It Is Not Easy

Cultural Influences of Sickle Cell Disease Management in Rural, Eastern Sierra Leone

Datos Bibliográficos

ID4632142
AutoresO Ibemere (0000-0002-2006-9924, Duke University School of Nursing, Durham, North Carolina, USA, autor de correspondencia), Donna Z Shambley-Ebron (University of Cincinnati), Donna Shambley-Ebron (0000-0003-3485-279X, University of Cincinnati Medical Center), Paula Tanabe (0000-0001-9933-6425, Duke University Schools of Nursing and Medicine, Durham, North Carolina, USA), Cheedy Jaja (University of South Carolina)
Año2021
Volumen31
Número8
Páginas1459-1471
Fecha de publicación2021-07-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaQualitative Health Research (JOURNAL)
Identificadores de la revistaISSN: 1049-7323 • E-ISSN: 1552-7557
EditorialSAGE Publications Inc (PUBLISHER)
DOI10.1177/10497323211006384
PMID34018867
OpenAlexW3160234474
IdiomaEN
Citas recibidas2
Referencias citadas42

Sickle cell disease (SCD) is a chronic genetic disease that causes life-threatening complications and requires robust comprehensive management. Developing comprehensive SCD programs in sub-Saharan African countries requires knowledge of the cultural factors affecting health-seeking behavior. We utilized an ethnographic approach and the frameworks of Dutta and Habermas to explore cultural factors influencing SCD management in rural Sierra Leone. A purposive sample of 27 individuals with SCD and their family and professional caregivers were observed and interviewed from March 2019 to April 2019. We identified four domains (Cultural Beliefs, Cultural Values, Cultural Practices, and Dealing with SCD) of cultural influences on SCD management, and 12 sub-themes (related to collectivism; spiritual, traditional, and Western beliefs and practices; and lived experiences) that reflect the personal, social, structural, and contextual complexities of SCD management. Further research regarding roles of traditional and spiritual leaders, combinations of Western and traditional practices, and culturally centered interventions is warranted

Collectivism · Cultural diversity · Cultural knowledge · Culturally appropriate · Disease · Ethnography · Individualism · Pathology · Political science · Psychological intervention · Qualitative research · Sierra leone · Socioeconomics · Sociology · Anthropology · Hemoglobinopathies and Related Disorders · Iron Metabolism and Disorders · Medicine · Nursing · Psychology · Religion, Society, and Development · Gerontology