Sadie P Hutson
Biographic Data
| ID | 1159008 |
|---|---|
| NAME | Sadie P Hutson |
| GIVEN NAMES | Sadie P |
| FAMILY NAME | Hutson |
| SIGNATURE | HUTSON S P |
| AFFILIATIONS | University of Tennessee at Knoxville |
| ORCID | 0000-0003-3646-9946 |
| VERIFIED | Yes |
| TOTAL WORKS | 7 |
| TOTAL CITATIONS | 3 |
| AUTHOR COUNT | 7 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2008 |
| LATEST PUBLICATION YEAR | 2024 |
| H-INDEX | 1 |
A “rotating menu” of medical uncertainty for families affected by telomere biology disorders
Background: Medical uncertainty may cause distress and challenge medical decision-making for patients with rare diseases and their caregivers. Few studies have examined the experience and management of medical uncertainty in rare disease and the dynamics of multiple medical uncertainty sources, issues, and management strategies. Objective: We explored the experience and management of uncertainty in individuals with telomere biology disorders (TBD…
Hereditary Cancer Genetic Panel Testing
Cancer genetic testing (CGT) is a powerful diagnostic test that improves cancer prevention and early detection among individuals at high genetic risk of cancer. Since the completion of the mapping of the Human Genome Project, CGT has become increasingly available in the clinical setting. However, as gene discovery and sequencing technology improve, the impact of these advancements on patients is less understood. The use of multigene cancer gene p…
The use of haematopoietic stem cell transplantation in Fanconi anaemia patients
BACKGROUND: Fanconi anaemia (FA) is a rare genetic disorder associated with bone marrow failure (BMF), congenital anomalies and cancer susceptibility. Stem cell transplantation (SCT) offers a potential cure for BMF or leukaemia, but incurs substantial risks. Little is known about factors influencing SCT decision making. OBJECTIVE: The study objective was to explore factors influencing patients' with FA and family members' decision making about SC…
Exploring the Role of Digital Storytelling in Pediatric Oncology Patients' Perspectives Regarding Diagnosis
Story is a powerful tool in holistic nursing care. Narrative therapy, story circles, narrative-psychotherapy, and family therapy methodology have incorporated storytelling in a research setting. Childhood cancers isolate children from traditional childhood experiences. In recent years, survival rates for pediatric oncology patients have improved, opening up opportunities for research. The increase in life expectancy makes it necessary to investig…
Connecting Place to Disease and Gender
Drawing on critical feminist narrative inquiry, we explore illness narratives of women cancer survivors living in Southern Central Appalachia via a daylong story circle (n = 26) and individual interviews (n = 3). In our article, we argue that participants functioned as illness genealogists as a consequence of their central location in families, as well as their location in a place (Southern Central Appalachia) characterized by what we call “cohab…
Mothered, Mothering, and Motherizing in Illness Narratives
Informed by a mothering-disruption framework, our study examines the illness narratives of women cancer survivors living in Southern Central Appalachia. We collected the stories of twenty-nine women cancer survivors from northeast Tennessee and southwest Virginia using a multi-phasic qualitative design. Phase I consisted of women cancer survivors participating in a day-long story circle (n=26). Phase II consisted of women cancer survivors who wer…
BRCA mutation‐negative women from hereditary breast and ovarian cancer families
Background When women from families with a known BRCA1 or BRCA2 mutation test negative for the family mutation, it is assumed that they will transition their personal cancer risk perception from high to average risk. However, there are scant data regarding the experience of mutation‐negative women after genetic testing disclosure, particularly related to the shift of risk perception from assumed mutation‐positive to actual mutation‐negative. This…
Exploring the Role of Digital Storytelling in Pediatric Oncology Patients' Perspectives Regarding Diagnosis
Story is a powerful tool in holistic nursing care. Narrative therapy, story circles, narrative-psychotherapy, and family therapy methodology have incorporated storytelling in a research setting. Childhood cancers isolate children from traditional childhood experiences. In recent years, survival rates for pediatric oncology patients have improved, opening up opportunities for research. The increase in life expectancy makes it necessary to investig…
