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Joske Bunders

Biographic Data

ID106412
NAMEJoske Bunders
GIVEN NAMESJoske
FAMILY NAMEBunders
SIGNATUREBUNDERS J
AFFILIATIONSVrije Universiteit Amsterdam
ORCID0000-0002-0007-6430
VERIFIEDYes
TOTAL WORKS66
TOTAL CITATIONS161
AUTHOR COUNT65
EDITOR COUNT1
FIRST PUBLICATION YEAR1987
LATEST PUBLICATION YEAR2026
H-INDEX6
  • Individual and Sociocultural Determinants of Suicide in an Indian Community: A Qualitative Study

    Open Access•Madhuri Thorat Nalavade, Bobby Zachariah et al.•ARTICLE•Illness Crisis & Loss•2026•References: 34

    India has a significant number of people exposed to suicide. The traumatic effects of these experiences, and the healing process of suicide survivors are poorly understood. We investigated suicide survivors’ experiences and post-suicide healing. Interviews were conducted with suicide survivors who received different types of support—home visits before COVID-19 and telephonic outreach during lockdown. Two researchers used “active listening” and “h…

  • Evaluation of an online study group on trauma and dissociation for psychotherapists in India

    Open Access•Adithy Adithy, E E De Wit et al.•ARTICLE•Evaluation and Program Planning•2025

  • Criminalisation of Juvenile Justice: Questioning the Assumptions of Juvenile Transfer Laws in India

    Sheila Ramaswamy, Saurabh Shashi Ashok et al.•ARTICLE•The International Journal of…•2024•References: 13

    The development of juvenile transfer laws, against the backdrop of significant public outrage against a perceived increase in juvenile crime, has generated multiple debates, mostly centred on issues of child-inclusive justice versus crime mitigation and public safety agendas. The resulting legal developments have sought to instrumentalise punitive justice approaches, that facilitate the criminalisation of a sub-group of children (based on age and…

  • Social Mobility of Rohingya Women in a Small Refugee Camp in Chennai, India: A Case Study

    R K Radhakrishnan, E E De Wit et al.•ARTICLE•Journal of Immigrant & Refugee…•2024•References: 17

    Conflict and displacement are gendered processes which impact women in refugee communities in various ways. The following case study, in a small refugee camp in Chennai, explores whether the design of a small refugee camp allows for increased mobility among women and a different position for female refugees in the community. Findings from a two-year long study, including participant observations, FGDs and interviews, show that Rohingya women gain…

  • Vulnerabilities Prompting Use of Technology and Screen by Mothers of Autistic Children in India: Lived Experiences and Comparison to Scientific Literature

    Open Access•Seema Girija Lal, Elena Syurina et al.•ARTICLE•Culture Medicine and Psychiatry•2023

    Technology and screen media has its place in every home, yet the influences of the same are less known. This research aims to explore the vulnerabilities that prompt the mothers to use screen media for their children, prior to a diagnosis of autism for their child. It also aims to explore literature the influence of screen media on speech and language development in children. This study combined semi-structured interviews with 16 mothers of autis…

  • The Child Needs to Tell it to Me in Words”: Barriers and Facilitators to Witness Competencies in Child Sexual Abuse Trials

    Sheila Ramaswamy, Meetali Devgun et al.•ARTICLE•The International Journal of…•2023•References: 4

    Much research on child witnesses in child sexual abuse trials is focused on children’s performance in legal proceedings. Witness competency, that is predicated on the adversarial justice system’s principle of orality, is core to child witness testimony, and is determined at the pre-trial stage. However, this article highlights the need to consider child witness competency as a dynamic concept, that varies in response to the ecologies of the trial…

  • Design and Evaluation of Peer Supervision for Community Mental Health Workers: A Task-Shifting Strategy in Low-Resource Settings

    Open Access•Rekha Pallikkuth, T Manoj Kumar et al.•ARTICLE•Community Mental Health Journal•2023•References: 67

    The use of Lay Mental Health Workers (LMHWs) to tackle the treatment gap in low-resource settings is well established, and although they often receive training, the potential of proper supervision to improve outcomes remains untapped. Indeed, given the strain on expert resources, peer-supervision models based on supervisors' seniority of work experience have significant potential especially in relation to community knowledge and embedding of LMHW…

  • Stigma, lost opportunities, and growth: Understanding experiences of caregivers of persons with mental illness in Tamil Nadu, India

