Joakim Öhlén
Biographic Data
| ID | 106499 |
|---|---|
| NAME | Joakim Öhlén |
| GIVEN NAMES | Joakim |
| FAMILY NAME | Öhlén |
| SIGNATURE | ÖHLÉN J |
| AFFILIATIONS | Sahlgrenska University Hospital |
| ORCID | 0000-0003-2429-8705 |
| VERIFIED | Yes |
| TOTAL WORKS | 33 |
| TOTAL CITATIONS | 37 |
| AUTHOR COUNT | 33 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2003 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 4 |
Person-Centred Palliative Home Care From a Patient and Family Carer Perspective – A Qualitative Interpretive Meta Synthesis
With an ageing population and increasing chronic illness, the need for palliative care is growing. Most people prefer to be cared for at home when possible, making it essential to understand the experiences of patients and families receiving care at home to ensure it aligns with their needs. This study aims, therefore, to synthesise the literature regarding patients’ and family carers’ experiences of palliative care at home. This systematic revie…
Early Integration of Palliative Care in Hospitals
Early integration of palliative care within disease-oriented care is advocated but the question of how this is best accomplished remains. In the context of surgical care for patients with pancreatic cancer, a quality improvement initiative was introduced whereby palliative care consultations were offered early in the disease trajectory. We devised a qualitative study using an interpretive description design, focusing on the integration of palliat…
Violent suicide methods across life stages - a national population-based register study
This study contributes to the literature by highlighting distinct age- and subgroup-specific trends in the use of violent suicide methods. We noted a consistent decrease among women up to age 60, and lower rates among older migrants. These insights underscore the value of a lifespan approach in understanding suicide risk and method choice, and point to the need for tailored, context-aware prevention strategies
Enhancing Continuity in Ambulatory Oncology Care
Background: The global increase in cancer prevalence, driven by an aging population and advancements in early diagnosis, has shifted oncological care from inpatient to outpatient settings. This transition highlights the need for proximity support for patients undergoing ambulatory antineoplastic treatment, with concerns for symptom management and disrupted continuity of care throughout the course of the disease. To address these issues, the PESOA…
Trends, Preferences, and Policy Implementation Gaps in the Integration of Palliative Cancer Care in Sweden
Background: Swedish palliative care policy, launched in 2013, emphasize peoples ́ right to participate in planning and decision-making about their end-of-life care, including where to receive care and die. Moreover, the policy stresses early integration of palliative care in all care places. This abstract presents a public health palliative care research project with the overall aim to disclose potential policy responses and prerequisites for equ…
How can we improve the integration of palliative care and surgical care for patients with advanced pancreatic cancer
Pancreatic cancer is a serious disease that often presents severe symptoms and significant care needs. Palliative care is a holistic approach that, when integrated early, has been shown to enhance patients' well-being. However, palliative care is often misunderstood and equated with end-of-life care, which creates barriers to its early integration. There are still many unanswered questions regarding how to achieve efficient early integration of t…
Person-centred care as an evolving field of research
Background: There is evidence that person-centred care has positive effects, and the research field is growing fast and is cumbersome to overview. The purpose of this scoping review is to present an overview of the international research literature on person-centred care. Approach: Relevant literature indexed in PubMed, Scopus, PsychINFO, CINAHL and Web of Science was retrieved. Literature searches were developed using index terms and free text w…
Navigating Complexity
Through discourse analysis of focus groups, this study investigates how palliative care professionals in Sweden engage with “spiritual care,” “religion” and “spirituality.” Our results reveal a common assumption that religion is “visible,” but at the same time private. Furthermore, we observed a secular and nonreligious positioning, marked by frequent "us versus them" rhetoric, especially in discussions about truth telling. The findings illustrat…
Transformed Parenthood in the Face of ALS
When a parent is diagnosed with a progressive, fatal neurodegenerative disease, such as amyotrophic lateral sclerosis (ALS), it can have major effects on the family's health. Parenthood itself may also be affected, potentially fueling an urgent need for support from healthcare. Research focusing on this group of parents is nevertheless limited. The aim of this study was to illuminate the meaning of parenthood when a parent has ALS, from the persp…
The use of the Strengths and Difficulties Questionnaire to assess mental health in adolescents with parents diagnosed with Amyotrophic Lateral Sclerosis
