Ulla Halonen
Biographic Data
| ID | 1162714 |
|---|---|
| NAME | Ulla Halonen |
| GIVEN NAMES | Ulla |
| FAMILY NAME | Halonen |
| SIGNATURE | HALONEN U |
| AFFILIATIONS | University of Jyväskylä |
| ORCID | 0000-0002-0538-5742 |
| VERIFIED | Yes |
| TOTAL WORKS | 6 |
| TOTAL CITATIONS | 1 |
| AUTHOR COUNT | 6 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2020 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 1 |
Adaptable and shared
While contemporary ageing policies emphasise the importance of supporting older people’s agency, research on how people living with dementia themselves perceive and articulate agency remains limited. Existing studies have often focused on the loss of agency or on external factors that enable or constrain it, leaving a gap in understanding the subjective, lived experience of agency as dementia progresses. This study examines the sense of agency am…
Care Deliberations of Family Carers of People Living With Dementia—Applying an Affective‐Discursive Practices Approach
Dementia is the leading cause of care needs for older adults in Finland, with significant care contributions from families. Although not legally obliged, families often provide care driven by emotional bonds, moral obligations and practical considerations. Even though previous research has extensively explored the reasons why families provide care, analyses of their affective dimensions remain scarce. This study aims to explore these by examining…
Family carers’ experiences of moral distress when caring for a person living with dementia
This article examines moral distress among Finnish carers of people living with dementia, based on group interviews with 24 carers, including adult children and spouses. Moral distress arises from decisions conflicting with the autonomy and self-determination of the person living with dementia and from perceived care inadequacies. Carers experience restricted moral agency, feeling unable to act according to their moral values, resulting in emotio…
Carers of persons with dementia and the social consequences of caring
Caring affects the social relationships of unpaid carers and the families of those being cared for in multiple ways. Care for a person with dementia often becomes demanding and requires reconciliation of caring with a personal life, work and social relationships. Carers are also prone to care poverty. In this article, we examine the social consequences of providing care for a person with dementia. Based on 21 diaries written by carers, and using …
Bridging Communication Gaps
As global populations age, the prevalence of dementia is increasing, highlighting the need for research that prioritizes the voices and perspectives of those living with the disease. Historically underrepresented, people with dementia offer unique insights and valuable narratives, despite the cognitive changes that impact their communication. Obstacles remain, however, for people with dementia to participate in research, a number of which have be…
A country-wide support network for people with memory-related diseases and their families
Carers of persons with dementia and the social consequences of caring
Caring affects the social relationships of unpaid carers and the families of those being cared for in multiple ways. Care for a person with dementia often becomes demanding and requires reconciliation of caring with a personal life, work and social relationships. Carers are also prone to care poverty. In this article, we examine the social consequences of providing care for a person with dementia. Based on 21 diaries written by carers, and using …
A country-wide support network for people with memory-related diseases and their families
Carers of persons with dementia and the social consequences of caring
Caring affects the social relationships of unpaid carers and the families of those being cared for in multiple ways. Care for a person with dementia often becomes demanding and requires reconciliation of caring with a personal life, work and social relationships. Carers are also prone to care poverty. In this article, we examine the social consequences of providing care for a person with dementia. Based on 21 diaries written by carers, and using …
Bridging Communication Gaps
As global populations age, the prevalence of dementia is increasing, highlighting the need for research that prioritizes the voices and perspectives of those living with the disease. Historically underrepresented, people with dementia offer unique insights and valuable narratives, despite the cognitive changes that impact their communication. Obstacles remain, however, for people with dementia to participate in research, a number of which have be…
Adaptable and shared
While contemporary ageing policies emphasise the importance of supporting older people’s agency, research on how people living with dementia themselves perceive and articulate agency remains limited. Existing studies have often focused on the loss of agency or on external factors that enable or constrain it, leaving a gap in understanding the subjective, lived experience of agency as dementia progresses. This study examines the sense of agency am…
Care Deliberations of Family Carers of People Living With Dementia—Applying an Affective‐Discursive Practices Approach
Dementia is the leading cause of care needs for older adults in Finland, with significant care contributions from families. Although not legally obliged, families often provide care driven by emotional bonds, moral obligations and practical considerations. Even though previous research has extensively explored the reasons why families provide care, analyses of their affective dimensions remain scarce. This study aims to explore these by examining…
Family carers’ experiences of moral distress when caring for a person living with dementia
This article examines moral distress among Finnish carers of people living with dementia, based on group interviews with 24 carers, including adult children and spouses. Moral distress arises from decisions conflicting with the autonomy and self-determination of the person living with dementia and from perceived care inadequacies. Carers experience restricted moral agency, feeling unable to act according to their moral values, resulting in emotio…
Dementia (5 works) · Cognition (2 works) · Education, Healthcare and Sociology Research (2 works) · Intergenerational Family Dynamics and Caregiving (2 works) · Psychology (2 works) · Qualitative research (2 works) · Thematic analysis (2 works) · Affect (linguistics) (1 works) · Aging and Gerontology Research (1 works) · Ambiguity (1 works)