    Open Access•Mirjam A Dijkxhoorn, Archana Padmakar et al.•ARTICLE•Transcultural Psychiatric…•2023•Cited by: 1•References: 72

    This study aimed to address gaps in understanding of the lived experiences of caregivers of persons with mental illness in low-income countries. It was conducted among caregivers of persons with mental illness making use of a free non-governmental clinic in and around Chennai, India. The study adopted a qualitative methodology, with semi-structured interviews and life history exercises (n = 29) and six focus group discussions with caregivers (n =…

  • Doing ‘reciprocity work’: The role of fieldworkers in a mass drug administration trial in the Gambia

    Open Access•Alexandra Fehr, Claudia Nieto-Sanchez et al.•ARTICLE•Global Public Health•2022

    In their roles as nurses, data collectors, or other, fieldworkers undertake myriad tasks working intimately with and on the bodies of others - a type of work called 'body work'. This work further includes the micro-political relations shaping these interactions, and studies have shown the importance of these relationships in the success of clinical trials, particularly in the Gambia. This study seeks to expand the concept of body work to understa…

  • Addressing health needs of the homeless in Delhi: Standardising on the issues of Street Medicine practice

    Open Access•Harry Coleman, Liam Levy-Philipp et al.•ARTICLE•Global Public Health•2022

    Due to barriers in accessing and using healthcare services, a large proportion of the care homeless populations receive comes from informal providers. In Delhi, one such informal programme, called Street Medicine, provides healthcare outreach to homeless communities. Clinical practice guidelines are set to be developed for Street Medicine teams in India and form the object of this research. This study uses a social-ecological model to understand …

  • Beyond Resistance, Beyond Assimilation: Reimagining Citizenship through Poetry

    Open Access•Abdul Kalam Azad, Divya Nadkarni et al.•ARTICLE•Journal of Human Rights Practice•2022•Cited by: 6•References: 7

    The members of the Miya community in Assam, India have been facing an exacerbated threat of statelessness. Among the emancipatory grassroots organizations that have emerged to defend the rights of the Miya community, is an aesthetic resistance movement, now recognized as the ‘Miya Poetry’ movement. The bulk of the movement’s work since its emergence in 2016 has been to call attention to the discriminations and human rights violations faced by the…

  • Rohingyas and Sri Lankan Tamil refugees in Tamil Nadu: A Replicable Model of Semi-Permanent Resettlement in Low-Resource Settings

    Open Access•R K Radhakrishnan, E E De Wit et al.•ARTICLE•Equal Opportunities International•2022•Cited by: 1•References: 21

    Purpose After being forced to flee their respective home countries, Sri Lankan Tamils and Rohingya refugees resettled in the Indian state of Tamil Nadu. This study attempts to explore the extent to which the state has provided means for integration in the absence of refugee protection laws and citizenship. Design/methodology/approach A qualitative research approach was used, including in-depth interviews (IDIs) and focus group discussions (FGDs) …

  • Mitigating the Covid-19 pandemic in India: An in-Depth Exploration of Challenges and Opportunities for Three Vulnerable Population Groups

    Open Access•Joe Thomas, E E De Wit et al.•ARTICLE•Equal Opportunities International•2022•Cited by: 2•References: 10

    Purpose The COVID-19 pandemic is certain to have an unprecedented impact on the global population, but marginalized and vulnerable groups in low-income countries (LICs) are predicted to carry the largest burden. This study focuses on the implications of COVID-19-related measures on three population groups in India, including (1) migrant laborers (of which a majority come from Scheduled Castes (SCs) and Scheduled Tribes (STs), as well as Other Bac…

  • Intra-household Variation in Pathways to Care for Epilepsy and Mental Disorders in Eastern Uganda

    Open Access•Nandini D P Sarkar, Nandini Sarkar et al.•ARTICLE•Frontiers in Public Health•2021

    Integrating mental, neurological, and substance use (MNS) health care into the public health system has become a global priority, with mental health, and well-being now being part of the Sustainable Development Goals. In the aim to provide good quality care for MNS disorders, understanding patients' pathways to care is key. This qualitative study explores the pathways to care of patients attending an outpatient mental health clinic of a district …

  • The role of social cohesion in the implementation and coverage of a mass drug administration trial for malaria control in the Gambia: An in-depth comparison of two intervention villages

    Open Access•Alexandra Fehr, Joan Muela Ribera et al.•ARTICLE•Social Science & Medicine•2021•Cited by: 1•References: 4

