiley (PUBLISHER • GB) |
| DOI | 10.1111/1467-9566.13817 |
| PMID | 39023845 |
| OpenAlex | W4400775569 |
| Idioma | EN |
| Referencias citadas | 81 |
The process of referral, assessment, and diagnosis of attention deficit hyperactivity disorder (ADHD) within the UK is often protracted. Given that parents are frequently the instigators of the diagnostic process, understanding the experience of parents is important. Drawing on findings from a longitudinal study, this article explores how the parental experience of the ADHD diagnostic journey includes three significant and distinct forms of 'illness work'. Twenty-one semi-structured serial interviews were conducted over a 2-year period with seven parents of children on the ADHD diagnostic journey in North East England. We present three significant forms of parental illness work: (1) The 'diagnostic quest', parental work recognising and fighting for their children's needs and selfhood, seeking diagnosis and engaging with systems, (2) 'self-biographical illness work', the personal parental biographical response to the diagnostic journey and (3) 'child biographical illness work and recontextualizing the child', parental biographical adjustment and recontextualisation of their children. We advance Rasmussen et al.'s (2021) model by demonstrating its usefulness in understanding how parents with a personal ADHD diagnosis experience biographical disruption or cohesion in response to their children's diagnosis. That a child's diagnosis leads parents with ADHD to experience a self-biographical cohesive or disruptive response is a unique and significant finding
Developmental psychology · Family medicine · Psychiatry · Referral · Attention Deficit Hyperactivity Disorder · Clinical Psychology · Family and Disability Support Research · Infant Development and Preterm Care · Medicine · Psychology
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Chronic illness as biographical disruption
Loss of self
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Knowledgeable narratives
| Velocidad de citación | historical |
|---|---|
| Altamente citado | No |