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Contested illness, contested identity

How women with fibromyalgia construct legitimacy online

Datos Bibliográficos

ID4597576
AutoresJoanna Kerr (University of the Fraser Valley), Jenna M Kerr, Carey Demichelis (University of the Fraser Valley)
Año2025
Volumen381
Páginas118251
Fecha de publicación2025-09-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaSocial Science & Medicine (JOURNAL)
Identificadores de la revistaISSN: 0277-9536 • E-ISSN: 1873-5347
EditorialElsevier BV (PUBLISHER)
DOI10.1016/j.socscimed.2025.118251
PMID40505500
OpenAlexW4410796305
IdiomaEN
Citas recibidas4
Referencias citadas36

This research explores the lived experiences of women with fibromyalgia (FM) and the various ways they go about legitimizing a contested medical condition. Through ethnographic observation in a private online community, "Fibro Women Canada," and in-depth interviews with its members, we explore how women work to be seen as legitimate pain patients in the eyes of their healthcare providers. We argue that FM produces a dilemma of legitimacy, a dilemma of identity, and a dilemma of morality for its sufferers. In the face of these dilemmas, Fibro Women Canada functions as a backstage environment that supports two distinct, yet interwoven, forms of legitimacy building: (1) illness literacy, and (2) identity work. In particular, we attend to the moral stakes of seeking biomedical recognition, illuminating the every-day strategies that women use to construct themselves as deserving of care

Aesthetics · Construct (python library · Fibromyalgia · Identity (music · Legitimacy · Political science · Politics · Psychiatry · Social group · Social identity theory · Social science · Sociology · Fibromyalgia and Chronic Fatigue Syndrome Research · Gender Studies · Law · Psychology

  • The Compass framework for chronic pain and posttraumatic stress disorder

    Open Access•Belle Zaccari, Steffany Moonaz et al.•Frontiers in Public Health•2026

  • Medical uncertainty, structural inequities and disease

    Open Access•Andrea Rishworth, Madeleine Mant et al.•Social Science & Medicine•2026

  • Saturation in Qualitative Health Research

    Open Access•Jackson P Loyal, Michelle Amri•Qualitative Health Research•2026

  • Contested and Neglected

    Open Access•Bita Nezamdoust, Erin Ruel•Social Science & Medicine•2025

  • Chronic illness – a disruption in life

    Open Access•Pia Åsbring•Journal of Advanced Nursing•2001

  • The american college of rheumatology 1990 criteria for the classification of fibromyalgia

    Open Access•Frederick Wolfe, Hugh A Smythe et al.•Arthritis & Rheumatism•1990

  • Internet Research in Psychology

    Samuel D Gosling, Winter Mason•Annual Review of Psychology•2015

  • The American College of Rheumatology Preliminary Diagnostic Criteria for Fibromyalgia and Measurement of Symptom Severity

    Open Access•Frederick Wolfe, Daniel J Clauw et al.•Arthritis Care & Research•2010

  • The Girl Who Cried Pain

    Open Access•Diane E Hoffmann, Anita J Tarzian•Journal of Law, Medicine & Ethics•2001

  • Netnography

    Stephanie O’donohoe•International Journal of…•2010

  • Listening to Lyrica

    Open Access•Kristin Kay Barker•Social Science & Medicine•2011

  • I am not the kind of woman who complains of everything

    Open Access•Anne Herrmann‐werner, Anne Werner et al.•Social Science & Medicine•2004

  • Post Your Journey

    Open Access•Ashley A Berard, André P Smith•Qualitative Health Research•2019

  • Is chronic widespread pain biographically disruptive

    Open Access•Jane C Richardson, Jane Richardson et al.•Social Science & Medicine•2006

  • It is hard work behaving as a credible patient

    Open Access•Anne Herrmann‐werner, Anne Werner et al.•Social Science & Medicine•2003

  • Even my sister says I'm acting like a crazy to get a check

    Open Access•Jane Pryma•Social Science & Medicine•2017

  • Everyone thinks I am just lazy

    Open Access•Christina G Paxman•Health An Interdisciplinary…•2021

  • Bounding Biomedicine

    Open Access•Colleen Derkatch•Bounding Biomedicine•2023

  • Self-Help Literature and the Making of an Illness Identity

    Kristin Kay Barker, Kristin Barker•Social Problems•2002

  • Chronic illness as biographical disruption

    Open Access•Michael Bury•Sociology of Health & Illness•1982

  • Chronic illness as biographical disruption or biographical disruption as chronic illness? Reflections on a core concept

    Open Access•Simon J Williams, Simon Williams•Sociology of Health & Illness•2000

Obras citantes distintas4
Citas por año4
Intervalo de citas2025 - 2026 (2)
Velocidad de citacióncurrent
Altamente citadoNo
Tipos de citaNeutras: 4
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