    Mass drug administration (MDA), used increasingly in malaria eradication efforts, involves administering medication to an entire target population regardless of individual-level disease status. This strategy requires high levels of coverage and compliance. Previous studies have assessed individual and structural factors affecting MDA coverage, but there is a need to better understand the influence and expressions of community dynamics and social …

  • An evaluation of self‐management outcomes among chronic care patients in community home‐based care programmes in rural Malawi: A 12‐month follow‐up study

    Open Access•Vibian Angwenyi, Joske Bunders et al.•ARTICLE•Health & Social Care in the…•2020•References: 1

    This paper investigates the impact of community home-based care (CHBC) on self-management outcomes for chronically ill patients in rural Malawi. A pre- and post-evaluation survey was administered among 140 chronically ill patients with HIV and non-communicable diseases, newly enrolled in four CHBC programmes. We translated, adapted and administered scales from the Stanford Chronic Disease Self-Management Programme to evaluate patient's self-manag…

  • And it snowballed from there”: The development of orthorexia nervosa from the perspective of people who self-diagnose

    Open Access•Martina Valente, Rachel Feldhay Brenner et al.•ARTICLE•Appetite•2020•Cited by: 3•References: 28

    This study aims to include the perspective of those who share content about Orthorexia Nervosa (ON) on Instagram and self-diagnose with ON (SD-ON) to trace their development of ON, gain insights into risk factors, symptoms and recovery, and explore differences with those who do not SD-ON. This research used mixed methods, with a sequential explanatory design. The quantitative component (n = 185) aimed to identify biological, psychological, interp…

  • If somebody could just understand what I am going through, it would make all the difference: Conceptualizations of trauma in homeless populations experiencing severe mental illness

    Open Access•Andrew Gilmoor, Andrew R Gilmoor et al.•ARTICLE•Transcultural Psychiatry•2020•References: 47

    Exposure to violence, vulnerability due to lack of shelter, alienation due to stigma, the experiences of severe mental illness (SMI) and subsequent institutionalization, make homeless persons with SMI uniquely susceptible to trauma exposure and subsequent mental health consequences. This study aims to contribute to the development of culturally sensitive interventions for identifying and treating trauma in a population of homeless persons with SM…

  • Research Needs for Bipolar Disorder From Clinicians’ Perspectives: Narrowing the Research–Practice Gap

    Open Access•Eva F Maassen, Eline J Regeer et al.•ARTICLE•SAGE Open•2019

    Research evidence is incompletely translated into clinical practice. This study aimed to explore research needs from clinicians’ perspectives in the field of bipolar disorder and their reflections on patients’ research needs as well as to unravel the potential role of researcher-clinicians, to narrow the research practice gap. Using focus group discussions (FGDs) and interviews, research needs according to psychiatrists, psychologists, and nurses…

  • Experienced and Anticipated Discrimination and Social Functioning in Persons With Mental Disabilities in Kenya: Implications for Employment

    Open Access•Ikenna D Ebuenyi, Barbara J Regeer et al.•ARTICLE•Frontiers in Psychiatry•2019

    Introduction: Persons with mental illness experience social life restriction and stigma that may have implications for their work ability. The aims of this study are (i) to report experienced and anticipated discrimination and social functioning in persons with mental disabilities in Kenya and (ii) to investigate the association between experienced and anticipated discrimination, social functioning, and employment in this population. Materials an…

  • Low Self-Esteem and Its Association With Anxiety, Depression, and Suicidal Ideation in Vietnamese Secondary School Students: A Cross-Sectional Study

    Open Access•Dat Tan Nguyen, Pamela Wright et al.•ARTICLE•Frontiers in Psychiatry•2019

    Background: There is a correlation between self-esteem in adolescents and risks and protective factors for their health and welfare. The study was conducted to determine the prevalence of low self-esteem and sociodemographic features related to anxiety, depression, educational stress, and suicidal ideation in secondary school students in Vietnam. Methods: A cross-sectional design was employed for this study with participation of 1,149 students in…

  • Employability of Persons With Mental Disability: Understanding Lived Experiences in Kenya

    Open Access•Ikenna D Ebuenyi, Mònica Guxens et al.•ARTICLE•Frontiers in Psychiatry•2019

    Introduction: Globally, mental illness affects social and occupational functioning. We aimed to highlight the barriers to employment experienced by persons with mental disabilities in Kenya and how they manage to find work against all the odds. Materials and Methods: Using a mixed-method study design, we purposely sampled persons with mental illness through networks of persons with psychosocial disabilities (Users and Survivors of Psychiatry and …