Connecting Place to Disease and Gender
Drawing on critical feminist narrative inquiry, we explore illness narratives of women cancer survivors living in Southern Central Appalachia via a daylong story circle (n = 26) and individual interviews (n = 3). In our article, we argue that participants functioned as illness genealogists as a consequence of their central location in families, as well as their location in a place (Southern Central Appalachia) characterized by what we call “cohab…
BRCA mutation‐negative women from hereditary breast and ovarian cancer families
Background When women from families with a known BRCA1 or BRCA2 mutation test negative for the family mutation, it is assumed that they will transition their personal cancer risk perception from high to average risk. However, there are scant data regarding the experience of mutation‐negative women after genetic testing disclosure, particularly related to the shift of risk perception from assumed mutation‐positive to actual mutation‐negative. This…
Mothered, Mothering, and Motherizing in Illness Narratives
Informed by a mothering-disruption framework, our study examines the illness narratives of women cancer survivors living in Southern Central Appalachia. We collected the stories of twenty-nine women cancer survivors from northeast Tennessee and southwest Virginia using a multi-phasic qualitative design. Phase I consisted of women cancer survivors participating in a day-long story circle (n=26). Phase II consisted of women cancer survivors who wer…
Connecting Place to Disease and Gender
Drawing on critical feminist narrative inquiry, we explore illness narratives of women cancer survivors living in Southern Central Appalachia via a daylong story circle (n = 26) and individual interviews (n = 3). In our article, we argue that participants functioned as illness genealogists as a consequence of their central location in families, as well as their location in a place (Southern Central Appalachia) characterized by what we call “cohab…
The use of haematopoietic stem cell transplantation in Fanconi anaemia patients
BACKGROUND: Fanconi anaemia (FA) is a rare genetic disorder associated with bone marrow failure (BMF), congenital anomalies and cancer susceptibility. Stem cell transplantation (SCT) offers a potential cure for BMF or leukaemia, but incurs substantial risks. Little is known about factors influencing SCT decision making. OBJECTIVE: The study objective was to explore factors influencing patients' with FA and family members' decision making about SC…
Exploring the Role of Digital Storytelling in Pediatric Oncology Patients' Perspectives Regarding Diagnosis
Story is a powerful tool in holistic nursing care. Narrative therapy, story circles, narrative-psychotherapy, and family therapy methodology have incorporated storytelling in a research setting. Childhood cancers isolate children from traditional childhood experiences. In recent years, survival rates for pediatric oncology patients have improved, opening up opportunities for research. The increase in life expectancy makes it necessary to investig…
Hereditary Cancer Genetic Panel Testing
Cancer genetic testing (CGT) is a powerful diagnostic test that improves cancer prevention and early detection among individuals at high genetic risk of cancer. Since the completion of the mapping of the Human Genome Project, CGT has become increasingly available in the clinical setting. However, as gene discovery and sequencing technology improve, the impact of these advancements on patients is less understood. The use of multigene cancer gene p…
A “rotating menu” of medical uncertainty for families affected by telomere biology disorders
Background: Medical uncertainty may cause distress and challenge medical decision-making for patients with rare diseases and their caregivers. Few studies have examined the experience and management of medical uncertainty in rare disease and the dynamics of multiple medical uncertainty sources, issues, and management strategies. Objective: We explored the experience and management of uncertainty in individuals with telomere biology disorders (TBD…
Psychology (6 works) · Medicine (5 works) · Family Support in Illness (4 works) · Internal Medicine (4 works) · Qualitative research (4 works) · Biology (3 works) · BRCA gene mutations in cancer (3 works) · Cancer (3 works) · Genetics (3 works) · Narrative (3 works)