Carol Tishelman
Biographic Data
| ID | 107976 |
|---|---|
| NAME | Carol Tishelman |
| GIVEN NAMES | Carol |
| FAMILY NAME | Tishelman |
| SIGNATURE | TISHELMAN C |
| AFFILIATIONS | Karolinska Institutet |
| ORCID | 0000-0003-4161-0342 |
| VERIFIED | Yes |
| TOTAL WORKS | 35 |
| TOTAL CITATIONS | 87 |
| AUTHOR COUNT | 35 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 1991 |
| LATEST PUBLICATION YEAR | 2025 |
| H-INDEX | 6 |
Care, dying, death, and loss in children’s drawings from the Covid-19 pandemic in Sweden
Most studies gather data on children's Covid-19 experiences from proxy adults rather than from children. We explore depictions of end-of-life issues in drawings created by children in Sweden about their experiences during the Covid-19 pandemic, generated in response to an open invitation to schools, teachers, culture centers, etc. from a public archive of children's art. A transdisciplinary team inductively analyzed 172 drawings containing images…
Measurement invariance of the Death Literacy Index across Flemish Belgium, The Netherlands, and Sweden
Death literacy is a construct conceptualizing experience-based knowledge and skills for end-of-life care, which is operationalized as a six-factor model in the 29-item Death Literacy Index (DLI). The DLI has gained international interest, but its validity across countries is yet unknown. This cross-sectional study therefore assessed its measurement invariance (psychometric equivalence), across Flemish Belgium, the Netherlands, and Sweden. Transla…
Dystopia and Hope: The Interrelation of Pandemic and Ecological Discourses in Drawings by Children in Sweden During the First Wave of the Covid ‐19 Pandemic
Research on young people's perspectives on COVID‐19 remains limited. This qualitative serial picture analysis of Swedish children's drawings, predominately from spring 2020 ( N = 169), aimed to explore their views and meaning‐making processes. The focus was on the interconnections of two global crises in the drawings–pandemic and environmental crisis–revealing several links, such as negative emotions and dystopian expectations, as well as a lack …
The cultural adaptation of the go wish card game for use in Flanders, Belgium: A public health tool to identify and discuss end-of-life preferences
By making community engagement a cornerstone of our adaption process, we developed a card set that potential end-users considered a supportive public health tool for reflecting and discussing end-of-life values and preferences. The described process is particularly valuable for culturally adapt interventions, especially given that community engagement in adapting interventions is essential to creating grounded interventions
The call-bell in residential care homes: Experiences of residents and staff
Investigation of the call-bell system provides an empirical example of how complex relationships among stakeholders are played out in concrete situations. Tensions between different logics of care, and between clock and embodied time become evident
A Qualitative Serial Analysis of Drawings by Thirteen-to Fifteen-Year-Old Adolescents in Sweden About the First Wave of the Covid-19 Pandemic
In this article, we explore the perspectives of 13-15-year-olds living in Sweden about the first wave of the Covid-19 pandemic, through inductive analysis of 187 of their drawings. Through reconstructive serial picture analysis, three types of meaning were derived: (1) A new normal in dystopian scenery points to the disruption of daily life and development of new praxis and meaning in a context of threat and restriction; (2) Disrupted relationshi…
Continuums of Change in a Competence-Building Initiative Addressing End-of-Life Communication in Swedish Elder Care
Conversations about values for the end-of-life (EoL) between residents, relatives, and staff may allow EoL preparation and enable value-concordant care, but remain rare in residential care home (RCH) practice. In this article, longitudinal qualitative analysis was used to explore changes in staff discussions about EoL conversations throughout workshop series based on reflection and knowledge exchange to promote EoL communication in RCHs. We ident…
Constructing Good Nursing Practice for Medical Assistance in Dying in Canada: An Interpretive Descriptive Study
Nurses play a central role in Medical Assistance in Dying (MAiD) in Canada. However, we know little about nurses' experiences with this new end-of-life option. The purpose of this study was to explore how nurses construct good nursing practice in the context of MAiD. This was a qualitative interview study using Interpretive Description. Fifty-nine nurses participated in semi-structured telephone interviews. Data were analyzed inductively. The fin…
The past is present: Death systems among the Indigenous Sámi in Northern Scandinavia today
Despite growing interest in Indigenous health, the lack of end-of-life (EOL) research about the Sámi people led us to explore experience-based knowledge about EoL issues among the Sámi. We aim here to describe Sámi death systems and the extent to which Kastenbaum’s conceptualisation of death systems is appropriate to Sámi culture. Transcribed conversational interviews with 15 individuals, chosen for their varied experiences with EoL issues among …
Using narrative analysis to explore traditional Sámi knowledge through storytelling about End-of-Life
In this narrative study, we investigate salient Sámi-specific aspects of a death system, inspired by Kastenbaum's model. We explore traditional Sámi knowledge derived through storytelling in go-along group discussions to gravesites at the tree-line with cultural and historical significance for the Indigenous Sámi peoples. Analysis illustrates how important material and immaterial cultural values are transferred across generations through their co…
