How workplaces produce or reduce disability along the career paths of young people with cystic fibrosis

Datos Bibliográficos

ID4217834
AutoresLetizia Silvestri (0000-0003-2965-2128, Université de Montpellier, autor de correspondencia), Damien Issanchou (0000-0002-4749-3039, University Claude Bernard Lyon 1, France), Laura Schuft (0000-0002-9826-3874, Université Côte d'Azur), Sylvain Ferez (0000-0001-6376-0689, Centre Max Weber)
Año2024
Volumen28
Número4
Páginas507-525
Fecha de publicación2024-07-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaHealth An Interdisciplinary Journal for the Social Study of Health Illness and Medicine (JOURNAL)
Identificadores de la revistaISSN: 1363-4593 • E-ISSN: 1461-7196
EditorialSAGE Publications Inc (PUBLISHER)
DOI10.1177/13634593231185265
PMID37409611
OpenAlexW4383302792
IdiomaEN
Citas recibidas1
Referencias citadas39

Using the theoretical perspective of "social participation" as considered in the Human Development-Disability Creation Process, this article examines certain obstacles and facilitators to sustainable access to work among young French adults with cystic fibrosis. Drawing from the analyses of 29 qualitative interviews, the results show how such obstacles do not depend solely on their health status or on the medical management of the illness, but also on the work environments that these young professionals have recently entered or are trying to access. In these contexts, managing information about the illness can represent a means of obtaining cooperation from colleagues and superiors to reduce material or organizational obstacles (e.g. adapted work schedules), as well as a means of preventing socially uncomfortable or disabling situations. In this light, the social participation model can complement Corbin and Strauss' illness trajectory model, by setting the multi-factorial disabling or participatory situations along illness or medical trajectories. This enables dynamic consideration of how workplaces contribute to producing or reducing disability, in interaction with the actions taken by young people with cystic fibrosis to manage their career paths but also the evolution of illness, symptoms, or medical requirements

Citizen journalism · Health care · Medical model of disability · Psychiatry · Qualitative research · Sociology · Sociology of health and illness · Computer Science · Education, sociology, and vocational training · Medicine · Nursing · Psychology · Social Policies and Family · Social Sciences and Governance