When Family Don't Acknowledge

A Hermeneutic Study of the Experience of Kinship Stigma in Community-Dwelling People With Inflammatory Bowel Disease

Datos Bibliográficos

ID4635269
AutoresLesley Dibley (0000-0001-7964-7672, University of Greenwich, London, United Kingdom, autor de correspondencia), Ellen Williams (0000-0003-4492-1605, The University of Mississippi Medical Centre, Jackson, Mississippi, USA), Ellen P Williams (University of North Alabama), Patricia Young (Minnesota State University, Mankato; Mankato, MN, USA)
Año2020
Volumen30
Número8
Páginas1196-1211
Fecha de publicación2020-07-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaQualitative Health Research (JOURNAL)
Identificadores de la revistaISSN: 1049-7323 • E-ISSN: 1552-7557
EditorialSAGE Publications Inc (PUBLISHER)
DOI10.1177/1049732319831795
PMID30845887
OpenAlexW2921583075
IdiomaEN
Citas recibidas9
Referencias citadas72

Recent evidence suggests that kinship stigma-the experience of being or feeling stigmatized by family members-arises in the stories of people with inflammatory bowel disease (IBD). Adopting Goffman's definition of stigma as "an attribute which is deeply discrediting," we used hermeneutic (interpretive) phenomenology to further explore the meaning of kinship stigma for people with IBD and reveal its significance. In total, 18 unstructured interviews took place in participants' own homes in the United Kingdom, between July 2015 and April 2016. Transcripts were analyzed using a hermeneutic method to reveal three relational themes and one constitutive pattern. Referring to relevant literature, the presence and impact of kinship stigma on people with IBD is revealed. Kinship stigma-experienced as and meaning a lack of acknowledgment-may have wide-ranging implications for health and social care professionals caring for persons with IBD or other chronic illness and their families

Feeling · Kinship · Psychiatry · Psychotherapist · Sociology · Anthropology · Family Support in Illness · Intergenerational Family Dynamics and Caregiving · Psychology · Social Psychology