Will You Still Feel Beautiful When You Find Out You Are Different
Parents' Experiences, Reflections, and Appearance-Focused Conversations About Their Child's Visible Difference
Datos Bibliográficos
| ID | 4638440 |
|---|---|
| Autores | Kristin J Billaud Feragen (0000-0002-0329-5671, Oslo University Hospital, Oslo, Norway, autor de correspondencia), Anita Myhre (0000-0001-5528-5443, Oslo University Hospital, Oslo, Norway), Nicola Marie Stock (0000-0002-1285-691X, University of the West of England, Bristol, Bristol, United Kingdom) |
| Año | 2022 |
| Volumen | 32 |
| Número | 1 |
| Páginas | 3-15 |
| Fecha de publicación | 2022-01-01 |
| Peer Reviewed | Sí |
| Open Access | Sí |
| Tipo | ARTICLE |
| Revista | Qualitative Health Research (JOURNAL) |
| Identificadores de la revista | ISSN: 1049-7323 • E-ISSN: 1552-7557 |
| Editorial | SAGE Publications Inc (PUBLISHER) |
| DOI | 10.1177/10497323211039205 |
| PMID | 34596475 |
| OpenAlex | W3203072441 |
| Idioma | EN |
| Referencias citadas | 53 |
To investigate parents' reflections and experiences of having a child born with an appearance-altering condition, interviews with 33 parents of children born with rare craniofacial conditions were analyzed using inductive thematic analysis. Three themes emerged: "Managing emotions: A dynamic process," "Through another lens: External reminders of difference," and "Awareness of difference: Approaching the child." Findings suggest that although parents learned to accept and love their child's visible difference, external factors such as appearance-altering surgery and other people's reactions activated difficult emotions in parents. Parents struggled to decipher whether and when to raise appearance-related issues with their child, and how this could be done without distressing the child. Anticipatory guidance that facilitates positive appearance-focused conversations both within and outside the home seems to be needed. Parenting skills could also be strengthened by preparing parents for social reactions to the child's visible difference, and their child's changed appearance following surgery
Craniofacial · Developmental psychology · Distressing · Psychiatry · Qualitative research · Significant difference · Sociology · Thematic analysis · Body Image and Dysmorphia Studies · Cleft Lip and Palate Research · Geographies of human-animal interactions · Medicine · Psychology · Social Psychology
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| Velocidad de citación | historical |
|---|---|
| Altamente citado | No |