Wolfgang Müller-Felber
Biographic Data
| ID | 10450472 |
|---|---|
| NAME | Wolfgang Müller-Felber |
| GIVEN NAMES | Wolfgang |
| FAMILY NAME | Müller-Felber |
| SIGNATURE | MÜLLER-FELBER W |
| AFFILIATIONS | Centre for Neuromuscular Disorders, Center for Translational Neuro and Behavioral Sciences, Department of Pediatric Neurology, University Duisburg-Essen, 45147 Essen, Germany |
| VERIFIED | No |
| TOTAL WORKS | 1 |
| TOTAL CITATIONS | 0 |
| WORKS AS AUTHOR | 1 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2022 |
| LATEST PUBLICATION YEAR | 2022 |
| H-INDEX | 0 |
Parental Burden and Quality of Life in 5q-SMA Diagnosed by Newborn Screening
The aim of this study was to assess the psychosocial burden in parents of children with spinal muscular atrophy (SMA), detected by newborn screening (NBS), for which first pilot projects started in January 2018 in Germany. The survey, performed 1-2 years after children's diagnosis of SMA via NBS, included 3 parent-related questionnaires to evaluate the psychosocial burden, quality of life (QoL)/satisfaction and work productivity and activity impa…
No prominent works on this page.
Parental Burden and Quality of Life in 5q-SMA Diagnosed by Newborn Screening
The aim of this study was to assess the psychosocial burden in parents of children with spinal muscular atrophy (SMA), detected by newborn screening (NBS), for which first pilot projects started in January 2018 in Germany. The survey, performed 1-2 years after children's diagnosis of SMA via NBS, included 3 parent-related questionnaires to evaluate the psychosocial burden, quality of life (QoL)/satisfaction and work productivity and activity impa…
Anxiety (1 work) · Caregiver burden (1 work) · Clinical Psychology (1 work) · Clinical Psychology (1 work) · Congenital Anomalies and Fetal Surgery (1 work) · Disease (1 work) · Gerontology (1 work) · Internal Medicine (1 work) · Medicine (1 work) · Multidisciplinary approach (1 work)