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Charmaine D Royal

Biographic Data

ID106522
NAMECharmaine D Royal
GIVEN NAMESCharmaine D
FAMILY NAMERoyal
SIGNATUREROYAL C D
AFFILIATIONSDuke University
VERIFIEDNo
TOTAL WORKS6
TOTAL CITATIONS25
AUTHOR COUNT6
EDITOR COUNT0
FIRST PUBLICATION YEAR2011
LATEST PUBLICATION YEAR2026
H-INDEX3
  • Patient, parent and provider perspectives on sickle cell disease genetics research in Jamaica

    Open Access•Krystin Jones, Karen A Stewart et al.•ARTICLE•PLOS Global Public Health•2026

    Advances in genetics and genomics research are revolutionizing the way we understand sickle cell disease (SCD) and approach its treatment and management. Much of this research has been conducted in high-income countries and so much of the available data is skewed towards these populations. Efforts are now being made to facilitate this research in low-and-middle-income countries (LMICs) through capacity building and strengthening. These efforts mu…

  • Genomics and Health Data Governance in Africa: Democratize the Use of Big Data and Popularize Public Engagement

    Open Access•Nchangwi Syntia Munung, Charmaine D Royal et al.•ARTICLE•The Hastings Center Report•2024

    Effectively addressing ethical issues in precision medicine research in Africa requires a holistic social contract that integrates biomedical knowledge with local cultural values and Indigenous knowledge systems. Drawing on African epistemologies such as ubuntu and ujamaa and on our collective experiences in genomics and big data research for sickle cell disease, hearing impairment, and fragile X syndrome and the project Public Understanding of B…

  • Anthropologists' views on race, ancestry, and genetics

    Open Access•Jennifer K Wagner, Joon‐ho Yu et al.•ARTICLE•American Journal of Physical…•2017•Cited by: 9•References: 10

    Controversies over race conceptualizations have been ongoing for centuries and have been shaped, in part, by anthropologists. OBJECTIVE: To assess anthropologists' views on race, genetics, and ancestry. METHODS: In 2012 a broad national survey of anthropologists examined prevailing views on race, ancestry, and genetics. RESULTS: Results demonstrate consensus that there are no human biological races and recognition that race exists as lived social…

  • A Qualitative Analysis of How Anthropologists Interpret the Race Construct

    Open Access•Jayne O Ifekwunigwe, Jennifer K Wagner et al.•ARTICLE•American Anthropologist•2017•Cited by: 13•References: 92

    This article assesses anthropological thinking about the race concept and its applications. Drawn from a broader national survey of geneticists' and anthropologists' views on race, in this analysis, we provide a qualitative account of anthropologists' perspectives. We delve deeper than simply asserting that "race is a social construct." Instead, we explore the differential ways in which anthropologists describe and interpret how race is construct…

  • A global reference for human genetic variation

    Open Access•Corresponding authors, Adam Auton et al.•ARTICLE•Nature•2015

    The 1000 Genomes Project set out to provide a comprehensive description of common human genetic variation by applying whole-genome sequencing to a diverse set of individuals from multiple populations. Here we report completion of the project, having reconstructed the genomes of 2,504 individuals from 26 populations using a combination of low-coverage whole-genome sequencing, deep exome sequencing, and dense microarray genotyping. We characterized…

  • Living with sickle cell disease: Traversing ‘race’ and identity

    Charmaine D Royal, Claudia Royal et al.•ARTICLE•Ethnicity and Health•2011•Cited by: 3•References: 10

    This study illustrates the complexity of the interplay between 'racial' identity beliefs and patients' experiences with SCD, as well as the role of 'race' in these experiences. Implications of the findings are discussed

  • A Qualitative Analysis of How Anthropologists Interpret the Race Construct

    Open Access•Jayne O Ifekwunigwe, Jennifer K Wagner et al.•ARTICLE•American Anthropologist•2017•Cited by: 13•References: 92

    This article assesses anthropological thinking about the race concept and its applications. Drawn from a broader national survey of geneticists' and anthropologists' views on race, in this analysis, we provide a qualitative account of anthropologists' perspectives. We delve deeper than simply asserting that "race is a social construct." Instead, we explore the differential ways in which anthropologists describe and interpret how race is construct…

  • Anthropologists' views on race, ancestry, and genetics

    Open Access•Jennifer K Wagner, Joon‐ho Yu et al.•ARTICLE•American Journal of Physical…•2017•Cited by: 9•References: 10

