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Is my sick child healthy? Is my healthy child sick

Changing parental experiences of cystic fibrosis in the age of expanded newborn screening

Datos Bibliográficos

ID4601252
AutoresR Grob (0000-0002-1017-4536, Sarah Lawrence College, autor de correspondencia)
Año2008
Volumen67
Número7
Páginas1056-1064
Fecha de publicación2008-10-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaSocial Science & Medicine (JOURNAL)
Identificadores de la revistaISSN: 0277-9536 • E-ISSN: 1873-5347
EditorialElsevier BV (PUBLISHER)
DOI10.1016/j.socscimed.2008.06.003
PMID18639968
OpenAlexW2049236174
IdiomaEN
Citas recibidas17
Referencias citadas28

Cystic fibrosis · Disease · Feeling · Newborn screening · Pathology · Population · Sick child · Cystic Fibrosis Research Advances · Genomics and Rare Diseases · Medicine · Prenatal Screening and Diagnostics · Psychology · Internal Medicine · Pediatrics

  • Qualitative Research on Expanded Prenatal and Newborn Screening

    Open Access•R Grob•The Hastings Center Report•2019

  • Genetics, Disease, and Reproduction

    Open Access•C Friese•International Encyclopedia of the…•2015

  • Feeling the clunk

    Open Access•Sarah Milton, Gill Gilworth et al.•SSM - Qualitative Research in…•2022

  • Bibliographie

    Joëlle Vailly•Naissance d'une politique de la…•2011

  • When the Cystic Fibrosis Label Does Not Fit

    Open Access•Audrey Tluczek, Anne Chevalier Mckechnie et al.•Qualitative Health Research•2010

  • Medical Technologies and the Dream of the Perfect Newborn

    M Buchbinder, Stefan Timmerman•Medical Anthropology•2011

  • Coming to terms with the imperfectly normal child

    Open Access•A E Raz, Yael Amano et al.•Journal of Community Genetics•2018

  • Expanding the notion of “benefit”

    Open Access•C C Clark, Felicity Boardman•New Genetics and Society•2022

  • Parents like me

    Open Access•A E Raz, Yael Amano et al.•New Genetics and Society•2018

  • Visualizing Risk

    Open Access•Jessica Lauren Kuperavage, Jessica Kuperavage•Journal of Medical Humanities•2017

  • Navigating the uncertainties of screening

    Open Access•N Armstrong•Social Theory & Health•2018

  • This is the Best Fatal Illness That You Can Have

    Open Access•Fiona J Moola•Qualitative Health Research•2012

  • Seven warrants for qualitative health sociology

    Open Access•Stefan Timmerman•Social Science & Medicine•2013

  • Absorbing it all

    Open Access•Ashley L White, Felicity Boardman et al.•Social Science & Medicine•2021

  • L'expérience professionnelle du médecin hospitalier à l'épreuve du dépistage

    Chloe Langeard, Guy Minguet et al.•Revue française des affaires…•2011

  • Patients-in-Waiting

    Open Access•Stefan Timmerman, M Buchbinder•Journal of Health and Social…•2010

  • The sociology of medical screening

    Open Access•N Armstrong, Helen Eborall•Sociology of Health & Illness•2012

  • Deviance and medicalization

    Peter Conrad•Deviance and medicalization•1985

  • Testing Women, Testing the Fetus

    Rayna Rapp•Testing Women, Testing the Fetus•2004

  • Handbook of Social Studies in Health and Medicine

    Gary Albrecht, Ray Fitzpatrick et al.•Handbook of Social Studies in…•2000

  • Informed choice and public health screening for children

    Open Access•Katrina Hargreaves, Katrina M Hargreaves et al.•Health Expectations•2005

  • Parenting in the genomic age

    Open Access•R Grob•New Genetics and Society•2006

  • Risk as Moral Danger

    Open Access•Deborah Lupton•International Journal of Health…•1993

  • Grounded theory research

    Open Access•Juliet M Corbin, Juliet Corbin et al.•Qualitative Sociology•1990

  • The Social Dynamics of Genetic Testing

    Open Access•Dorothy Nelkin•Medical Anthropology Quarterly•1996

  • The new genetics

    Open Access•M P M Richards, Matt Richards•Sociology of Health & Illness•1993

  • Predictive genetic testing and the making of the pre-symptomatic person

    Monica Konrad•Anthropology and Medicine•2003

Obras citantes distintas17
Citas por año1,06
Intervalo de citas2010 - 2022 (13)
Velocidad de citaciónhistorical
Altamente citadoNo
Tipos de citaNeutras: 16
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