Amyotrophic Lateral Sclerosis (ALS) presents significant challenges for affected families. The aim for this study was to assess the feasibility of using the Strengths and Difficulties Questionnaire (SDQ) with adolescents and parents with and without ALS. The method involved repeatedly distributing the questionnaire to evaluate its content and structure within this group. The SDQ Prosocial Behaviour subscale and total difficulties score was calcul…
Adolescents' challenging and grief-filled transitions when living with a parent with ALS
The unbalanced life situation may hinder the adolescents' identity formation and emancipation, which are developmentally important for managing a healthy and independent adulthood. The results emphasize the importance of early targeted support to reach this vulnerable group in order to secure their health
Empirical Phenomenological Inquiry
Empirical phenomenological inquiry and analyses are of high relevance and applicability for nursing and health care. Phenomenology has clear roots in philosophy, which needs to be brought into an empirical phenomenological inquiry. However, all study of phenomena and experience does not qualify as phenomenological inquiry. The aim of this article is to provide guidance for how to relate different empirical phenomenological methodologies that are …
Centredness in health care
Healthcare Professionals’ Perspective on Palliative Care in Intensive Care Settings
There is a growing need to integrate palliative care into intensive care units and to develop appropriate knowledge translation strategies. However, multiple challenges persist in attempts to achieve this objective. In this study, we aimed to explore intensive care professionals' perspectives on providing palliative and end-of-life care within an intensive care context. We used an interpretive description approach and interviewed 36 intensive car…
Person-centeredness and person-centred care in practice
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)The IJIC 20th Anniversary Issue was published in 2021
Knowledge translation resources to support the use of quality of life assessment tools for the care of older adults living at home and their family caregivers
Our study affirms the need to tailor KT resources on QOL assessment for different audiences. Our KT resources are available: www.healthyqol.com/older-adults
Enabling At-Homeness for Older People With Life-Limiting Conditions
At-homeness, as an aspect of well-being, can be experienced despite living with life-limiting conditions and needs for a palliative approach to care. In nursing homes, older residents with life-limiting conditions face losses and changes which could influence their experience of at-homeness. The aim of this study was to explore how nursing staff enable at-homeness for residents with life-limiting conditions. Interpretive description was employed …
Variations in grief, anxiety, depression, and health among family caregivers before and after the death of a close person in the context of palliative home care
This article investigates longitudinal variations in grief, self-rated health, and symptoms of anxiety and depression among family caregivers in palliative care. Data were taken from a randomized psycho-educational intervention trial and were collected at four time-points; at baseline, upon completion, 2 months later, and 6 months after the patient's death. In total, 117 family caregivers completed all questionnaires. The participants' grief was …
Micro-Meso-Macro Practice Tensions in Using Patient-Reported Outcome and Experience Measures in Hospital Palliative Care
This article applies a micro-meso-macro analytical framework to understand clinicians' experiences and perspectives of using patient-reported outcome and experience measures (PROMs and PREMs) in routine hospital-based palliative care. We structure our discussion through qualitative analysis of a design and implementation project for using an electronic tablet-based tool among hospital-based palliative clinicians to assess patients' and their fami…
Challenges When Translating and Culturally Adapting a Measurement Instrument
There is evidence that low suitability and comprehensibility of printed education materials (PEMs) affects patients' and relatives' ability to read and comprehend information. However, few instruments measure the suitability of written information, and none exist in the Swedish language. The aim was to describe the translation and adaptation of the Suitability and Comprehensibility of Materials (SAM+CAM) instrument into the Swedish language and h…
Enabling at-homeness for residents living in a nursing home
Purposeful Agency in Support Seeking During Cancer Treatment From a Person-Centered Perspective
People diagnosed with early-stage breast cancer (ESBC) manifest high supportive needs. eHealth supportive programs successfully satisfy those needs, but the process of generating supportive outcomes is less understood. We conducted this study to explore patients' efforts to satisfy their supportive needs throughout the treatment course, not limited to but particularly considering their use of the Internet. Guided by interpretive description, 19 w…
Participatory design in education materials in a health care context