    Controversies over race conceptualizations have been ongoing for centuries and have been shaped, in part, by anthropologists. OBJECTIVE: To assess anthropologists' views on race, genetics, and ancestry. METHODS: In 2012 a broad national survey of anthropologists examined prevailing views on race, ancestry, and genetics. RESULTS: Results demonstrate consensus that there are no human biological races and recognition that race exists as lived social…

  • Living with sickle cell disease: Traversing ‘race’ and identity

    Charmaine D Royal, Claudia Royal et al.•ARTICLE•Ethnicity and Health•2011•Cited by: 3•References: 10

    This study illustrates the complexity of the interplay between 'racial' identity beliefs and patients' experiences with SCD, as well as the role of 'race' in these experiences. Implications of the findings are discussed

  • Living with sickle cell disease: Traversing ‘race’ and identity

    Charmaine D Royal, Claudia Royal et al.•ARTICLE•Ethnicity and Health•2011•Cited by: 3•References: 10

    This study illustrates the complexity of the interplay between 'racial' identity beliefs and patients' experiences with SCD, as well as the role of 'race' in these experiences. Implications of the findings are discussed

  • A global reference for human genetic variation

    Open Access•Corresponding authors, Adam Auton et al.•ARTICLE•Nature•2015

    The 1000 Genomes Project set out to provide a comprehensive description of common human genetic variation by applying whole-genome sequencing to a diverse set of individuals from multiple populations. Here we report completion of the project, having reconstructed the genomes of 2,504 individuals from 26 populations using a combination of low-coverage whole-genome sequencing, deep exome sequencing, and dense microarray genotyping. We characterized…

  • Anthropologists' views on race, ancestry, and genetics

    Open Access•Jennifer K Wagner, Joon‐ho Yu et al.•ARTICLE•American Journal of Physical…•2017•Cited by: 9•References: 10

    Controversies over race conceptualizations have been ongoing for centuries and have been shaped, in part, by anthropologists. OBJECTIVE: To assess anthropologists' views on race, genetics, and ancestry. METHODS: In 2012 a broad national survey of anthropologists examined prevailing views on race, ancestry, and genetics. RESULTS: Results demonstrate consensus that there are no human biological races and recognition that race exists as lived social…

  • A Qualitative Analysis of How Anthropologists Interpret the Race Construct

    Open Access•Jayne O Ifekwunigwe, Jennifer K Wagner et al.•ARTICLE•American Anthropologist•2017•Cited by: 13•References: 92

    This article assesses anthropological thinking about the race concept and its applications. Drawn from a broader national survey of geneticists' and anthropologists' views on race, in this analysis, we provide a qualitative account of anthropologists' perspectives. We delve deeper than simply asserting that "race is a social construct." Instead, we explore the differential ways in which anthropologists describe and interpret how race is construct…

  • Genomics and Health Data Governance in Africa: Democratize the Use of Big Data and Popularize Public Engagement

    Open Access•Nchangwi Syntia Munung, Charmaine D Royal et al.•ARTICLE•The Hastings Center Report•2024

    Effectively addressing ethical issues in precision medicine research in Africa requires a holistic social contract that integrates biomedical knowledge with local cultural values and Indigenous knowledge systems. Drawing on African epistemologies such as ubuntu and ujamaa and on our collective experiences in genomics and big data research for sickle cell disease, hearing impairment, and fragile X syndrome and the project Public Understanding of B…

  • Patient, parent and provider perspectives on sickle cell disease genetics research in Jamaica

    Open Access•Krystin Jones, Karen A Stewart et al.•ARTICLE•PLOS Global Public Health•2026

    Advances in genetics and genomics research are revolutionizing the way we understand sickle cell disease (SCD) and approach its treatment and management. Much of this research has been conducted in high-income countries and so much of the available data is skewed towards these populations. Efforts are now being made to facilitate this research in low-and-middle-income countries (LMICs) through capacity building and strengthening. These efforts mu…

Sociology (4 works) · Gender Studies (3 works) · Political science (3 works) · Race, Genetics, and Society (3 works) · Demography (2 works) · Disease (2 works) · Ethics in Clinical Research (2 works) · Gender Studies (2 works) · Genomics and Rare Diseases (2 works) · Hemoglobinopathies and Related Disorders (2 works)

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