  • Assessing the Impact of the Twin Track Socio-Economic Intervention on Reducing Leprosy-Related Stigma in Cirebon District, Indonesia

    Open Access•Dadun Dadun, Ruth M H Peters et al.•ARTICLE•International Journal of…•2019

    The consequences of leprosy go beyond the physical, social and psychological, as leprosy can drive persons affected and their families into poverty, stigmatization and disability. This paper describes the impact of a socio-economic development (SED) intervention that uses a twin-track approach (two micro-credit models) to reduce leprosy-related stigma in Cirebon District, Indonesia. A randomized-controlled mixed-methods study design was used to t…

  • Exploring the essence of enabling child participation within child protection services

    Open Access•Ganna G Van Bijleveld, Joske Bunders et al.•ARTICLE•Child & Family Social Work•2019•Cited by: 19•References: 5

    The chances that children have to participate in child protection services are largely contingent upon the attitudes and skills of case managers. They have a crucial role in ensuring that a child's voice is being listened to and acknowledged in often sensitive dialogues. Therefore, the aim of this study is to investigate what case managers need to facilitate child participation. By handing case managers a participation toolbox developed by childr…

  • Knowledge, Social Capital, and Grassroots Development: Insights from Rural Bangladesh

    Open Access•Sarah Cummings, Anastasia Seferiadis et al.•ARTICLE•The Journal of Development Studies•2018

    This article examines the relationship between social capital and the creation and exchange of knowledge for grassroots development. It applies a framework that originated in developed countries to the experimental phase of a successful entrepreneurial development programme, undertaken between 2006 and 2012 in rural Bangladesh. Although generally applicable, the framework’s structural dimensions are further developed and divided into three functi…

Next
  • The experiential knowledge of patients: A New Resource for Biomedical Research

    Open Access•J Francisca Caron-Flinterman, Jacqueline E W Broerse et al.•ARTICLE•Social Science & Medicine•2005•Cited by: 53•References: 18

  • Exploring the essence of enabling child participation within child protection services

    Open Access•Ganna G Van Bijleveld, Joske Bunders et al.•ARTICLE•Child & Family Social Work•2019•Cited by: 19•References: 5

    The chances that children have to participate in child protection services are largely contingent upon the attitudes and skills of case managers. They have a crucial role in ensuring that a child's voice is being listened to and acknowledged in often sensitive dialogues. Therefore, the aim of this study is to investigate what case managers need to facilitate child participation. By handing case managers a participation toolbox developed by childr…

  • Six Guiding Principles for Evaluating Mode-2 Strategies for Sustainable Development

    Open Access•Barbara J Regeer, Anne-Charlotte Hoes et al.•ARTICLE•American Journal of Evaluation•2009•Cited by: 18•References: 20

    A new generation of public programs emerges, which specifically addresses complex societal problems we witness today. Programs for these types of complex issues—in this article, we consider more closely the challenge of sustainable development—are characterized by emergent design, learning processes between diverse actors, and adaptive management. Managers of these kinds of programs have new demands for evaluation and evaluators. This article des…

  • Exploring ways to reconcile accountability and learning in the evaluation of niche experiments

    Open Access•Barbara J Regeer, Renée De Wildt-Liesveld et al.•ARTICLE•Evaluation•2016•Cited by: 14•References: 21

    While evaluation is seen as a mechanism for both accountability and learning, it is not self-evident that the evaluation of niche experiments focuses on both accountability and learning at the same time. Tensions exist between the accountability-oriented needs of funders and the learning needs of managers of niche experiments. This article explores the differences in needs and expectations of funders and managers in terms of upwards, downwards an…

  • Seeing eye to eye or not? Young people's and child protection workers' perspectives on children's participation within the Dutch child protection and welfare services

    Open Access•Ganna G Van Bijleveld, Christine Dedding et al.•ARTICLE•Children and Youth Services Review•2014•Cited by: 10•References: 27

  • Around the table with policymakers: Giving voice to children in contexts of poverty and deprivation

    Open Access•Asia Sarti, Inge Schalkers et al.•ARTICLE•Action Research•2017•Cited by: 7•References: 6

    Increasingly, children are seen as social actors who are knowledgeable about issues that concern their lives, both in research and policymaking. However, this approach is not without challenges, particularly in relation to sensitive topics like poverty. One key challenge relates to how to involve children effectively so that their stories are actually listened to and acted upon by policymakers. This article reflects on the potential of photovoice…

