Katherine E Mcdonald
Biographic Data
| ID | 105964 |
|---|---|
| NAME | Katherine E Mcdonald |
| GIVEN NAMES | Katherine E |
| FAMILY NAME | Mcdonald |
| SIGNATURE | MCDONALD K E |
| AFFILIATIONS | Syracuse University |
| VERIFIED | No |
| TOTAL WORKS | 11 |
| TOTAL CITATIONS | 66 |
| AUTHOR COUNT | 11 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2007 |
| LATEST PUBLICATION YEAR | 2023 |
| H-INDEX | 5 |
Disability rights and empowerment: Reflections on AJCP research and a call to action
People living with physical, sensory, intellectual, and/or developmental disabilities experience complex social, environmental, political, and cultural challenges along with stigma and marginalization in education, employment, and community life. These multiple and complex barriers often hinder their full and effective participation in society. In this reflection, we curated articles on physical, sensory, intellectual, and/or developmental disabi…
Disability, Ethics, and Health Care in the Covid-19 Pandemic
This article considers key ethical, legal, and medical dilemmas arising for people with disabilities in the COVID-19 pandemic. We highlight the limited application of existing frameworks of emergency planning with and for people with disabilities in the COVID-19 pandemic, explore key concerns and issues affecting the health care of people with disabilities (i.e., access to information and clinician–patient communication, nondiscrimination and rea…
That Felt Like Real Engagement: Fostering and Maintaining Inclusive Research Collaborations With Individuals With Intellectual Disability
People with intellectual disability (ID) are increasingly involved in stakeholder-engaged research, such as "inclusive research" (IR). To understand the processes that foster and maintain IR with individuals with ID, we used a narrative interview approach with co-researchers with ID ( n = 6) and academic researchers ( n = 8). We analyzed the data using grounded theory principles. We then developed a model describing how contextual factors and tea…
Intellectual disability and faith communities: Perspectives of Catholic religious leaders
Faith communities create community and are important to many individuals with intellectual disability. However, relatively little is known about how intellectual disability is construed among faith leaders and the inclusion of people with intellectual disability in faith communities. To address these gaps in knowledge, we interviewed 12 Catholic priests, parochial vicars, and deacons to explore: their experiences with individuals with intellectua…
The March Goes On: Community Access for People With Disabilities
Although civil rights legislation designed to remove barriers to and promote full and equal participation in communities has led to some improvements, barriers remain. These barriers create participation disparities among people with disabilities, which in turn contribute to feelings of isolation and poorer health. We used participatory action research to understand present‐day accessibility of important and understudied community settings, namel…
A toolkit for accessible and respectful engagement in research
Social, scientific, and ethical factors underscore the value of respectfully including people with intellectual/developmental disabilities in research despite significant barriers to their research participation. In pursuit of this goal, we worked with two research advisors with intellectual/developmental disabilities to develop a qualitative study toolkit emphasizing accessibility, flexibility, variety, and responsiveness. The toolkit includes p…
Paradigm Shifts in Disability and Health: Toward More Ethical Public Health Research
Disability is often considered a health outcome disproportionately experienced by minority groups. It is also possible to view people with disabilities as a minority group that itself experiences health disparities. Calls to reduce these disparities necessitate the inclusion of people with developmental disabilities in research, although resulting ethical issues can thwart scientific progress. Using disability rights principles can help address e…
Poverty Among Adults with Disabilities: Barriers to Promoting Asset Accumulation in Individual Development Accounts
Adults with disabilities disproportionally experience poverty. We examine one novel strategy to promote economic well‐being among adults with disabilities living in or near poverty, namely Individual Development Accounts (IDAs). IDAs are designed to help individuals save money and subsequently accumulate assets. Although adults with disabilities account for the majority of IDA participants, scant attention has been paid to their IDA saving perfor…
Principles, Promises, and a Personal Plea: What Is an Evaluator to Do
The client of a student evaluation team has requested that the evaluators provide confidential identifying information gathered in the course of the evaluation. Here, the authors consider their response to the client's request. Specifically, they draw from professional principles developed to guide ethical decision making for evaluators and educators to consider the advantages and disadvantages of denying or meeting this request from a variety of…
How the Powerful Decide: Access to Research Participation by those at the Margins
How do those in power decide to include and exclude those at the margins from community life? We used simulated review of research vignettes to examine how researchers and members of Institutional Review Boards make decisions concerning the research participation of adults with and without intellectual disabilities. Results indicate that decision‐makers are influenced by the disability status of the sample, characteristics of the research in whic…
Disability, race/ethnicity and gender: Themes of cultural oppression, acts of individual resistance
