Mindfulness-based lifestyle programs for the self-management of Parkinson’s disease in Australia

Datos Bibliográficos

ID22945263
AutoresBrooke E Vandenberg (Monash University), Brooke Vandenberg (Monash University, autor de correspondencia), Jenny Advocat (0000-0001-7965-2244, Monash University), Craig Hassed (0000-0002-3917-7757, Monash University), Jennifer Hester (Diabetes Victoria, 570 Elizabeth Street, Melbourne, VIC Australia), Joanne Enticott (0000-0002-4480-5690, Monash University), Gill Russell (0000-0003-3773-2355, University of Ottawa), Grant Russell (Monash University)
Año2019
Volumen34
Número4
Páginas668-676
Fecha de publicación2019-08-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaHealth Promotion International (JOURNAL)
Identificadores de la revistaISSN: 0957-4824 • E-ISSN: 1460-2245
EditorialOxford University Press (OUP) (PUBLISHER)
DOI10.1093/heapro/day021
PMID29659819
OpenAlexW2797518881
IdiomaEN
Referencias citadas35

Despite emerging evidence suggesting positive outcomes of mindfulness training for the self-management of other neurodegenerative diseases, limited research has explored its effect on the self-management of Parkinson’s disease (PD). We aimed to characterize the experiences of individuals participating in a facilitated, group mindfulness-based lifestyle program for community living adults with Stage 2 PD and explore how the program influenced beliefs about self-management of their disease. Our longitudinal qualitative study was embedded within a randomized controlled trial exploring the impact of a 6-week mindfulness-based lifestyle program on patient-reported function. The study was set in Melbourne, Australia in 2012–2013. We conducted semi-structured interviews with participants before, immediately after, and 6 months following participation in the program. Sixteen participants were interviewed prior to commencing the program. Of these, 12 were interviewed shortly after its conclusion, and 9 interviewed at 6 months. Prior to the program, participants felt a lack of control over their illness. A desire for control and a need for alternative tools for managing the progression of PD motivated many to engage with the program. Following the program, where participants experienced an increase in mindfulness, many became more accepting of disease progression and reported improved social relationships and self-confidence in managing their disease. Mindfulness-based lifestyle programs have the potential for increasing both participants’ sense of control over their reactions to disease symptoms as well as social connectedness. Community-based mindfulness training may provide participants with tools for self-managing a number of the consequences of Stage 2 PD.

Disease · Mindfulness · Randomized controlled trial · Self-management · Clinical Psychology · Medicine · Parkinson's Disease Mechanisms and Treatments · Psychology · Restless Legs Syndrome Research · Gerontology