Death, loss and community—Perspectives from children, their parents and older adults on intergenerational community‐based arts initiatives in Sweden
Studio DöBra is a community-based initiative in which children (9 y/o) and older adults (mostly 80+) engaged with topics related to dying, death and loss through shared arts activities (e.g. collage, sculpture, games). In an ageing society, Sweden's end-of-life (EoL) care is increasingly professionalised and specialised, but there is little community involvement. One goal of Studio DöBra was therefore to support community engagement with EoL-rela…
Navigating power dynamics in engaging communities in end-of-life issues – Lessons learned from developing community-based intergenerational arts initiatives about death and loss
Lack of community engagement in end-of-life issues and age-segregation in Swedish society motivated us to develop Studio DöBra, a community-based intergenerational arts initiative to support community engagement in end-of-life issues and develop intergenerational meeting places. Representatives from several community organizations formed a project group with first author MK, to develop Studio DöBra. Based on analysis of exploratory interviews wit…
Developing and using a structured, conversation-based intervention for clarifying values and preferences for end-of-life in the advance care planning-naïve Swedish context: Action research within the …
Sweden has no systematic advance care planning (ACP), nor legal recognition of end-of-life proxies. We describe our experiences and reflections from a participatory action research process, aiming at developing and initially using a conversation-based, structured ACP approach among community-dwelling, older adults in Sweden. Eco-mapping and DöBra cards were used with 65 people to catalyze discussions on preferences for the end-of-life. We found g…
Not just things: The Roles of Objects at the End of Life
While the study of objects in care contexts is an emerging research field, it is largely overlooked in end of life (EoL) care. In this study, we empirically and inductively explore the roles of objects at the EoL from the perspective of bereaved family members. Open individual interviews were conducted with 25 family members recruited from palliative in-patient and homecare units, as well as residential care facilities. After verbatim transcripti…
Beyond the visual and verbal: Using participant-produced photographs in research on the surroundings for care at the end-of-life
Awareness of risk factors for cancer: A comparative study of Sweden and Denmark
This study supports findings from other European studies that generally demonstrate modest public awareness of many established cancer risk factors. Efforts should be made to improve awareness of the cancer risk factors HPV-infection, low fruit and vegetable intake and alcohol intake, which showed particularly low awareness in both countries. Previous studies indicate that repeated, broad campaigns are successful, and suggest that a multimedia ap…
Using a retrospective pretest instead of a conventional pretest is replacing biases: A qualitative study of cognitive processes underlying responses to thentest items
Both assumptions underlying the thentest design appear not to be supported by the patients' cognitive processes. Replacing the conventional pretest-posttest design with the thentest design may simply be replacing one set of biases with another
Room for Death - International museum-visitors' preferences regarding the end of their life
Reflections on Using Biographical Approaches in End-of-Life Care: Dignity Therapy as Example
The therapeutic potential of nonpharmacologic interventions using biographical approaches at the end of life (EoL) is being increasingly recognized, but less attention is paid to processes impeding realization of this potential. In this article, Swedish and Australian researchers reflect on and problematize experiences using one biographical approach, dignity therapy (DT), in EoL care in Sweden. We use this as an example, focusing on critical exa…
Nurse staffing and education and hospital mortality in nine European countries: A retrospective observational study
Nurses’ Shift Length and Overtime Working in 12 European Countries: The Association With Perceived Quality of Care and Patient Safety
BACKGROUND: Despite concerns as to whether nurses can perform reliably and effectively when working longer shifts, a pattern of two 12- to 13-hour shifts per day is becoming common in many hospitals to reduce shift to shift handovers, staffing overlap, and hence costs. OBJECTIVES: To describe shift patterns of European nurses and investigate whether shift length and working beyond contracted hours (overtime) is associated with nurse-reported care…
Patient safety, satisfaction, and quality of hospital care: Cross sectional surveys of nurses and patients in 12 countries in Europe and the United States
OBJECTIVE: To determine whether hospitals with a good organisation of care (such as improved nurse staffing and work environments) can affect patient care and nurse workforce stability in European countries. DESIGN: Cross sectional surveys of patients and nurses. SETTING: Nurses were surveyed in general acute care hospitals (488 in 12 European countries; 617 in the United States); patients were surveyed in 210 European hospitals and 430 US hospit…
Community patterns of stigma towards persons living with HIV: A population-based latent class analysis from rural Vietnam
