Claudia Egher
Biographic Data
| ID | 1248835 |
|---|---|
| NAME | Claudia Egher |
| GIVEN NAMES | Claudia |
| FAMILY NAME | Egher |
| SIGNATURE | EGHER C |
| AFFILIATIONS | Maastricht University |
| ORCID | 0000-0003-3582-9217 |
| VERIFIED | Yes |
| TOTAL WORKS | 11 |
| TOTAL CITATIONS | 1 |
| WORKS AS AUTHOR | 11 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2019 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 1 |
Choreographing care and restraint
The dynamic functions of values in RI-informed activities
Great expectations and concerns surround health data ecosystems, yet empirical research on their impacts is only beginning to emerge. Building on Responsible Innovation (RI) and valuation studies, we ask: what functions are values made to fulfill in anticipatory practices shaping the development of a health data ecosystem, and with what implications? We examine IDEA4RC, a Horizon Europe-funded project developing a rare cancer data ecosystem, wher…
Ambivalence and Agonism of Public Participation in Contemporary Societies
In this editorial we introduce the thematic issue “Public Participation Amidst Hostility: When the Uninvited Shape Matters of Collective Concern.” The aim of this issue is twofold. First, it takes stock of various ways in which public participation can be hindered, directly and indirectly. Second, it investigates different kinds of participatory practices that emerge in situations of hostility towards public participation. Given that participatio…
Standardising Patient Engagement in Drug Development
Initiatives to increase patient engagement in drug development have recently been accompanied by growing calls for standardisation due to considerable uncertainties about how to best perform patient engagement and use it in drug marketing applications. We focus on materials developed by the Patient Focused Medicines Development (PFMD), a multi-stakeholder group founded in 2015, to investigate what these materials seek to standardize on patient en…
Knowledge‐based representation
INTRODUCTION: Recently, different actors have intensified their efforts to make drug development more participatory. They have produced many frameworks, tools and dedicated fora, where patients are portrayed as relevant stakeholders to be involved throughout the entire drug development trajectory. To better understand what such participatory efforts entail, in this article, we investigate how patient representation is configured in drug developme…
Patient engagement in drug development
For many years, the field of drug development remained insulated from patient engagement initiatives that became commonplace in healthcare, it is currently experiencing a participatory turn. This has been informed by a re-evaluation of the patients' insights and of the roles they can play in drug development, with both democratising and technocratic arguments invoked in support of their more substantial engagement. This article problematises the …
The Role of Affective Labour in Expertise
In recent years, a lot of scholarly attention has been devoted to how practices of digitalisation and datafication require medical professionals to work together with different stakeholders, and to how such collaborations shape expertise (Stevens, Wehrens, and de Bont 2020; Carboni et al. 2024). STS scholars have generally approached expertise as an epistemic and social endeavor, but they have tended to neglect the role affects and emotions play …
Digital Healthcare and Expertise
This open access book explores bipolar disorder on American and French digital platforms with insights from STS, medical sociology and media studies.
Digital Healthcare and Expertise
Online Expert Mediators
Using Collins and Evans’ concept of interactional expertise, this article examines the online activities of three bloggers diagnosed with bipolar disorder. It argues that by combining medical knowledge with their situated experiences, and by utilizing the affordances of blogs, these bloggers have become a new type of stakeholder, the online expert mediator. Collins and Evans’ concept is extended by taking into consideration the role of the medium…
Bipolar patients and creative online practices
Bipolar disorder is among the top 10 causes of disability worldwide. It is managed through a combination of medical and psychotherapeutic interventions, but finding an effective treatment is often a long process of trial-and-error, that medical professionals and people diagnosed with this condition engage upon. This article investigates how people diagnosed with bipolar disorder enact lay expertise about the treatment of this condition online. Us…
Bipolar patients and creative online practices
Bipolar disorder is among the top 10 causes of disability worldwide. It is managed through a combination of medical and psychotherapeutic interventions, but finding an effective treatment is often a long process of trial-and-error, that medical professionals and people diagnosed with this condition engage upon. This article investigates how people diagnosed with bipolar disorder enact lay expertise about the treatment of this condition online. Us…
Bipolar patients and creative online practices
Bipolar disorder is among the top 10 causes of disability worldwide. It is managed through a combination of medical and psychotherapeutic interventions, but finding an effective treatment is often a long process of trial-and-error, that medical professionals and people diagnosed with this condition engage upon. This article investigates how people diagnosed with bipolar disorder enact lay expertise about the treatment of this condition online. Us…
Online Expert Mediators
Using Collins and Evans’ concept of interactional expertise, this article examines the online activities of three bloggers diagnosed with bipolar disorder. It argues that by combining medical knowledge with their situated experiences, and by utilizing the affordances of blogs, these bloggers have become a new type of stakeholder, the online expert mediator. Collins and Evans’ concept is extended by taking into consideration the role of the medium…
Digital Healthcare and Expertise
Digital Healthcare and Expertise
This open access book explores bipolar disorder on American and French digital platforms with insights from STS, medical sociology and media studies.
Standardising Patient Engagement in Drug Development
Initiatives to increase patient engagement in drug development have recently been accompanied by growing calls for standardisation due to considerable uncertainties about how to best perform patient engagement and use it in drug marketing applications. We focus on materials developed by the Patient Focused Medicines Development (PFMD), a multi-stakeholder group founded in 2015, to investigate what these materials seek to standardize on patient en…
Knowledge‐based representation
INTRODUCTION: Recently, different actors have intensified their efforts to make drug development more participatory. They have produced many frameworks, tools and dedicated fora, where patients are portrayed as relevant stakeholders to be involved throughout the entire drug development trajectory. To better understand what such participatory efforts entail, in this article, we investigate how patient representation is configured in drug developme…
Patient engagement in drug development
For many years, the field of drug development remained insulated from patient engagement initiatives that became commonplace in healthcare, it is currently experiencing a participatory turn. This has been informed by a re-evaluation of the patients' insights and of the roles they can play in drug development, with both democratising and technocratic arguments invoked in support of their more substantial engagement. This article problematises the …
The Role of Affective Labour in Expertise
In recent years, a lot of scholarly attention has been devoted to how practices of digitalisation and datafication require medical professionals to work together with different stakeholders, and to how such collaborations shape expertise (Stevens, Wehrens, and de Bont 2020; Carboni et al. 2024). STS scholars have generally approached expertise as an epistemic and social endeavor, but they have tended to neglect the role affects and emotions play …
Ambivalence and Agonism of Public Participation in Contemporary Societies
In this editorial we introduce the thematic issue “Public Participation Amidst Hostility: When the Uninvited Shape Matters of Collective Concern.” The aim of this issue is twofold. First, it takes stock of various ways in which public participation can be hindered, directly and indirectly. Second, it investigates different kinds of participatory practices that emerge in situations of hostility towards public participation. Given that participatio…
Choreographing care and restraint
The dynamic functions of values in RI-informed activities
Great expectations and concerns surround health data ecosystems, yet empirical research on their impacts is only beginning to emerge. Building on Responsible Innovation (RI) and valuation studies, we ask: what functions are values made to fulfill in anticipatory practices shaping the development of a health data ecosystem, and with what implications? We examine IDEA4RC, a Horizon Europe-funded project developing a rare cancer data ecosystem, wher…
Political science (6 works) · Psychology (6 works) · Computer Science (5 works) · Knowledge management (4 works) · Mental Health and Patient Involvement (4 works) · Sociology (4 works) · Business (3 works) · Cognitive psychology (2 works) · Epistemology (2 works) · Health Policy Implementation Science (2 works)