Development of a measure of caregiver burden in paediatric chronic kidney disease

The Paediatric Renal Caregiver Burden Scale

Datos Bibliográficos

ID4228568
AutoresRhian Parham (Canterbury Christ Church University), Nicola Jacyna (Canterbury Christ Church University), Daljit Hothi (Great Ormond Street Hospital for Children NHS Foundation Trust, London), Daljit K Hothi (0000-0003-4599-0610, Great Ormond Street Hospital for Children NHS Foundation Trust), Stephen D Mark (0000-0001-9850-8352, Great Ormond Street Hospital for Children NHS Foundation Trust, London), Stephen D Marks (Great Ormond Street Hospital for Children NHS Foundation Trust, London), Sue Holttum (0000-0003-2618-8518, Canterbury Christ Church University), Paul M Camic (0000-0002-4444-6544), Paul Camic (Canterbury Christ Church University)
Año2016
Volumen21
Número2
Páginas193-205
Fecha de publicación2016-02-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaJournal of Health Psychology (JOURNAL)
Identificadores de la revistaISSN: 1359-1053 • E-ISSN: 1461-7277
EditorialSAGE Publications Inc (PUBLISHER)
DOI10.1177/1359105314524971
PMID24648321
OpenAlexW1966314925
IdiomaEN
Citas recibidas2
Referencias citadas45

To inform the development of a measure of caregiver burden for carers of children with chronic kidney disease, interviews were conducted with 16 caregivers and 10 renal healthcare professionals. A pool of 97 items generated from interviews was reduced to 60 items following review. A piloting exercise provided evidence for the usability, readability and relevance of items and informed further adaptations resulting in the 51-item Paediatric Renal Caregiver Burden Scale. Further to assessment of its psychometric properties, it is hoped that that the Paediatric Renal Caregiver Burden Scale will serve as a useful measure of caregiver burden in paediatric chronic kidney disease

Caregiver burden · Dementia · Disease · Disease burden · Kidney disease · Readability · Scale (ratio · Family and Disability Support Research · Family and Patient Care in Intensive Care Units · Family Caregiving in Mental Illness · Medicine · Gerontology · Internal Medicine