Stigma towards PLHIV is high generally, and very high in some sub-groups, in this community setting. Future stigma prevention efforts could be enhanced by analyzing community stigma sub-groups and tailoring intervention messages to community patterns of stigma
From 'silent' to 'heard: Professional mediation, manipulation and women's experiences of their body after an abnormal Pap smear
Spontaneous reports of most distressing concerns in patients with inoperable lung cancer: At present, in retrospect and in comparison with EORTC-QLQ-C30+LC13
Women's experiences of cervical cellular changes: An Unintentional Transition From Health to Liminality
Cervical cancer screening is a preventive intervention directed towards women to both detect cervical cancer and identify those at risk for developing this disease. It has been argued that participation in screening programmes and early detection situations may lead to new kinds of sickness experiences. This article is based on qualitative phenomenological hermeneutical analysis of interviews with women who have received abnormal Pap smear test r…
Not just things: The Roles of Objects at the End of Life
While the study of objects in care contexts is an emerging research field, it is largely overlooked in end of life (EoL) care. In this study, we empirically and inductively explore the roles of objects at the EoL from the perspective of bereaved family members. Open individual interviews were conducted with 25 family members recruited from palliative in-patient and homecare units, as well as residential care facilities. After verbatim transcripti…
Support in old age in the changing society of Bangladesh
The assumption that social and economic transitions in a country pose a threat to the provision of support to older people is questioned in this study. The study investigates the availability and sources of such material, practical and emotional support in urban and rural areas of Bangladesh. The support provided by older people towards household functioning is also explored. It was found from an interview survey of 701 individuals aged 60 years …
The Diagnostic Process and the Boundaries of Normality
This article illustrates a group of cancer patients' descriptions and explanations of their experiences of health care encounters involving professional and lay processes of diagnosis related to definitions of normality. An interdisciplinary approach, representing nursing and medical anthropology, has been used in attempting to better understand data derived from semistructured interviews with 46 persons diagnosed with cancer in the greater Stock…
Using narrative analysis to understand the combined use of complementary therapies and bio-medically oriented health care
Self-reported symptom distress in cancer patients: Reflections of disease, illness or sickness
A Qualitative Serial Analysis of Drawings by Thirteen-to Fifteen-Year-Old Adolescents in Sweden About the First Wave of the Covid-19 Pandemic
In this article, we explore the perspectives of 13-15-year-olds living in Sweden about the first wave of the Covid-19 pandemic, through inductive analysis of 187 of their drawings. Through reconstructive serial picture analysis, three types of meaning were derived: (1) A new normal in dystopian scenery points to the disruption of daily life and development of new praxis and meaning in a context of threat and restriction; (2) Disrupted relationshi…
Beyond the visual and verbal: Using participant-produced photographs in research on the surroundings for care at the end-of-life
From 'silent' to 'heard: Professional mediation, manipulation and women's experiences of their body after an abnormal Pap smear
The 'hows', 'whos', and 'whens' of screening: Gynaecologists' perspectives on cervical cancer screening in urban Sweden
Aging trends -- Making an invisible population visible: The elderly in Bangladesh
Developing and using a structured, conversation-based intervention for clarifying values and preferences for end-of-life in the advance care planning-naïve Swedish context: Action research within the …
Sweden has no systematic advance care planning (ACP), nor legal recognition of end-of-life proxies. We describe our experiences and reflections from a participatory action research process, aiming at developing and initially using a conversation-based, structured ACP approach among community-dwelling, older adults in Sweden. Eco-mapping and DöBra cards were used with 65 people to catalyze discussions on preferences for the end-of-life. We found g…
Room for Death - International museum-visitors' preferences regarding the end of their life
Reflections on Using Biographical Approaches in End-of-Life Care: Dignity Therapy as Example
The therapeutic potential of nonpharmacologic interventions using biographical approaches at the end of life (EoL) is being increasingly recognized, but less attention is paid to processes impeding realization of this potential. In this article, Swedish and Australian researchers reflect on and problematize experiences using one biographical approach, dignity therapy (DT), in EoL care in Sweden. We use this as an example, focusing on critical exa…
Using narrative analysis to explore traditional Sámi knowledge through storytelling about End-of-Life
In this narrative study, we investigate salient Sámi-specific aspects of a death system, inspired by Kastenbaum's model. We explore traditional Sámi knowledge derived through storytelling in go-along group discussions to gravesites at the tree-line with cultural and historical significance for the Indigenous Sámi peoples. Analysis illustrates how important material and immaterial cultural values are transferred across generations through their co…