  • Beyond Resistance, Beyond Assimilation: Reimagining Citizenship through Poetry

    Open Access•Abdul Kalam Azad, Divya Nadkarni et al.•ARTICLE•Journal of Human Rights Practice•2022•Cited by: 6•References: 7

    The members of the Miya community in Assam, India have been facing an exacerbated threat of statelessness. Among the emancipatory grassroots organizations that have emerged to defend the rights of the Miya community, is an aesthetic resistance movement, now recognized as the ‘Miya Poetry’ movement. The bulk of the movement’s work since its emergence in 2016 has been to call attention to the discriminations and human rights violations faced by the…

  • How can mental health and faith-based practitioners work together? A case study of collaborative mental health in Gujarat, India

    Open Access•Laura Shields, Ajay Chauhan et al.•ARTICLE•Transcultural Psychiatry•2016•Cited by: 6•References: 32

    Despite the knowledge that people with mental illness often seek care from multiple healing systems, there is limited collaboration between these systems. Greater collaboration with existing community resources could narrow the treatment gap and reduce fragmentation by encouraging more integrated care. This paper explores the origins, use, and outcomes of a collaborative programme between faith-based and allopathic mental health practitioners in …

  • Governance strategies to enhance the adaptive capacity of niche experiments

    Open Access•Renée De Wildt-Liesveld, Joske Bunders et al.•ARTICLE•Environmental Innovation and…•2015•Cited by: 6•References: 32

  • Producing social capital as a development strategy: Implications at the micro-level

    Open Access•Anastasia Seferiadis, Anastasia A Seferiadis et al.•ARTICLE•Progress in Development Studies•2015•Cited by: 5•References: 32

    This article considers how social capital can contribute to poverty alleviation at the micro-level, based on an analysis of the documentary evidence provided by theoretical perspectives and empirical studies. Across countries and contexts, micro-credit, agricultural production and marketing, environmental protection and knowledge networking are linked to productive social capital. Four mechanisms to strengthen social capital are identified: struc…

  • Patient Partnership in Decision-Making on Biomedical Research: Changing the Network

    Open Access•J Francisca Caron-Flinterman, Jacqueline E W Broerse et al.•ARTICLE•Science Technology & Human Values•2007•Cited by: 4•References: 50

    Participation of end users in decision-making on science is increasingly practiced, as witnessed by the growing body of scientific literature on case evaluations. In the biomedical field, however, end-user participation in decision-making is rare. Some scholars argue that because patients are stakeholders and relevant experts, they could also provide important contributions to decision-making within the field of biomedical research. But what stra…

  • And it snowballed from there”: The development of orthorexia nervosa from the perspective of people who self-diagnose

    Open Access•Martina Valente, Rachel Feldhay Brenner et al.•ARTICLE•Appetite•2020•Cited by: 3•References: 28

    This study aims to include the perspective of those who share content about Orthorexia Nervosa (ON) on Instagram and self-diagnose with ON (SD-ON) to trace their development of ON, gain insights into risk factors, symptoms and recovery, and explore differences with those who do not SD-ON. This research used mixed methods, with a sequential explanatory design. The quantitative component (n = 185) aimed to identify biological, psychological, interp…

  • The complex challenge of providing patient-centred perinatal healthcare in rural Uganda: A qualitative enquiry

    Open Access•Nandini D P Sarkar, Nandini Sarkar et al.•ARTICLE•Social Science & Medicine•2018•Cited by: 3•References: 30

  • Mitigating the Covid-19 pandemic in India: An in-Depth Exploration of Challenges and Opportunities for Three Vulnerable Population Groups

    Open Access•Joe Thomas, E E De Wit et al.•ARTICLE•Equal Opportunities International•2022•Cited by: 2•References: 10

    Purpose The COVID-19 pandemic is certain to have an unprecedented impact on the global population, but marginalized and vulnerable groups in low-income countries (LICs) are predicted to carry the largest burden. This study focuses on the implications of COVID-19-related measures on three population groups in India, including (1) migrant laborers (of which a majority come from Scheduled Castes (SCs) and Scheduled Tribes (STs), as well as Other Bac…

  • Learning About Parenting Together: A Programme to Support Parents with Inter-generational Concerns in Pune, India

    Open Access•E E De Wit, Adithy Adithy et al.•ARTICLE•Contemporary Family Therapy•2017•Cited by: 2•References: 5

