Live It to Understand It
The Experiences of Mothers of Children With Autism Spectrum Disorder
Datos Bibliográficos
Mothers of children with an autism spectrum disorder (ASD) variably experience challenges in their caregiving role. This ethnographic study examined the caregiving experiences of mothers of a young person with ASD (aged ≤25 years). Semistructured interviews were conducted with 85 mothers across three Canadian regions. A follow-up subsample of 10 mothers took part in participant observation sessions in the home and/or other environments within the community. Analysis yielded themes that depicted the following: redefining child and family aspirations, forging a shifted identity, and the need to "live it" to understand mothering a young person with ASD. Supports and services were perceived to be required but often insufficient to meet the needs. Findings identify a range of challenges, lessons learned, and a reconfigured sense of mothering. An emerging model of mothering a child with ASD is presented. Implications for practice, policy, and research are offered
Autism · Autism spectrum disorder · Developmental psychology · Ethnography · Participant observation · Qualitative research · Sociology · Autism Spectrum Disorder Research · Family and Disability Support Research · Infant Development and Preterm Care · Psychology
Caregiver identity in health research
The Attachment Process of the Mothers of Children with Autism Spectrum Disorders in the Pre-School Years
Pragmatic parenting
Tensions in Maternal Care for Children, Youth, and Adults With Autism Spectrum Disorder
The impact of sleep disturbances and other factors on the quality of life of mothers of children with autism spectrum disorder
Parents’ Perceptions of Access to Services for Their Adult Children Diagnosed With Autism Spectrum Disorder
“I've grown”
Shouldering the burden
Il faut toujours être là. » Analyse du travail parental en contexte d’autisme
Barriers to Accessing Healthcare
Challenges in Primary Care Regarding Children and Adolescents With Chronic Conditions in Brazil
We're responsible for the diagnosis and for finding help'. The help-seeking trajectories of families of children on the autism spectrum
Diagnostic and Statistical Manual of Mental Disorders
The Long Interview
Depression in mothers and fathers of children with intellectual disability
The Impact of Parenting Stress
Participant Observation
Us' and 'them
How Mothers Talk About Placement of Their Child With Autism Outside the Home
Living in a World of Our Own
It's a Terrible Thing When Your Children Are Sick
Mothers Who Care
| Obras citantes distintas | 12 |
|---|---|
| Citas por año | 1,33 |
| Intervalo de citas | 2017 - 2025 (9) |
| Velocidad de citación | recent |
| Altamente citado | No |
| Tipos de cita | Neutras: 9 |