Community psychologists have called for research on human diversity and interactions between individuals and society with a focus on oppression. This study examines learning disabilities as they co‐occur with other sociopolitical minority statuses. We examined dominant cultural narratives of and individual responses to learning disability, race/ethnicity and gender identified by low‐income men and women of color with learning disabilities. Our qu…
Disability, race/ethnicity and gender: Themes of cultural oppression, acts of individual resistance
Community psychologists have called for research on human diversity and interactions between individuals and society with a focus on oppression. This study examines learning disabilities as they co‐occur with other sociopolitical minority statuses. We examined dominant cultural narratives of and individual responses to learning disability, race/ethnicity and gender identified by low‐income men and women of color with learning disabilities. Our qu…
That Felt Like Real Engagement: Fostering and Maintaining Inclusive Research Collaborations With Individuals With Intellectual Disability
People with intellectual disability (ID) are increasingly involved in stakeholder-engaged research, such as "inclusive research" (IR). To understand the processes that foster and maintain IR with individuals with ID, we used a narrative interview approach with co-researchers with ID ( n = 6) and academic researchers ( n = 8). We analyzed the data using grounded theory principles. We then developed a model describing how contextual factors and tea…
A toolkit for accessible and respectful engagement in research
Social, scientific, and ethical factors underscore the value of respectfully including people with intellectual/developmental disabilities in research despite significant barriers to their research participation. In pursuit of this goal, we worked with two research advisors with intellectual/developmental disabilities to develop a qualitative study toolkit emphasizing accessibility, flexibility, variety, and responsiveness. The toolkit includes p…
Disability, Ethics, and Health Care in the Covid-19 Pandemic
This article considers key ethical, legal, and medical dilemmas arising for people with disabilities in the COVID-19 pandemic. We highlight the limited application of existing frameworks of emergency planning with and for people with disabilities in the COVID-19 pandemic, explore key concerns and issues affecting the health care of people with disabilities (i.e., access to information and clinician–patient communication, nondiscrimination and rea…
How the Powerful Decide: Access to Research Participation by those at the Margins
How do those in power decide to include and exclude those at the margins from community life? We used simulated review of research vignettes to examine how researchers and members of Institutional Review Boards make decisions concerning the research participation of adults with and without intellectual disabilities. Results indicate that decision‐makers are influenced by the disability status of the sample, characteristics of the research in whic…
Poverty Among Adults with Disabilities: Barriers to Promoting Asset Accumulation in Individual Development Accounts
Adults with disabilities disproportionally experience poverty. We examine one novel strategy to promote economic well‐being among adults with disabilities living in or near poverty, namely Individual Development Accounts (IDAs). IDAs are designed to help individuals save money and subsequently accumulate assets. Although adults with disabilities account for the majority of IDA participants, scant attention has been paid to their IDA saving perfor…
Intellectual disability and faith communities: Perspectives of Catholic religious leaders
Faith communities create community and are important to many individuals with intellectual disability. However, relatively little is known about how intellectual disability is construed among faith leaders and the inclusion of people with intellectual disability in faith communities. To address these gaps in knowledge, we interviewed 12 Catholic priests, parochial vicars, and deacons to explore: their experiences with individuals with intellectua…
Disability rights and empowerment: Reflections on AJCP research and a call to action
People living with physical, sensory, intellectual, and/or developmental disabilities experience complex social, environmental, political, and cultural challenges along with stigma and marginalization in education, employment, and community life. These multiple and complex barriers often hinder their full and effective participation in society. In this reflection, we curated articles on physical, sensory, intellectual, and/or developmental disabi…
The March Goes On: Community Access for People With Disabilities
Although civil rights legislation designed to remove barriers to and promote full and equal participation in communities has led to some improvements, barriers remain. These barriers create participation disparities among people with disabilities, which in turn contribute to feelings of isolation and poorer health. We used participatory action research to understand present‐day accessibility of important and understudied community settings, namel…
Paradigm Shifts in Disability and Health: Toward More Ethical Public Health Research
Disability is often considered a health outcome disproportionately experienced by minority groups. It is also possible to view people with disabilities as a minority group that itself experiences health disparities. Calls to reduce these disparities necessitate the inclusion of people with developmental disabilities in research, although resulting ethical issues can thwart scientific progress. Using disability rights principles can help address e…
Disability, race/ethnicity and gender: Themes of cultural oppression, acts of individual resistance