Written patient education material, for example, discharge-information is commonly used in hospital settings. Despite following guidelines on how to best present text and using patients as consultants, improvements can still be made from a patient’s perspective. Here, we describe the process of developing patient education material using a participatory design methodology, with patients, clinicians, researchers and designers working as co-designe…
Providing Palliative Care in a Swedish Support Home for People Who Are Homeless
Despite high frequencies of multiple, life-limiting conditions relating to palliative care needs, people who are homeless are one of the most underserved and rarely encountered groups in palliative care settings. Instead, they often die in care places where palliative competence is not available. In this qualitative single-case study, we explored the conditions and practices of palliative care from the perspective of staff at a Swedish support ho…
The Recovery Process When Participating in Cancer Support and Rehabilitation Programs in Sweden
The aim was to illuminate the meaning of participating in support and rehabilitation programs described by people diagnosed with cancer. Nineteen persons were interviewed in focus groups and face-to-face. Data were analyzed with a qualitative phenomenological hermeneutical method for researching lived experiences. Interpretation proceeded through three phases: naïve reading, structural analysis, and comprehensive understanding. Three themes were …
The influence of significant others in complementary and alternative medicine decisions by cancer patients
Evocation of Meaning Through Poetic Condensation of Narratives in Empirical Phenomenological Inquiry Into Human Suffering
The phenomenological interest to gain insight into the human being with lived experiences characterized as composite, diverse, ambiguous, vague, obvious, and concealed challenged this researcher in the process of doing life-world phenomenology. While researching the phenomenon of suffering, the author sought ways to intensify and evoke the embedded meanings in oral narratives, and he presents a model for poetic condensation of oral narratives to …
Reflective Exploration of Beekman's Participant Experience
In this study we explored the researcher as an instrument in phenomenological research.To contribute to the discussion on phenomenological research methods for use in fieldwork, we explored Ton Beekman's participant experience (1986) as a way of enhancing the rigor and quality of data construction in phenomenological fieldwork. Beekman's approach is characterized by dialogue, bodily presence, being there, time and space dimensions, social and per…
Lived Observations
As researchers in palliative care, we recognize how involvement with seriously ill and dying persons has an impact on us. Using one's own senses, emotional and bodily responses in observations might open intersubjective dimensions of the research topic. The aim of the article is to highlight how phenomenological theories on intersubjectivity can be useful to develop rich and transparent data generation and analysis. We present three field note ex…
Micro-Meso-Macro Practice Tensions in Using Patient-Reported Outcome and Experience Measures in Hospital Palliative Care
This article applies a micro-meso-macro analytical framework to understand clinicians' experiences and perspectives of using patient-reported outcome and experience measures (PROMs and PREMs) in routine hospital-based palliative care. We structure our discussion through qualitative analysis of a design and implementation project for using an electronic tablet-based tool among hospital-based palliative clinicians to assess patients' and their fami…
Participatory design in education materials in a health care context
Written patient education material, for example, discharge-information is commonly used in hospital settings. Despite following guidelines on how to best present text and using patients as consultants, improvements can still be made from a patient’s perspective. Here, we describe the process of developing patient education material using a participatory design methodology, with patients, clinicians, researchers and designers working as co-designe…
Providing Palliative Care in a Swedish Support Home for People Who Are Homeless
Despite high frequencies of multiple, life-limiting conditions relating to palliative care needs, people who are homeless are one of the most underserved and rarely encountered groups in palliative care settings. Instead, they often die in care places where palliative competence is not available. In this qualitative single-case study, we explored the conditions and practices of palliative care from the perspective of staff at a Swedish support ho…
Evocation of Meaning Through Poetic Condensation of Narratives in Empirical Phenomenological Inquiry Into Human Suffering
The phenomenological interest to gain insight into the human being with lived experiences characterized as composite, diverse, ambiguous, vague, obvious, and concealed challenged this researcher in the process of doing life-world phenomenology. While researching the phenomenon of suffering, the author sought ways to intensify and evoke the embedded meanings in oral narratives, and he presents a model for poetic condensation of oral narratives to …
Transforming Desolation Into Consolation
