Aaro Tupasela
Biographic Data
| ID | 125337 |
|---|---|
| NAME | Aaro Tupasela |
| GIVEN NAMES | Aaro |
| FAMILY NAME | Tupasela |
| SIGNATURE | TUPASELA A |
| AFFILIATIONS | University of Helsinki |
| ORCID | 0000-0003-1512-7533 |
| VERIFIED | Yes |
| TOTAL WORKS | 23 |
| TOTAL CITATIONS | 41 |
| AUTHOR COUNT | 23 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2000 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 3 |
Re-enchanted by AuroraAI: AI Policy and its Implementation in Finland
In 2020, Finland launched its own national Artificial Intelligence (AI) program called AuroraAI. The goal of the program was to develop a more human-centric approach to public and private services using AI. AuroraAI was conceptualized as a type of AI assistant for citizens, which would help improve the human condition and at the same time help alleviate the financial burden of the state through more efficient service provision and empowering indi…
The politics of constructing health data spaces: Border work and the stickiness of fragmentation
This article explores the construction of health data spaces through the lens of border work. It provides insights into the complex attachments and detachments that come to the fore when establishing centralized health data access bodies in the Nordic countries. By comparing Denmark, Norway, and Finland, the study unveils a variety of border work practices. These practices include the complex interplay between national infrastructures, local prac…
Older people and the smart city – Developing inclusive practices to protect and serve a vulnerable population
The use of new technologies, such as location-based information devices, can provide up-to-date and precise information regarding the challenges that older people face while moving around the city, but they pose privacy concerns at the same time
A solidarity paradox - welfare state data in global health data economy
Nordic welfare states have well institutionalised practises of gathering health and social wellbeing data from their citizens. The establishment of population registers coincided with the building of welfare state institutions and a social contract relying on solidarity. During the last decade, the significance of Nordic registers and health data has increased and they have become sources of economic value. Recent policies expect registers, healt…
Data Hugging in European Biobank Networks
The sharing, circulation, distribution, and use of human tissue samples and related data have become a major political and scientific pre-occupation during the past two decades. In the age of big data, the political, scientific, and economic momentum around the need to increasingly collect and collate massive amounts of data has intensified. At the same time, the control and sharing of samples and data have become increasingly strategic in positi…
Concordance as evidence in the Watson for Oncology decision-support system
Machine learning platforms have emerged as a new promissory technology that some argue will revolutionize work practices across a broad range of professions, including medical care. During the past few years, IBM has been testing its Watson for Oncology platform at several oncology departments around the world. Published reports, news stories, as well as our own empirical research show that in some cases, the levels of concordance over recommende…
The Nordic data imaginary
The Nordic countries aim to have a unique place within the European and global health data economy. They have extensive nationally maintained and centralized health data records, as well as numerous biobanks where data from individuals can be connected based on personal identification numbers. Much of this phenomenon can be attributed to the emergence and development of the Nordic welfare state, where Nordic countries sought to systematically col…
Codes d'éthique et travail éthique dans la recherche et le partage des données génétiques transnationales: Flux, non-flux et débordements
Depuis quelques années, les collaborations internationales dans la recherche médicale font l'objet d'une attention stratégique accrue. Un certain nombre de codes ont ainsi été élaborés afin d'améliorer le partage des données, d'assurer le libre accès et d'harmoniser les normes internationales et les principes éthiques dans l'idée de promouvoir l'accès aux ressources existantes et de favoriser la production de découvertes scientifiques. Parallèlem…
Shortcut to success? Negotiating genetic uniqueness in global biomedicine
Since the sequencing of the human genome, as well as the completion of the first Human Genome Diversity Project, the benefits of studying one human population over another has been an ongoing debate relating to the replicability of findings in other populations. The leveraging of specific populations into research markets has made headlines in cases such as deCode in Iceland, Quebec Founder Population, and Generation Scotland. In such cases, rese…
Rethinking Therapeutic Misconception in Biobanking – Ambivalence Between Research and Treatment
Some authors have noted that in biobank re search participants may be guided by what is called therapeutic misconception, whereby participants attribute therapeutic intent to research procedures (Zawati and Knoppers, 2012; Lidz and Appelbaum, 2002). This article argues that the notion of therapeutic misconception is increasingly less justified when evaluating biobanks. We present four examples taken from recent developments in biobanking to argue…
Populations as brands in medical research: Placing genes on the global genetic atlas
Ethical sharing of health data in online platforms – which values should be considered
Intensified and extensive data production and data storage are characteristics of contemporary western societies. Health data sharing is increasing with the growth of Information and Communication Technology (ICT) platforms devoted to the collection of personal health and genomic data. However, the sensitive and personal nature of health data poses ethical challenges when data is disclosed and shared even if for scientific research purposes.With …
