Sense Malking in Multiple Sclerosis

The Information Needs of People during an Acute Exacerbation

Datos Bibliográficos

ID5455567
AutoresLynda M Baker (Wayne State University, autor de correspondencia)
Año1998
Volumen8
Número1
Páginas106-120
Fecha de publicación1998-01-01
Peer ReviewedSí
Open AccessSí
TipoARTICLE
RevistaQualitative Health Research (JOURNAL)
Identificadores de la revistaISSN: 1049-7323 • E-ISSN: 1552-7557
EditorialSAGE Publications Inc (PUBLISHER)
DOI10.1177/104973239800800108
PMID10558325
OpenAlexW2105630895
IdiomaEN
Citas recibidas5
Referencias citadas18

Chronic illness has been described as a major disruption in one's everyday life. Studies have shown that people seek and use information to help them cope with their disease. Using the micro-moment time-line interview technique, this study focused on the information needs of people with multiple sclerosis (MS) who had recently experienced an exacerbation of their disease. The results revealed gaps in people's knowledge about physical symptoms they were experiencing, emotions they felt, and drugs. Various sources of and barriers to obtaining information were identified. The results suggest that health professionals need to be aware of the continuing need for relevant, current, and specific information to help people with MS retain their independence and to empower them to make informed decisions

Disease · Everyday life · Exacerbation · Family medicine · Health care · Health professionals · Information needs · Medical information · Multiple sclerosis · Psychiatry · Qualitative research · Sociology · COVID-19 and Mental Health · Medicine · Multiple Sclerosis Research Studies · Nursing · Psychology · Vaccine Coverage and Hesitancy