Stakeholders’ Perspectives on Stakeholder-engaged Research (SER)

Strategies to Operationalize Patient-centered Outcomes Research Principles for SER

Datos Bibliográficos

ID9101474
AutoresThomas I Mackie (0000-0002-6010-6304, Department of Health Systems and Policy, Rutgers School of Public Health, autor de correspondencia), R Christopher Sheldrick (0000-0003-0534-856X, Tufts Medical Center), Sarah D De Ferranti (0000-0002-8561-6781, Harvard Medical School, Boston Children’s Hospital, Boston, MA), Tully Saunders (Tufts Medical Center), Erick G Rojas (Institute for Health, Health Care Policy and Aging Research, Rutgers University, New Brunswick, NJ), Erick Rojas (Rutgers, the State University of New Jersey), Laurel K Leslie (0000-0003-2414-3252, Tufts Medical Center)
Año2017
Volumen55
Número1
Páginas19-30
Fecha de publicación2017-01-01
Peer ReviewedSí
Open AccessNo
TipoARTICLE
RevistaMedical Care (JOURNAL)
Identificadores de la revistaISSN: 0025-7079 • E-ISSN: 1537-1948
EditorialOvid Technologies (Wolters Kluwer Health) (PUBLISHER)
DOI10.1097/mlr.0000000000000593
PMID27547942
OpenAlexW2515488685
IdiomaEN
Citas recibidas2
Referencias citadas21

BACKGROUND: US federal funding agencies increasingly incentivize stakeholder-engaged research which represents a paradigm shift toward incorporating a range of stakeholders in research design, conduct, and dissemination. OBJECTIVES: We use qualitative methods to capture experience-based recommendations on how to operationalize 4 Patient-Centered Outcomes Research (PCOR) principles in stakeholder-engaged research, specifically: (1) reciprocal relationships; (2) colearning; (3) partnership; and (4) trust, transparency, and honesty. RESEARCH DESIGN: We conducted semistructured interviews with members of a stakeholder panel who participated in a 2-year comparative effectiveness study of cholesterol screening and treatment among young adults. SAMPLE: Participants included 8 young adults and parent panelists and 11 professional panelists (clinicians, researchers, policy developers, and disseminators). MEASURES: The interview guide included questions about the 4 PCOR principles and queried preferred strategies to attain them. Interview transcripts were analyzed using an a priori and emergent coding structure. RESULTS: Participants provided strategies to promote the 4 PCOR principles. Although some stakeholder-identified strategies were complementary, others conflicted due to (1) competing ideologies identified among the principles, and (2) distinct stakeholder preferences. Illustrative of competing ideologies, participants simultaneously preferred receiving relevant articles before calls (to facilitate colearning) but also minimal outside reading (to achieve partnership). Illustrative of distinct stakeholder preferences, young adult and parent panelists generally preferred calls to occur on weekends/evenings, whereas professional panelists preferred mid-week work hours. CONCLUSIONS: Our exploratory study provides stakeholder-identified strategies to achieve the 4 PCOR principles, and demonstrates the need to identify, acknowledge, and address potentially conflicting strategies due to the potential for competing ideologies or variation in stakeholder preferences

Exploratory research · General partnership · Honesty · Medical education · Operationalization · Political science · Public relations · Qualitative research · Sociology · Stakeholder · Transparency (behavior) · Health Policy Implementation Science · Medicine · Mental Health and Patient Involvement · Participatory Visual Research Methods · Psychology · Social Psychology