Navigating power dynamics in engaging communities in end-of-life issues – Lessons learned from developing community-based intergenerational arts initiatives about death and loss
Lack of community engagement in end-of-life issues and age-segregation in Swedish society motivated us to develop Studio DöBra, a community-based intergenerational arts initiative to support community engagement in end-of-life issues and develop intergenerational meeting places. Representatives from several community organizations formed a project group with first author MK, to develop Studio DöBra. Based on analysis of exploratory interviews wit…
Influence of Sociocultural and Structural Factors on Functional Ability: The Case of Elderly People in Bangladesh
The underlying assumption of ADL and IADL instruments that an individual will perform an activity given physical or cognitive ability is questioned. It is suggested that sociocultural and structural factors are strong determinants of task performance
Death, loss and community—Perspectives from children, their parents and older adults on intergenerational community‐based arts initiatives in Sweden
Studio DöBra is a community-based initiative in which children (9 y/o) and older adults (mostly 80+) engaged with topics related to dying, death and loss through shared arts activities (e.g. collage, sculpture, games). In an ageing society, Sweden's end-of-life (EoL) care is increasingly professionalised and specialised, but there is little community involvement. One goal of Studio DöBra was therefore to support community engagement with EoL-rela…
Self-reported symptom distress in cancer patients: Reflections of disease, illness or sickness
Aging trends -- Making an invisible population visible: The elderly in Bangladesh
The Diagnostic Process and the Boundaries of Normality
This article illustrates a group of cancer patients' descriptions and explanations of their experiences of health care encounters involving professional and lay processes of diagnosis related to definitions of normality. An interdisciplinary approach, representing nursing and medical anthropology, has been used in attempting to better understand data derived from semistructured interviews with 46 persons diagnosed with cancer in the greater Stock…
Research on Risk and Risk in Research: Theoretical and Practical Experiences from a Multidisciplinary Study on Cervical Cancer Screening in Urban Sweden
This article describes a qualitative research project on secondary cancer prevention that was conducted using a multidisciplinary team and that was inspired by perspectives from feminist research and fourth-generation evaluation. A screening program for cervical cancer was investigated from the perspective of different stakeholders through a series of substudies using a variety of qualitative approaches, in order to have a broad basis for conside…
Influence of Sociocultural and Structural Factors on Functional Ability: The Case of Elderly People in Bangladesh
The underlying assumption of ADL and IADL instruments that an individual will perform an activity given physical or cognitive ability is questioned. It is suggested that sociocultural and structural factors are strong determinants of task performance
Support in old age in the changing society of Bangladesh
The assumption that social and economic transitions in a country pose a threat to the provision of support to older people is questioned in this study. The study investigates the availability and sources of such material, practical and emotional support in urban and rural areas of Bangladesh. The support provided by older people towards household functioning is also explored. It was found from an interview survey of 701 individuals aged 60 years …
The Encounters That Rupture the Myth: Contradictions in Midwives' Descriptions and Explanations of Circumcised Women Immigrants' Sexuality
The purpose of the study was to analyze how Swedish midwives (n = 26) discuss sexuality in circumcised African women patients. In focus groups and interviews, discussions concentrated on care provided to circumcised women, training received for this care, and midwives' perceptions of female circumcision. An analytic expansion was performed for discussions pertaining to sexuality and gender roles. Results from the analysis show the following: (1) …
The 'hows', 'whos', and 'whens' of screening: Gynaecologists' perspectives on cervical cancer screening in urban Sweden
Women's experiences of cervical cellular changes: An Unintentional Transition From Health to Liminality
Cervical cancer screening is a preventive intervention directed towards women to both detect cervical cancer and identify those at risk for developing this disease. It has been argued that participation in screening programmes and early detection situations may lead to new kinds of sickness experiences. This article is based on qualitative phenomenological hermeneutical analysis of interviews with women who have received abnormal Pap smear test r…
Spontaneous reports of most distressing concerns in patients with inoperable lung cancer: At present, in retrospect and in comparison with EORTC-QLQ-C30+LC13
Using narrative analysis to understand the combined use of complementary therapies and bio-medically oriented health care
From 'silent' to 'heard: Professional mediation, manipulation and women's experiences of their body after an abnormal Pap smear
Community patterns of stigma towards persons living with HIV: A population-based latent class analysis from rural Vietnam
Stigma towards PLHIV is high generally, and very high in some sub-groups, in this community setting. Future stigma prevention efforts could be enhanced by analyzing community stigma sub-groups and tailoring intervention messages to community patterns of stigma
