"Beyond "misunderstanding
Written information and decisions about taking part in a genetic epidemiology study
Datos Bibliográficos
| ID | 4602884 |
|---|---|
| Autores | Mary Dixon-Woods (0000-0002-5915-0041, University of Leicester), Rachelle Ashcroft (0000-0001-6065-4717, Queen Mary University of London), Richard E Ashcroft, Clare J Jackson (University of Leicester), Martin D Tobin (0000-0002-3596-7874, University of Leicester), Joelle Kivits (0000-0002-2998-511X, University of Leicester), Paul R Burton (0000-0001-5799-9634, University of Leicester), Nilesh J Samani (0000-0002-3286-8133, University of Leicester) |
| Año | 2007 |
| Volumen | 65 |
| Número | 11 |
| Páginas | 2212-2222 |
| Fecha de publicación | 2007-12-01 |
| Peer Reviewed | Sí |
| Open Access | Sí |
| Tipo | ARTICLE |
| Revista | Social Science & Medicine (JOURNAL) |
| Identificadores de la revista | ISSN: 0277-9536 • E-ISSN: 1873-5347 |
| Editorial | Elsevier BV (PUBLISHER) |
| DOI | 10.1016/j.socscimed.2007.08.010 |
| PMID | 17904716 |
| OpenAlex | W2064341043 |
| Idioma | EN |
| Citas recibidas | 40 |
| Referencias citadas | 29 |
Alternative medicine · Informed consent · Medical education · Qualitative research · Research ethics · Social science · Sociology · Variance (accounting · Ethics in Clinical Research · Ethics in medical practice · Medicine · Patient-Provider Communication in Healthcare · Psychology · Social Psychology
Social complexities of informed consent and assent among young males undergoing voluntary medical male circumcision in Eswatini
Bibliographie
Informed choice in bowel cancer screening
Consent revisited
Contributing to research via biobanks
“Maybe they have found something new” participants’ views on returning cohort psychosocial survey results
Governing International Biobank Collaboration
Understanding the care.data conundrum
Human Tissue and ‘the Public’
The impact of participation in genetic research for families with cleft lip with and without cleft palate
Response rates and selection problems, with emphasis on mental health variables and DNA sampling, in large population-based, cross-sectional and longitudinal studies of adolescents in Norway
From the arcane to the mundane
Agency and Communication Challenges in Discussions of Informed Consent in Pediatric Cancer Research
Making a Place of Respect
If I Could in a Small Way Help”
Participants’ Accounts on Their Decision to Join a Cohort Study With an Attached Biobank
What Women Who Use Drugs Have to Say about Ethical Research
How IRBs View and Make Decisions about Consent Forms
Sham Surgery Trial Controls
Participants' Recall and Understanding of Genomic Research and Large-Scale Data Sharing
Considerations in the Construction of an Instrument to Assess Attitudes Regarding Critical Illness Gene Variation Research
Obtaining meaningful informed consent
Ethical moments
Power-Laden (Mis)Understandings Surrounding Written Voluntary Informed Consent Procedures in Postcolonial Southern Africa
Narratives of Participation in Autism Genetics Research
Diverse Perceptions of the Informed Consent Process
Becoming-with' a repeat healthy volunteer
Volunteer Research Subjects' Experience of Participation in Research on a Novel Diagnostic Technology for Breast Cancer
Why do people cooperate with medical research? Findings from three studies
It's not just what you say, it's also how you say it
Distinguishing research from clinical care in cancer genetics
They should take time
Identifying components in consent information needed to support informed decision making about trial participation
Bioethics and power
Informed consent in a changing environment
American Genomics in Barbados
Understanding Diverse Perspectives on Genetic Research Through Focus Group Talk
Let the computer choose
Enterprising or altruistic selves? Making up research subjects in genetics research
Resisting Commensurability
Autonomy and Trust in Bioethics
Using Documents in Social Research
The Wounded Storyteller
The Discovery of Grounded Theory
Solidarity, Society and the Welfare State in the United Kingdom
The Theory and Practice of Autonomy
Meetings Between Experts
False Hopes and Best Data
Health and illness. The lay perspective
Communication Theory Today
Obeying doctor's orders
The Theory and Practice of Autonomy
Making sense of randomization; responses of parents of critically ill babies to random allocation of treatment in a clinical trial
What can we learn from 25 years of PUS survey research? Liberating and expanding the agenda
The causes of disease
Therapeutic misconception and the appreciation of risks in clinical trials
Volunteer human subjects' understandings of their participation in a biomedical research experiment
"Why don't they just tell me straight, why allocate it?" The struggle to make sense of participating in a randomised controlled trial
Writing wrongs? An analysis of published discourses about the use of patient information leaflets
Lay epidemiology and the prevention paradox
Belief, knowledge and expertise
| Obras citantes distintas | 40 |
|---|---|
| Citas por año | 2,11 |
| Intervalo de citas | 2007 - 2022 (16) |
| Velocidad de citación | historical |
| Altamente citado | No |
| Tipos de cita | Neutras: 40 |