Community psychologists have called for research on human diversity and interactions between individuals and society with a focus on oppression. This study examines learning disabilities as they co‐occur with other sociopolitical minority statuses. We examined dominant cultural narratives of and individual responses to learning disability, race/ethnicity and gender identified by low‐income men and women of color with learning disabilities. Our qu…
Principles, Promises, and a Personal Plea: What Is an Evaluator to Do
The client of a student evaluation team has requested that the evaluators provide confidential identifying information gathered in the course of the evaluation. Here, the authors consider their response to the client's request. Specifically, they draw from professional principles developed to guide ethical decision making for evaluators and educators to consider the advantages and disadvantages of denying or meeting this request from a variety of…
How the Powerful Decide: Access to Research Participation by those at the Margins
How do those in power decide to include and exclude those at the margins from community life? We used simulated review of research vignettes to examine how researchers and members of Institutional Review Boards make decisions concerning the research participation of adults with and without intellectual disabilities. Results indicate that decision‐makers are influenced by the disability status of the sample, characteristics of the research in whic…
Poverty Among Adults with Disabilities: Barriers to Promoting Asset Accumulation in Individual Development Accounts
Adults with disabilities disproportionally experience poverty. We examine one novel strategy to promote economic well‐being among adults with disabilities living in or near poverty, namely Individual Development Accounts (IDAs). IDAs are designed to help individuals save money and subsequently accumulate assets. Although adults with disabilities account for the majority of IDA participants, scant attention has been paid to their IDA saving perfor…
Paradigm Shifts in Disability and Health: Toward More Ethical Public Health Research
Disability is often considered a health outcome disproportionately experienced by minority groups. It is also possible to view people with disabilities as a minority group that itself experiences health disparities. Calls to reduce these disparities necessitate the inclusion of people with developmental disabilities in research, although resulting ethical issues can thwart scientific progress. Using disability rights principles can help address e…
A toolkit for accessible and respectful engagement in research
Social, scientific, and ethical factors underscore the value of respectfully including people with intellectual/developmental disabilities in research despite significant barriers to their research participation. In pursuit of this goal, we worked with two research advisors with intellectual/developmental disabilities to develop a qualitative study toolkit emphasizing accessibility, flexibility, variety, and responsiveness. The toolkit includes p…
Intellectual disability and faith communities: Perspectives of Catholic religious leaders
Faith communities create community and are important to many individuals with intellectual disability. However, relatively little is known about how intellectual disability is construed among faith leaders and the inclusion of people with intellectual disability in faith communities. To address these gaps in knowledge, we interviewed 12 Catholic priests, parochial vicars, and deacons to explore: their experiences with individuals with intellectua…
The March Goes On: Community Access for People With Disabilities
Although civil rights legislation designed to remove barriers to and promote full and equal participation in communities has led to some improvements, barriers remain. These barriers create participation disparities among people with disabilities, which in turn contribute to feelings of isolation and poorer health. We used participatory action research to understand present‐day accessibility of important and understudied community settings, namel…
Disability, Ethics, and Health Care in the Covid-19 Pandemic
This article considers key ethical, legal, and medical dilemmas arising for people with disabilities in the COVID-19 pandemic. We highlight the limited application of existing frameworks of emergency planning with and for people with disabilities in the COVID-19 pandemic, explore key concerns and issues affecting the health care of people with disabilities (i.e., access to information and clinician–patient communication, nondiscrimination and rea…
That Felt Like Real Engagement: Fostering and Maintaining Inclusive Research Collaborations With Individuals With Intellectual Disability
People with intellectual disability (ID) are increasingly involved in stakeholder-engaged research, such as "inclusive research" (IR). To understand the processes that foster and maintain IR with individuals with ID, we used a narrative interview approach with co-researchers with ID ( n = 6) and academic researchers ( n = 8). We analyzed the data using grounded theory principles. We then developed a model describing how contextual factors and tea…
Disability rights and empowerment: Reflections on AJCP research and a call to action
People living with physical, sensory, intellectual, and/or developmental disabilities experience complex social, environmental, political, and cultural challenges along with stigma and marginalization in education, employment, and community life. These multiple and complex barriers often hinder their full and effective participation in society. In this reflection, we curated articles on physical, sensory, intellectual, and/or developmental disabi…
Psychology (10 works) · Political science (7 works) · Public relations (7 works) · Medicine (6 works) · Public health (6 works) · Social Psychology (6 works) · Sociology (6 works) · Disability Rights and Representation (5 works) · Intellectual disability (5 works) · Family and Disability Support Research (4 works)