Ethics Policies and Ethics Work in Cross-national Genetic Research and Data Sharing: Flows, Nonflows, and Overflows
In recent years, cross-national collaboration in medical research has gained increased policy attention. Policies are developed to enhance data sharing, ensure open-access, and harmonize international standards and ethics rules in order to promote access to existing resources and increase scientific output. In tandem with this promotion of data sharing, numerous ethics policies are developed to control data flows and protect privacy and confident…
Genetic Romanticism-Constructing the Corpus in Finnish Folklore and Rare Diseases
The role that national epic poetry has played in romantic nationalism during the nineteenth and twentieth centuries is well documented. The role that the new genetics has played in such processes, however, is less well known and understood as a form of writing national narratives of origin. This article compares and contrasts the work of two doctors in Finland, Elias Lönnrot and Reijo Norio, working over a century and a half apart, to examine the…
Beyond and within public engagement: A broadened approach to engagement in biobanking
Social studies on biobanking have traditionally focused on public engagement, that is, engagement with donors, patients and the general public as an important factor of sustainability. In this article, we claim that, in order to fully understand the way biobanks work, it is necessary to pay attention to a number of other actors, which have an equal, if not greater, impact on their practices and strategies. This means taking a broadened approach t…
Authentic, Original, and Valuable: Stabilizing the Genetic Identity in Non‐human and Human Populations in Finland
The idea of genetic authenticity and origin has been an important issue within genetics for decades for scientific, political, and economic reasons. The question of where species and populations come from, as well as the linking of genetic traits to particular geographical locations, has resurfaced as both a scientific and political site of interest more recently through the study of population genetics in both humans and non‐humans. This article…
Constructing populations in biobanking
This article poses the question of whether biobanking practices and standards are giving rise to the construction of populations from which various biobanking initiatives increasingly draw on for legitimacy? We argue that although recent biobanking policies encourage various forms of engagement with publics to ensure legitimacy, different biobanks conceptualize their engagement strategies very differently. We suggest that biobanks undertake a bro…
National interests and international collaboration: Tensions and ambiguity among Finns towards usages of tissue samples
Recent trends in biobanking indicate that the practices associated with the collection and use of human tissue samples and related health information are increasingly becoming premised on networks of biobanks. These networks and partnerships often involve international collaborations, as well as public–private partnerships. This article reports on the results of a study of people's attitudes towards biobanking and the biomedical use of tissue sam…
Making a diffuse group consistent and substantial
No abstract
Re-examining medical modernization: Framing the public in Finnish biomedical research policy
Despite recent evidence that suggests that knowledge production within the medical community is increasingly based on knowledge-making coalitions or what some have called the co-production of knowledge, there remains a strong expert led policy agenda in many countries in relation to human genome research. This article reports on the role of experts in defining the scope of discussion in relation to the biomedical use of human tissue sample collec…
Locating tissue collections in tissue economies—deriving value from biomedical research
This paper examines diverging notions of value in the use of tissue sample collections and other information resources using a case study of hereditary colorectal cancer research in Finland. Recent science and technology policies that emphasize the production of commercial value derived from tissue sample collections are challenged by varying conceptions of value, as well as structural factors that relate to the combination of different public po…
National Innovation System - Scientific Concept or Political Rhetoric
No abstract
Intellectual Property Rights and Licensing
No abstract
Shortcut to success? Negotiating genetic uniqueness in global biomedicine
Since the sequencing of the human genome, as well as the completion of the first Human Genome Diversity Project, the benefits of studying one human population over another has been an ongoing debate relating to the replicability of findings in other populations. The leveraging of specific populations into research markets has made headlines in cases such as deCode in Iceland, Quebec Founder Population, and Generation Scotland. In such cases, rese…
The Nordic data imaginary
The Nordic countries aim to have a unique place within the European and global health data economy. They have extensive nationally maintained and centralized health data records, as well as numerous biobanks where data from individuals can be connected based on personal identification numbers. Much of this phenomenon can be attributed to the emergence and development of the Nordic welfare state, where Nordic countries sought to systematically col…
Ethics Policies and Ethics Work in Cross-national Genetic Research and Data Sharing: Flows, Nonflows, and Overflows
In recent years, cross-national collaboration in medical research has gained increased policy attention. Policies are developed to enhance data sharing, ensure open-access, and harmonize international standards and ethics rules in order to promote access to existing resources and increase scientific output. In tandem with this promotion of data sharing, numerous ethics policies are developed to control data flows and protect privacy and confident…