The purpose of this study is to describe lived experiences of being ill with breast cancer for mothers with dependent children. A special focus is to explore meanings of desolation and consolation, and meanings of transforming the consolation. Stories of Swedish women who took part in a supportive network for young women with breast cancer were interpreted phenomenological-hermeneutically as transforming desolation into consolation. This means a …
Spouses' grief before the patient's death
Based on the lived experience research model, this study retrospectively explores the experiences of spouses of persons who died after being admitted to palliative home care, in order to achieve a deeper understanding of the meaning(s) of spouses' grief before the patient's death. The context for the study was palliative home care in urban Sweden. The transcripts from interviews with 12 spouses were analysed according to a hermeneutic phenomenolo…
The influence of significant others in complementary and alternative medicine decisions by cancer patients
Making Sense of Living Under the Shadow of Death
Women with recurrent breast cancer face many difficulties and challenges, from clinical symptoms of disease progression and treatment to a range of emotional responses. Guided by grounded theory methodology, we explored the main concerns of women with recurrent breast cancer, and how they were dealing with their situations. Data were collected from 40 in-depth interviews with 20 women diagnosed with recurrent breast cancer. The core category illu…
Reflective Exploration of Beekman's Participant Experience
In this study we explored the researcher as an instrument in phenomenological research.To contribute to the discussion on phenomenological research methods for use in fieldwork, we explored Ton Beekman's participant experience (1986) as a way of enhancing the rigor and quality of data construction in phenomenological fieldwork. Beekman's approach is characterized by dialogue, bodily presence, being there, time and space dimensions, social and per…
Person-Centered Care — Ready for Prime Time
Long-term diseases are today the leading cause of mortality worldwide and are estimated to be the leading cause of disability by 2020. Person-centered care (PCC) has been shown to advance concordance between care provider and patient on treatment plans, improve health outcomes and increase patient satisfaction. Yet, despite these and other documented benefits, there are a variety of significant challenges to putting PCC into clinical practice. Al…
The Recovery Process When Participating in Cancer Support and Rehabilitation Programs in Sweden
The aim was to illuminate the meaning of participating in support and rehabilitation programs described by people diagnosed with cancer. Nineteen persons were interviewed in focus groups and face-to-face. Data were analyzed with a qualitative phenomenological hermeneutical method for researching lived experiences. Interpretation proceeded through three phases: naïve reading, structural analysis, and comprehensive understanding. Three themes were …
Lived Observations
As researchers in palliative care, we recognize how involvement with seriously ill and dying persons has an impact on us. Using one's own senses, emotional and bodily responses in observations might open intersubjective dimensions of the research topic. The aim of the article is to highlight how phenomenological theories on intersubjectivity can be useful to develop rich and transparent data generation and analysis. We present three field note ex…
Purposeful Agency in Support Seeking During Cancer Treatment From a Person-Centered Perspective
People diagnosed with early-stage breast cancer (ESBC) manifest high supportive needs. eHealth supportive programs successfully satisfy those needs, but the process of generating supportive outcomes is less understood. We conducted this study to explore patients' efforts to satisfy their supportive needs throughout the treatment course, not limited to but particularly considering their use of the Internet. Guided by interpretive description, 19 w…
Participatory design in education materials in a health care context
Written patient education material, for example, discharge-information is commonly used in hospital settings. Despite following guidelines on how to best present text and using patients as consultants, improvements can still be made from a patient’s perspective. Here, we describe the process of developing patient education material using a participatory design methodology, with patients, clinicians, researchers and designers working as co-designe…
Providing Palliative Care in a Swedish Support Home for People Who Are Homeless
Despite high frequencies of multiple, life-limiting conditions relating to palliative care needs, people who are homeless are one of the most underserved and rarely encountered groups in palliative care settings. Instead, they often die in care places where palliative competence is not available. In this qualitative single-case study, we explored the conditions and practices of palliative care from the perspective of staff at a Swedish support ho…
Enabling at-homeness for residents living in a nursing home
Challenges When Translating and Culturally Adapting a Measurement Instrument
