Michaela Th Mayrhofer
Biographic Data
| ID | 1250054 |
|---|---|
| NAME | Michaela Th Mayrhofer |
| GIVEN NAMES | Michaela Th |
| FAMILY NAME | Mayrhofer |
| SIGNATURE | MAYRHOFER M T |
| AFFILIATIONS | Biobanking and Biomolecular Resources Research Infrastructure Consortium |
| ORCID | 0000-0001-6932-0473 |
| VERIFIED | Yes |
| TOTAL WORKS | 5 |
| TOTAL CITATIONS | 0 |
| WORKS AS AUTHOR | 5 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 2011 |
| LATEST PUBLICATION YEAR | 2024 |
| H-INDEX | 0 |
Ethical, legal, and social implications in research biobanking
Biobanks’ activity is based not only on securing the technology of collecting and storing human biospecimen, but also on preparing formal documentation that will enable its safe use for scientific research. In that context, the issue of informed consent, the reporting of incidental findings and the use of Transfer Agreements remain a vast challenge. This paper aims to offer first–hand tangible solutions on those issues in the context of collabora…
Post-identifiability in changing sociotechnological genomic data environments
Data practices in biomedical research often rely on standards that build on normative assumptions regarding privacy and involve ‘ethics work.’ In an increasingly datafied research environment, identifiability gains a new temporal and spatial dimension, especially in regard to genomic data. In this paper, we analyze how genomic identifiability is considered as a specific data issue in a recent controversial case: publication of the genome sequence…
Paediatric biobanking for health
Biobanks play a central role in pediatric translational research, which deals primarily with genetic data from sample-based research. However, participation of children in biobanking has received only limited attention in the literature, even though research in general and in clinical trials in particular have a long history in involving minors. So, we resolved to explore specific challenging ethical, legal, and societal issues (ELSI) in the curr…
Biobanking and risk assessment
Biobanks act as the custodians for the access to and responsible use of human biological samples and related data that have been generously donated by individuals to serve the public interest and scientific advances in the health research realm. Risk assessment has become a daily practice for biobanks and has been discussed from different perspectives. This paper aims to provide a literature review on risk assessment in order to put together a co…
Reproducing Masculinity
No prominent works on this page.
Reproducing Masculinity
Biobanking and risk assessment
Biobanks act as the custodians for the access to and responsible use of human biological samples and related data that have been generously donated by individuals to serve the public interest and scientific advances in the health research realm. Risk assessment has become a daily practice for biobanks and has been discussed from different perspectives. This paper aims to provide a literature review on risk assessment in order to put together a co…
Paediatric biobanking for health
Biobanks play a central role in pediatric translational research, which deals primarily with genetic data from sample-based research. However, participation of children in biobanking has received only limited attention in the literature, even though research in general and in clinical trials in particular have a long history in involving minors. So, we resolved to explore specific challenging ethical, legal, and societal issues (ELSI) in the curr…
Ethical, legal, and social implications in research biobanking
Biobanks’ activity is based not only on securing the technology of collecting and storing human biospecimen, but also on preparing formal documentation that will enable its safe use for scientific research. In that context, the issue of informed consent, the reporting of incidental findings and the use of Transfer Agreements remain a vast challenge. This paper aims to offer first–hand tangible solutions on those issues in the context of collabora…
Post-identifiability in changing sociotechnological genomic data environments
Data practices in biomedical research often rely on standards that build on normative assumptions regarding privacy and involve ‘ethics work.’ In an increasingly datafied research environment, identifiability gains a new temporal and spatial dimension, especially in regard to genomic data. In this paper, we analyze how genomic identifiability is considered as a specific data issue in a recent controversial case: publication of the genome sequence…
Biomedical Ethics and Regulation (4 works) · Ethics in Clinical Research (4 works) · Political science (4 works) · Biobank (3 works) · Engineering ethics (3 works) · Sociology (3 works) · Bioinformatics (2 works) · Biology (2 works) · Engineering (2 works) · Epistemology (2 works)