Myra Bluebond‐langner
Biographic Data
| ID | 110457 |
|---|---|
| NAME | Myra Bluebond‐langner |
| GIVEN NAMES | Myra |
| FAMILY NAME | Bluebond‐langner |
| SIGNATURE | LANGNER M B |
| AFFILIATIONS | Rutgers, the State University of New Jersey |
| ORCID | 0000-0001-9281-5431 |
| VERIFIED | Yes |
| TOTAL WORKS | 27 |
| TOTAL CITATIONS | 149 |
| AUTHOR COUNT | 27 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 1977 |
| LATEST PUBLICATION YEAR | 2022 |
| H-INDEX | 5 |
Attending to child agency in paediatric palliative care consultations
Children's agency in their own lives is increasingly recognised as important, including within paediatric health care. The issue of acknowledging child agency is complex in the context of paediatric palliative care, where children have serious and complex conditions that often impact their ability to verbally communicate with others. This study explores how clinicians and parents/guardians direct talk towards a child patient when they are present…
In the Shadow of Illness
The impact of prenatal counselling on mothers of surviving children with hypoplastic left heart syndrome
OBJECTIVE: To explore the role of antenatal counselling in how parents make treatment decisions following an antenatal diagnosis of Hypoplastic Left Heart Syndrome (HLHS). BACKGROUND: Antenatal counselling is a critical part of patient management following a diagnosis of fetal congenital heart disease; however, there is a very limited evidence base examining how parents actually experience antenatal counselling and make decisions in this context.…
Children's and Parents' Conceptualization of Quality of Life in Children With Brain Tumors
The concept of quality of life (QoL) is used in consultations to plan the care and treatment of children and young people (CYP) with brain tumors (BTs). The way in which CYP, their parents, and their health care professionals (HCP) each understand the term has not been adequately investigated. This study aimed to review the current qualitative research on CYP, parents' and clinicians' concepts of QoL for CYP with BTs using meta-ethnography. Six s…
Studying Children's Experiences in Interactions With Clinicians
Increased emphasis on the child's voice and point of view in care and treatment has led to an expansion in the development of methods to access and identify their perspectives. Drawing on our experiences in a study of children with leukemia in hospital, this article explains the challenges and opportunities that arise in the use of five commonly used methods in a study of hospitalized children's experiences with health care professionals, includi…
Keeping all options open
BACKGROUND: Early engagement in advance care planning (ACP) is seen as fundamental for ensuring the highest standard of care for children and young people with a life-limiting condition (LLC). However, most families have little knowledge or experience of ACP. OBJECTIVE: To investigate how parents of children and young people with LLCs approach and experience ACP. METHODS: Open-ended, semi-structured interviews were conducted with parents of 18 ch…
De Third Mesa à Bloomsbury
L'anthropologue Myra Bluebond-Langner est une chef de file et pionnière dans l'étude d'enfants qui vivent avec des maladies graves limitant l'espérance de vie. En retraçant son parcours intellectuel et de recherche, elle souligne combien l'ethnographie et les approches théoriques anthropologiques sont fécondes dans de nombreux champs d'enquête, dont le domaine émergeant des soins palliatifs pédiatriques. Voulant cerner les processus de socialisat…
I'm an Anthropologist
Challenges and Opportunities in the Anthropology of Childhoods
Anthropological attention to children and childhoods has had an uneven but lengthy history, both within the discipline and in interdisciplinary endeavors. Recently, there has been a resurgence of interest in the study of children, with work often carried out under the rubrics of "Childhood Studies" or the "Anthropology of Childhoods." In these frameworks, children are at once developing beings, in possession of agency, and to varying degrees vuln…
Anthropological and Sociological Perspectives on the Study of Children
Living with Cystic Fibrosis
While anthropologists have long been interested in how adults perceive illness and death and the role these misfortunes play in social relationships, little attention has been given to the effects of illness and death on children's perceptions and social relationships. In 1985 I began a two-year study of families of children with cystic fibrosis, a genetic disease marked by slow pulmonary deterioration and a fatal outcome. I was particularly inte…
Worlds of dying children and their well siblings
This paper examines the place of illness and death in the lives of healthy children and their ill siblings at the end stages of life. The behaviors that the children exhibit provide important insights into the children's views of their lives as well as their views of death
Society for Medical Anthropology
Society for Medical Anthropology
Society for Medical Anthropology
New Journal of the Society for Medical Anthropology Debuts
Society for Medical Anthropology
Society For Medical Anthropology
Society for Medical Anthropology
Society for Medical Anthropology
Society For Medical Anthropology
Society for Medical Anthropology
Sma Business
Society for Medical Anthropology
Society for Medical Anthropology
Challenges and Opportunities in the Anthropology of Childhoods
Anthropological attention to children and childhoods has had an uneven but lengthy history, both within the discipline and in interdisciplinary endeavors. Recently, there has been a resurgence of interest in the study of children, with work often carried out under the rubrics of "Childhood Studies" or the "Anthropology of Childhoods." In these frameworks, children are at once developing beings, in possession of agency, and to varying degrees vuln…
Living with Cystic Fibrosis
While anthropologists have long been interested in how adults perceive illness and death and the role these misfortunes play in social relationships, little attention has been given to the effects of illness and death on children's perceptions and social relationships. In 1985 I began a two-year study of families of children with cystic fibrosis, a genetic disease marked by slow pulmonary deterioration and a fatal outcome. I was particularly inte…
Studying Children's Experiences in Interactions With Clinicians
Increased emphasis on the child's voice and point of view in care and treatment has led to an expansion in the development of methods to access and identify their perspectives. Drawing on our experiences in a study of children with leukemia in hospital, this article explains the challenges and opportunities that arise in the use of five commonly used methods in a study of hospitalized children's experiences with health care professionals, includi…