    Rapid developments in the last few decades have brought about dramatic changes in Indian social life, particularly affecting new middle-class families. Inter-generational conflicts, high academic pressures, and modern anxieties lead to stress both in parents and in children. There is a need for parenting programmes that respond to these specific concerns, in order to reduce parenting stress and improve family well-being. This study aimed to devel…

  • Stigma, lost opportunities, and growth: Understanding experiences of caregivers of persons with mental illness in Tamil Nadu, India

    Open Access•Mirjam A Dijkxhoorn, Archana Padmakar et al.•ARTICLE•Transcultural Psychiatric…•2023•Cited by: 1•References: 72

    This study aimed to address gaps in understanding of the lived experiences of caregivers of persons with mental illness in low-income countries. It was conducted among caregivers of persons with mental illness making use of a free non-governmental clinic in and around Chennai, India. The study adopted a qualitative methodology, with semi-structured interviews and life history exercises (n = 29) and six focus group discussions with caregivers (n =…

  • Rohingyas and Sri Lankan Tamil refugees in Tamil Nadu: A Replicable Model of Semi-Permanent Resettlement in Low-Resource Settings

    Open Access•R K Radhakrishnan, E E De Wit et al.•ARTICLE•Equal Opportunities International•2022•Cited by: 1•References: 21

    Purpose After being forced to flee their respective home countries, Sri Lankan Tamils and Rohingya refugees resettled in the Indian state of Tamil Nadu. This study attempts to explore the extent to which the state has provided means for integration in the absence of refugee protection laws and citizenship. Design/methodology/approach A qualitative research approach was used, including in-depth interviews (IDIs) and focus group discussions (FGDs) …

  • The role of social cohesion in the implementation and coverage of a mass drug administration trial for malaria control in the Gambia: An in-depth comparison of two intervention villages

    Open Access•Alexandra Fehr, Joan Muela Ribera et al.•ARTICLE•Social Science & Medicine•2021•Cited by: 1•References: 4

    Mass drug administration (MDA), used increasingly in malaria eradication efforts, involves administering medication to an entire target population regardless of individual-level disease status. This strategy requires high levels of coverage and compliance. Previous studies have assessed individual and structural factors affecting MDA coverage, but there is a need to better understand the influence and expressions of community dynamics and social …

  • The Causes and Consequences of Collaborations between Scientists and Non-Scientific Groups

    Joske Bunders, L Leydesdorff•CHAPTER•Social Direction of the Public…•1987

  • The Practical Management of Scientists’ Actions: The Influence of Patterns of Knowledge Development in Biology on Cooperations between University Biologists and Non-Scientists

    Joske Bunders•CHAPTER•Social Direction of the Public…•1987

  • The Importance of Interactions in Broadening the Base for Decision-Making On Technology

    Open Access•Joske Bunders, José Van Eijndhoven•ARTICLE•Bulletin of Science Technology &…•1987

  • The Importance of Interactions in Broadening The Base for Decision-Making on Technology

    Open Access•Joske Bunders, José Van Eijndhoven•ARTICLE•Bulletin of Science Technology &…•1987

  • The Social Direction of the Public Sciences: Causes and Consequences of Co-Operation Between Scientists and Non-Scientific Groups

    Open Access•Stuart S Blume, Stuart Blume et al.•BOOK•The Social direction of the…•1987

  • The Social Direction of the Public Sciences: Causes and Consequences of Cooperation between Scientists and Nonscientific Groups

    John A Sonquist, Stuart Blume et al.•ARTICLE•Contemporary Sociology A Journal…•1989

    I Co-operative Processes and the Production of Scientific Knowledge.- The Theoretical Significance of Co-operative Research.- The Practical Management of Scientists' Actions: The Influence of Patterns of Knowledge Development in Biology on Cooperations Between University Biologists and Non-Scientists.- II Collaborations Between Scientists and Non-Scientists at the Grassroots.- Cooperation Between Medical Researchers and a Self-Help Movement: The …

  • Transdisciplinarity: The New Challenge for Biomedical Research

    Open Access•J F Caron Flinterman, J Francisca Flinterman et al.•ARTICLE•Bulletin of Science Technology &…•2001

    During the past decade, patient participation became an important issue in the medical field, and patient participation in biomedical research processes is increasingly called for. One of the arguments for this refers to the specific kind of knowledge, called experiential knowledge, patients could contribute. Until now, participation of patients in biomedical research has been rare, and integration of patients’ experiential knowledge with scienti…

