B A Bernhardt

Biographic Data

ID120018
NAMEB A Bernhardt
GIVEN NAMESB A
FAMILY NAMEBernhardt
SIGNATUREBERNHARDT B A
AFFILIATIONSUniversity of Pennsylvania
ORCID0000-0002-9096-8765
VERIFIEDYes
TOTAL WORKS10
TOTAL CITATIONS16
AUTHOR COUNT10
EDITOR COUNT0
FIRST PUBLICATION YEAR1990
LATEST PUBLICATION YEAR2019
H-INDEX3

  • Actions and Uncertainty: How Prenatally Diagnosed Variants of Uncertain Significance Become Actionable

    Open AccessA Werner-Lin, Allison Werner‐Lin et al.ARTICLEThe Hastings Center Report2019

    The development of genomic technologies has seemed almost magical. Excitement about it, both in medicine and among the public, stems from the belief that genomic techniques will illuminate the causes of health and disease, will lead to effective interventions for both rare and common genetic conditions, and will inform reproductive decision‐making. Novel diagnostic tools, however, are often deployed before targeted therapies are developed, tested…

  • Expert Knowledge Influences Decision-Making for Couples Receiving Positive Prenatal Chromosomal Microarray Testing Results

    Open AccessM A Rubel, A Werner-Lin et al.ARTICLECulture Medicine and Psychiatry2017

  • An Observational Study of Children’s Involvement in Informed Consent for Exome Sequencing Research

    Open AccessVictoria A Miller, A Werner-Lin et al.ARTICLEJournal of Empirical Research on…2016References: 1

    The goal of this study was to examine children's involvement in consent sessions for exome sequencing research and associations of involvement with provider and parent communication. Participants included 44 children (8-17 years) from five cohorts who were offered participation in an exome sequencing study. The consent sessions were audiotaped, transcribed, and coded. Providers attempted to facilitate the child's involvement in the majority (73%)…

  • Couple's Narratives of Communion and Isolation Following Abnormal Prenatal Microarray Testing Results

    Open AccessA Werner-Lin, F K Barg et al.ARTICLEQualitative Health Research2016Cited by: 4References: 49

    In 2% to 3% of cases, prenatal microarray testing detects deletions and duplications in a fetus' genome that are undetected by conventional cytogenetics. Many of these changes are associated with variable or uncertain symptomatology. Little is known about how couples experience uncertain results. This study analyzed 24 interviews with members of 12 heterosexual U.S. couples who received pathogenic or uncertain microarray prenatal testing results.…

  • Differences in the Patterns of Health Care System Distrust Between Blacks and Whites

    Open AccessKatrina Armstrong, Suzanne McMurphy et al.ARTICLEJournal of General Internal…2008

  • Adolescents' Transition to Self-Management of a Chronic Genetic Disorder

    Open AccessEllen Giarelli, B A Bernhardt et al.ARTICLEQualitative Health Research2008Cited by: 6References: 41

    Self-management of chronic illness requires acquisition of self-care skills such as seeking knowledge, adhering to recommendations, practicing healthy behaviors, and life-long self-surveillance. This article describes the core problem and psychosocial processes by which parents transfer, and children take on, the responsibility for managing a chronic genetic condition. Individuals with Marfan syndrome (MFS), their parents, and health care provide…

  • Assessing Mass Media Reporting of Disease-Related Genetic Discoveries: Development of an Instrument and Initial Findings

    Open AccessEliza Mountcastle-Shah, Ellen Tambor et al.ARTICLEScience Communication2003Cited by: 4References: 3

    Objective: To develop an instrument to assess the content and balance of media stories about genetic discoveries relevant to human diseases and assess its ability to detect variability. Methods: Consumer focus groups to help develop the instrument, and surveys of scientists and journalists to evaluate the items. Ratings by at least two readers assessed reliability. Variability was measured by comparing scores of 47 stories emanating from two disc…

  • Houseofficers’ reactions to media coverage about the sequencing of the human genome

    Open AccessGail Geller, Ellen Tambor et al.ARTICLESocial Science & Medicine2003Cited by: 2References: 5

  • "Decoding" Informed Consent Insights from Women regarding Breast Cancer Susceptibility Testing

    Gail Geller, Misha Strauss et al.ARTICLEThe Hastings Center Report1997

    Cancer susceptibility testing is likely to become routine in medical practice, despite many limitations and unanswered questions. These uncertainties greatly complicate the process of informed consent, creating an excellent opportunity to reconsider exactly how it should be conducted. Research with women's reactions to the availability of genetic susceptibility testing for breast cancer dramatically underscores that informed consent ought to be h…

  • A survey of state Medicaid policies for coverage of abortion and prenatal diagnostic procedures

    James Weiner, B A BernhardtARTICLEAmerican Journal of Public Health1990References: 7

    In the summer of 1988, we surveyed all states to evaluate access to Medicaid funding for abortion after the diagnosis of an anomalous fetus. All state Medicaid programs covered amniocentesis, and most had expanded coverage to include newer prenatal diagnostic procedures for eligible women. In 29 states, however, abortion coverage was limited to instances when continuation of abortion threatens the life of the mother. Only 13 states paid for a wom…