Attending to child agency in paediatric palliative care consultations
Children's agency in their own lives is increasingly recognised as important, including within paediatric health care. The issue of acknowledging child agency is complex in the context of paediatric palliative care, where children have serious and complex conditions that often impact their ability to verbally communicate with others. This study explores how clinicians and parents/guardians direct talk towards a child patient when they are present…
Sex, Incest, and Death
In this paper an attempt is made to show why initiation and/or puberty rites occur in so many societies and why they take the shape they do. To do this I have used concepts derived from social and physical anthropology and from psychoanalysis. The rites are seen as part of a general human concern with categorization and the attribution of power/danger to what is not classifiable. The particular problem lies in the metamorphosis from the sexual wo…
Worlds of dying children and their well siblings
This paper examines the place of illness and death in the lives of healthy children and their ill siblings at the end stages of life. The behaviors that the children exhibit provide important insights into the children's views of their lives as well as their views of death
I'm an Anthropologist
Sex, Incest, and Death
In this paper an attempt is made to show why initiation and/or puberty rites occur in so many societies and why they take the shape they do. To do this I have used concepts derived from social and physical anthropology and from psychoanalysis. The rites are seen as part of a general human concern with categorization and the attribution of power/danger to what is not classifiable. The particular problem lies in the metamorphosis from the sexual wo…
The Private Worlds of Dying Children
The death of a child, writes Myra Bluebond-Langner, poignantly underlines the impact of social and cultural factors on the way that we die and the way that we permit others to die. In a moving drama constructed from her observations of leukemic children, aged three to nine, in a hospital ward, she shows how the children come to know they are dying, how and why they attempt to conceal this knowledge from their parents and the medical staff, and ho…
Society for Medical Anthropology
Society for Medical Anthropology
Society for Medical Anthropology
Society For Medical Anthropology
Society for Medical Anthropology
Society for Medical Anthropology
Society For Medical Anthropology
Society for Medical Anthropology
Sma Business
Society for Medical Anthropology
Society for Medical Anthropology
Society for Medical Anthropology
New Journal of the Society for Medical Anthropology Debuts
Worlds of dying children and their well siblings
This paper examines the place of illness and death in the lives of healthy children and their ill siblings at the end stages of life. The behaviors that the children exhibit provide important insights into the children's views of their lives as well as their views of death
Living with Cystic Fibrosis
While anthropologists have long been interested in how adults perceive illness and death and the role these misfortunes play in social relationships, little attention has been given to the effects of illness and death on children's perceptions and social relationships. In 1985 I began a two-year study of families of children with cystic fibrosis, a genetic disease marked by slow pulmonary deterioration and a fatal outcome. I was particularly inte…
Anthropological and Sociological Perspectives on the Study of Children
Challenges and Opportunities in the Anthropology of Childhoods
Anthropological attention to children and childhoods has had an uneven but lengthy history, both within the discipline and in interdisciplinary endeavors. Recently, there has been a resurgence of interest in the study of children, with work often carried out under the rubrics of "Childhood Studies" or the "Anthropology of Childhoods." In these frameworks, children are at once developing beings, in possession of agency, and to varying degrees vuln…
I'm an Anthropologist
De Third Mesa à Bloomsbury
L'anthropologue Myra Bluebond-Langner est une chef de file et pionnière dans l'étude d'enfants qui vivent avec des maladies graves limitant l'espérance de vie. En retraçant son parcours intellectuel et de recherche, elle souligne combien l'ethnographie et les approches théoriques anthropologiques sont fécondes dans de nombreux champs d'enquête, dont le domaine émergeant des soins palliatifs pédiatriques. Voulant cerner les processus de socialisat…
Keeping all options open
BACKGROUND: Early engagement in advance care planning (ACP) is seen as fundamental for ensuring the highest standard of care for children and young people with a life-limiting condition (LLC). However, most families have little knowledge or experience of ACP. OBJECTIVE: To investigate how parents of children and young people with LLCs approach and experience ACP. METHODS: Open-ended, semi-structured interviews were conducted with parents of 18 ch…
Children's and Parents' Conceptualization of Quality of Life in Children With Brain Tumors
The concept of quality of life (QoL) is used in consultations to plan the care and treatment of children and young people (CYP) with brain tumors (BTs). The way in which CYP, their parents, and their health care professionals (HCP) each understand the term has not been adequately investigated. This study aimed to review the current qualitative research on CYP, parents' and clinicians' concepts of QoL for CYP with BTs using meta-ethnography. Six s…
Studying Children's Experiences in Interactions With Clinicians
Increased emphasis on the child's voice and point of view in care and treatment has led to an expansion in the development of methods to access and identify their perspectives. Drawing on our experiences in a study of children with leukemia in hospital, this article explains the challenges and opportunities that arise in the use of five commonly used methods in a study of hospitalized children's experiences with health care professionals, includi…
In the Shadow of Illness
Sociology (25 works) · Citation (12 works) · Computer Science (12 works) · Library science (12 works) · Psychology (11 works) · Medicine (9 works) · Developmental psychology (8 works) · Anthropology (6 works) · Children's Rights and Participation (5 works) · Ethics and Legal Issues in Pediatric Healthcare (5 works)