  • Patients’ priorities concerning health research: The case of asthma and COPD research in the Netherlands

    Open Access•J F Caron-Flinterman, J Francisca Caron‐Flinterman et al.•ARTICLE•Health Expectations•2005

    Background Although patients are increasingly involved in agenda setting within specific fields of health research, they rarely participate in decision‐making on the entire breadth of health research, including biomedical research. This might be attributable to a widely held view that patients are incapable of adequate research prioritization due to a lack of relevant knowledge, a failure to look beyond their own individual problems or an inabili…

  • The experiential knowledge of patients: A New Resource for Biomedical Research

    Open Access•J Francisca Caron-Flinterman, Jacqueline E W Broerse et al.•ARTICLE•Social Science & Medicine•2005•Cited by: 53•References: 18

  • Patient Partnership in Decision-Making on Biomedical Research: Changing the Network

    Open Access•J Francisca Caron-Flinterman, Jacqueline E W Broerse et al.•ARTICLE•Science Technology & Human Values•2007•Cited by: 4•References: 50

    Participation of end users in decision-making on science is increasingly practiced, as witnessed by the growing body of scientific literature on case evaluations. In the biomedical field, however, end-user participation in decision-making is rare. Some scholars argue that because patients are stakeholders and relevant experts, they could also provide important contributions to decision-making within the field of biomedical research. But what stra…

  • Understanding diversity in impact and responses among HIV/Aids-affected households: The case of Msinga, South Africa

    Kees Swaans, Jacqueline E W Broerse et al.•ARTICLE•African Journal of AIDS Research•2008

    To gain a more comprehensive understanding of the impact of HIV and AIDS on rural households in Msinga, South Africa, the sustainable livelihoods framework was adapted. An ethnographic perspective was employed to examine: 1) the impact of HIV/AIDS-related illnesses on people's mind and spirit (the internal environment), and 2) the influence of institutional structures and processes (the external environment), in order to better understand 3) the …

  • The Farmer Life School: Experience from an innovative approach to HIV education among farmers in South Africa

    Open Access•Kees Swaans, Jacqueline Broerse et al.•ARTICLE•SAHARA-J Journal of Social…•2008•References: 7

    The Farmer Life School (FLS) is an innovative approach to integrating HIV education into life skills and technical training for farmers. This study aims to gain insight into the strengths and weaknesses of this relatively new approach, through the implementation of an adapted version in South Africa. The results are presented of a pilot with three groups of community gardeners, predominantly women, attending weekly sessions. Impact was assessed i…

  • Evaluating Interactive Policy Making on Biotechnology: The Case of the Dutch Ministry of Health, Welfare and Sport

    Open Access•Jacqueline E W Broerse, Tjard De Cock Buning et al.•ARTICLE•Bulletin of Science Technology &…•2009

    Public engagement is increasingly advocated and applied in the development and implementation of technological innovations. However, initiatives so far are rarely considered effective. There is a need for more methodological rigor and insight into conducive conditions. The authors developed an evaluative framework and assessed accordingly the effectiveness of a project of the Dutch Ministry of Health, Welfare and Sport in which the application of…

  • Six Guiding Principles for Evaluating Mode-2 Strategies for Sustainable Development

    Open Access•Barbara J Regeer, Anne-Charlotte Hoes et al.•ARTICLE•American Journal of Evaluation•2009•Cited by: 18•References: 20

    A new generation of public programs emerges, which specifically addresses complex societal problems we witness today. Programs for these types of complex issues—in this article, we consider more closely the challenge of sustainable development—are characterized by emergent design, learning processes between diverse actors, and adaptive management. Managers of these kinds of programs have new demands for evaluation and evaluators. This article des…

  • Guiding visions in ecological genomics: A first step to exploring the future

    Open Access•A Roelofsen, Roy R Kloet et al.•ARTICLE•New Genetics and Society•2010

    Ecological genomics (ecogenomics) is a relatively new area of research and innovation, positioned at the crossroads of molecular biology, biotechnology, ecology and soil and environmental sciences. For ecogenomics to contribute to solving complex societal problems, collaboration between scientific and non-scientific actors is crucial. Within the Dutch Ecogenomics Consortium this is addressed by developing and implementing a constructive technolog…

  • Social Direction of the Public Sciences: Causes and Consequences of Co-Operation Between Scientists and Non-scientific Groups