There is evidence that low suitability and comprehensibility of printed education materials (PEMs) affects patients' and relatives' ability to read and comprehend information. However, few instruments measure the suitability of written information, and none exist in the Swedish language. The aim was to describe the translation and adaptation of the Suitability and Comprehensibility of Materials (SAM+CAM) instrument into the Swedish language and h…
Enabling At-Homeness for Older People With Life-Limiting Conditions
At-homeness, as an aspect of well-being, can be experienced despite living with life-limiting conditions and needs for a palliative approach to care. In nursing homes, older residents with life-limiting conditions face losses and changes which could influence their experience of at-homeness. The aim of this study was to explore how nursing staff enable at-homeness for residents with life-limiting conditions. Interpretive description was employed …
Variations in grief, anxiety, depression, and health among family caregivers before and after the death of a close person in the context of palliative home care
This article investigates longitudinal variations in grief, self-rated health, and symptoms of anxiety and depression among family caregivers in palliative care. Data were taken from a randomized psycho-educational intervention trial and were collected at four time-points; at baseline, upon completion, 2 months later, and 6 months after the patient's death. In total, 117 family caregivers completed all questionnaires. The participants' grief was …
Micro-Meso-Macro Practice Tensions in Using Patient-Reported Outcome and Experience Measures in Hospital Palliative Care
This article applies a micro-meso-macro analytical framework to understand clinicians' experiences and perspectives of using patient-reported outcome and experience measures (PROMs and PREMs) in routine hospital-based palliative care. We structure our discussion through qualitative analysis of a design and implementation project for using an electronic tablet-based tool among hospital-based palliative clinicians to assess patients' and their fami…
Knowledge translation resources to support the use of quality of life assessment tools for the care of older adults living at home and their family caregivers
Our study affirms the need to tailor KT resources on QOL assessment for different audiences. Our KT resources are available: www.healthyqol.com/older-adults
Centredness in health care
Healthcare Professionals’ Perspective on Palliative Care in Intensive Care Settings
There is a growing need to integrate palliative care into intensive care units and to develop appropriate knowledge translation strategies. However, multiple challenges persist in attempts to achieve this objective. In this study, we aimed to explore intensive care professionals' perspectives on providing palliative and end-of-life care within an intensive care context. We used an interpretive description approach and interviewed 36 intensive car…
Person-centeredness and person-centred care in practice
The International Journal of Integrated Care (IJIC) is an online, open-access, peer-reviewed scientific journal that publishes original articles in the field of integrated care on a continuous basis.IJIC has an Impact Factor of 5.120 (2020 JCR, received in June 2021)The IJIC 20th Anniversary Issue was published in 2021
Empirical Phenomenological Inquiry
Empirical phenomenological inquiry and analyses are of high relevance and applicability for nursing and health care. Phenomenology has clear roots in philosophy, which needs to be brought into an empirical phenomenological inquiry. However, all study of phenomena and experience does not qualify as phenomenological inquiry. The aim of this article is to provide guidance for how to relate different empirical phenomenological methodologies that are …
Adolescents' challenging and grief-filled transitions when living with a parent with ALS
The unbalanced life situation may hinder the adolescents' identity formation and emancipation, which are developmentally important for managing a healthy and independent adulthood. The results emphasize the importance of early targeted support to reach this vulnerable group in order to secure their health
Navigating Complexity
Through discourse analysis of focus groups, this study investigates how palliative care professionals in Sweden engage with “spiritual care,” “religion” and “spirituality.” Our results reveal a common assumption that religion is “visible,” but at the same time private. Furthermore, we observed a secular and nonreligious positioning, marked by frequent "us versus them" rhetoric, especially in discussions about truth telling. The findings illustrat…
Transformed Parenthood in the Face of ALS
When a parent is diagnosed with a progressive, fatal neurodegenerative disease, such as amyotrophic lateral sclerosis (ALS), it can have major effects on the family's health. Parenthood itself may also be affected, potentially fueling an urgent need for support from healthcare. Research focusing on this group of parents is nevertheless limited. The aim of this study was to illuminate the meaning of parenthood when a parent has ALS, from the persp…
Psychology (23 works) · Medicine (19 works) · Health care (17 works) · Sociology (17 works) · Nursing (14 works) · Palliative Care and End-of-Life Issues (13 works) · Palliative care (11 works) · Qualitative research (11 works) · Computer Science (10 works) · Psychotherapist (8 works)