Patient safety, satisfaction, and quality of hospital care: Cross sectional surveys of nurses and patients in 12 countries in Europe and the United States
OBJECTIVE: To determine whether hospitals with a good organisation of care (such as improved nurse staffing and work environments) can affect patient care and nurse workforce stability in European countries. DESIGN: Cross sectional surveys of patients and nurses. SETTING: Nurses were surveyed in general acute care hospitals (488 in 12 European countries; 617 in the United States); patients were surveyed in 210 European hospitals and 430 US hospit…
Nurse staffing and education and hospital mortality in nine European countries: A retrospective observational study
Nurses’ Shift Length and Overtime Working in 12 European Countries: The Association With Perceived Quality of Care and Patient Safety
BACKGROUND: Despite concerns as to whether nurses can perform reliably and effectively when working longer shifts, a pattern of two 12- to 13-hour shifts per day is becoming common in many hospitals to reduce shift to shift handovers, staffing overlap, and hence costs. OBJECTIVES: To describe shift patterns of European nurses and investigate whether shift length and working beyond contracted hours (overtime) is associated with nurse-reported care…
Awareness of risk factors for cancer: A comparative study of Sweden and Denmark
This study supports findings from other European studies that generally demonstrate modest public awareness of many established cancer risk factors. Efforts should be made to improve awareness of the cancer risk factors HPV-infection, low fruit and vegetable intake and alcohol intake, which showed particularly low awareness in both countries. Previous studies indicate that repeated, broad campaigns are successful, and suggest that a multimedia ap…
Using a retrospective pretest instead of a conventional pretest is replacing biases: A qualitative study of cognitive processes underlying responses to thentest items
Both assumptions underlying the thentest design appear not to be supported by the patients' cognitive processes. Replacing the conventional pretest-posttest design with the thentest design may simply be replacing one set of biases with another
Room for Death - International museum-visitors' preferences regarding the end of their life
Reflections on Using Biographical Approaches in End-of-Life Care: Dignity Therapy as Example
The therapeutic potential of nonpharmacologic interventions using biographical approaches at the end of life (EoL) is being increasingly recognized, but less attention is paid to processes impeding realization of this potential. In this article, Swedish and Australian researchers reflect on and problematize experiences using one biographical approach, dignity therapy (DT), in EoL care in Sweden. We use this as an example, focusing on critical exa…
Beyond the visual and verbal: Using participant-produced photographs in research on the surroundings for care at the end-of-life
Not just things: The Roles of Objects at the End of Life
While the study of objects in care contexts is an emerging research field, it is largely overlooked in end of life (EoL) care. In this study, we empirically and inductively explore the roles of objects at the EoL from the perspective of bereaved family members. Open individual interviews were conducted with 25 family members recruited from palliative in-patient and homecare units, as well as residential care facilities. After verbatim transcripti…
Navigating power dynamics in engaging communities in end-of-life issues – Lessons learned from developing community-based intergenerational arts initiatives about death and loss
Lack of community engagement in end-of-life issues and age-segregation in Swedish society motivated us to develop Studio DöBra, a community-based intergenerational arts initiative to support community engagement in end-of-life issues and develop intergenerational meeting places. Representatives from several community organizations formed a project group with first author MK, to develop Studio DöBra. Based on analysis of exploratory interviews wit…
Developing and using a structured, conversation-based intervention for clarifying values and preferences for end-of-life in the advance care planning-naïve Swedish context: Action research within the …
Sweden has no systematic advance care planning (ACP), nor legal recognition of end-of-life proxies. We describe our experiences and reflections from a participatory action research process, aiming at developing and initially using a conversation-based, structured ACP approach among community-dwelling, older adults in Sweden. Eco-mapping and DöBra cards were used with 65 people to catalyze discussions on preferences for the end-of-life. We found g…
Constructing Good Nursing Practice for Medical Assistance in Dying in Canada: An Interpretive Descriptive Study
Nurses play a central role in Medical Assistance in Dying (MAiD) in Canada. However, we know little about nurses' experiences with this new end-of-life option. The purpose of this study was to explore how nurses construct good nursing practice in the context of MAiD. This was a qualitative interview study using Interpretive Description. Fifty-nine nurses participated in semi-structured telephone interviews. Data were analyzed inductively. The fin…
Medicine (30 works) · Sociology (24 works) · Psychology (20 works) · Nursing (17 works) · Grief, Bereavement, and Mental Health (12 works) · Palliative Care and End-of-Life Issues (11 works) · Political science (10 works) · Social science (10 works) · Social Psychology (9 works) · Public health (8 works)