    Joske Bunders, Loet Leydesdorff et al.•BOOK•Social Direction of the Public…•2012

  • Depression, anxiety, and suicidal ideation among Vietnamese secondary school students and proposed solutions: A cross-sectional study

    Open Access•Dat Tan Nguyen, Christine Dedding et al.•ARTICLE•BMC Public Health•2013

    Anxiety, depression, and suicidal ideation are common among Vietnamese secondary school students. There are strong associations with physical and emotional abuse in the family and high educational stress. Academic curricula and attitudes of parents and teachers need to be changed from a punitive to a more supportive approach to reduce the risk of poor mental health. An internet-based mental health intervention could be a feasible and effective fi…

  • Perspectives of pupils, parents, and teachers on mental health problems among Vietnamese secondary school pupils

    Open Access•Dat Tan Nguyen, Christine Dedding et al.•ARTICLE•BMC Public Health•2013

    Vietnamese secondary school pupils feel that their mental health status is poor, because of many risk factors in their learning and living environment. The need now is to investigate further to identify and apply strategies to improve students' mental health

  • Meeting the Challenge of the Rights-based Approach to Disability: The Changing Role of Disability-Specific NGOs and DPOs

    Saskia C van Veen, Barbara J Regeer et al.•ARTICLE•Nordic Journal of Human Rights•2013

  • Integration of community home based care programmes within national primary health care revitalisation strategies in Ethiopia, Malawi, South-Africa and Zambia: A comparative assessment

    Open Access•Carolien Jeanette Aantjes, Carolien Aantjes et al.•ARTICLE•Globalization and Health•2014

    BACKGROUND: In 2008, the WHO facilitated the primary health care (PHC) revitalisation agenda. The purpose was to strengthen African health systems in order to address communicable and non-communicable diseases. Our aim was to assess the position of civil society-led community home based care programmes (CHBC), which serve the needs of patients with HIV, within this agenda. We examined how their roles and place in health systems evolved, and the p…

  • Seeing eye to eye or not? Young people's and child protection workers' perspectives on children's participation within the Dutch child protection and welfare services

    Open Access•Ganna G Van Bijleveld, Christine Dedding et al.•ARTICLE•Children and Youth Services Review•2014•Cited by: 10•References: 27

  • Outsourcing Mental Health Care Services? The Practice and Potential of Community-Based Farms in Psychiatric Rehabilitation

    Open Access•Sorana C Iancu, Marjolein Zweekhorst et al.•ARTICLE•Community Mental Health Journal•2014•References: 17

  • ‘[I would like] a place to be alone, other than the toilet’ – Children's perspectives on paediatric hospital care in the Netherlands

    Open Access•Inge Schalkers, Christine Dedding et al.•ARTICLE•Health Expectations•2015

    BACKGROUND: Although it is widely recognized that children are willing, capable and legally entitled to be active participants in their health care, parents are generally invited to evaluate paediatric hospital care and services rather than children themselves. This is problematic because parents cannot serve as the only spokespersons for the perspectives and experiences of children. OBJECTIVE: To investigate children's experiences with and persp…

  • ‘I'm happy that I can still walk’ – Participation of the elderly in home care as a specific group with specific needs and wishes

    Open Access•Charlotte Bagchus, Christine Dedding et al.•ARTICLE•Health Expectations•2015

    BACKGROUND: Taking the needs, wishes and experiential knowledge of clients into account is considered to result in a better fit between the supply and demand of modern health care, contributing to the improvement of individual care, organizations, institutions and policy. However, the current generation of the elderly have had little experience of consumer-oriented public services. They are said to be less likely to discuss their needs and wishes…

  • Children's and young people's participation within child welfare and child protection services: A state‐of‐the‐art review

    Open Access•Ganna G Van Bijleveld, Christine Dedding et al.•ARTICLE•Child & Family Social Work•2015

    This state‐of‐the‐art literature review, based on a literature search of multiple scientific bibliographic databases, aims to shed light on what is known about barriers and factors facilitating child participation within the child protection and child welfare services from both children's and social workers' perspectives. The personal relationship between the child and the social worker is mentioned as one of the most important facilitators for p…

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Ethnos_APP • Open Source Project • MIT License • Frontend v2.0.0 • Privacy and Cookies • API Documentation: api.ethnos.app/docs • API Source Code: GitHub • DOI: 10.5281/zenodo.17049435 • Frontend Source Code: GitHub • DOI: 10.5281/zenodo.17050053 • cruz.rio.br • Expectantes Misericordiae