Data Hugging in European Biobank Networks
The sharing, circulation, distribution, and use of human tissue samples and related data have become a major political and scientific pre-occupation during the past two decades. In the age of big data, the political, scientific, and economic momentum around the need to increasingly collect and collate massive amounts of data has intensified. At the same time, the control and sharing of samples and data have become increasingly strategic in positi…
Constructing populations in biobanking
This article poses the question of whether biobanking practices and standards are giving rise to the construction of populations from which various biobanking initiatives increasingly draw on for legitimacy? We argue that although recent biobanking policies encourage various forms of engagement with publics to ensure legitimacy, different biobanks conceptualize their engagement strategies very differently. We suggest that biobanks undertake a bro…
National interests and international collaboration: Tensions and ambiguity among Finns towards usages of tissue samples
Recent trends in biobanking indicate that the practices associated with the collection and use of human tissue samples and related health information are increasingly becoming premised on networks of biobanks. These networks and partnerships often involve international collaborations, as well as public–private partnerships. This article reports on the results of a study of people's attitudes towards biobanking and the biomedical use of tissue sam…
A solidarity paradox - welfare state data in global health data economy
Nordic welfare states have well institutionalised practises of gathering health and social wellbeing data from their citizens. The establishment of population registers coincided with the building of welfare state institutions and a social contract relying on solidarity. During the last decade, the significance of Nordic registers and health data has increased and they have become sources of economic value. Recent policies expect registers, healt…
Genetic Romanticism-Constructing the Corpus in Finnish Folklore and Rare Diseases
The role that national epic poetry has played in romantic nationalism during the nineteenth and twentieth centuries is well documented. The role that the new genetics has played in such processes, however, is less well known and understood as a form of writing national narratives of origin. This article compares and contrasts the work of two doctors in Finland, Elias Lönnrot and Reijo Norio, working over a century and a half apart, to examine the…
Authentic, Original, and Valuable: Stabilizing the Genetic Identity in Non‐human and Human Populations in Finland
The idea of genetic authenticity and origin has been an important issue within genetics for decades for scientific, political, and economic reasons. The question of where species and populations come from, as well as the linking of genetic traits to particular geographical locations, has resurfaced as both a scientific and political site of interest more recently through the study of population genetics in both humans and non‐humans. This article…
Intellectual Property Rights and Licensing
No abstract
National Innovation System - Scientific Concept or Political Rhetoric
No abstract
Locating tissue collections in tissue economies—deriving value from biomedical research
This paper examines diverging notions of value in the use of tissue sample collections and other information resources using a case study of hereditary colorectal cancer research in Finland. Recent science and technology policies that emphasize the production of commercial value derived from tissue sample collections are challenged by varying conceptions of value, as well as structural factors that relate to the combination of different public po…
Re-examining medical modernization: Framing the public in Finnish biomedical research policy
Despite recent evidence that suggests that knowledge production within the medical community is increasingly based on knowledge-making coalitions or what some have called the co-production of knowledge, there remains a strong expert led policy agenda in many countries in relation to human genome research. This article reports on the role of experts in defining the scope of discussion in relation to the biomedical use of human tissue sample collec…
Making a diffuse group consistent and substantial
No abstract
National interests and international collaboration: Tensions and ambiguity among Finns towards usages of tissue samples
Recent trends in biobanking indicate that the practices associated with the collection and use of human tissue samples and related health information are increasingly becoming premised on networks of biobanks. These networks and partnerships often involve international collaborations, as well as public–private partnerships. This article reports on the results of a study of people's attitudes towards biobanking and the biomedical use of tissue sam…
Beyond and within public engagement: A broadened approach to engagement in biobanking
Social studies on biobanking have traditionally focused on public engagement, that is, engagement with donors, patients and the general public as an important factor of sustainability. In this article, we claim that, in order to fully understand the way biobanks work, it is necessary to pay attention to a number of other actors, which have an equal, if not greater, impact on their practices and strategies. This means taking a broadened approach t…
Authentic, Original, and Valuable: Stabilizing the Genetic Identity in Non‐human and Human Populations in Finland
The idea of genetic authenticity and origin has been an important issue within genetics for decades for scientific, political, and economic reasons. The question of where species and populations come from, as well as the linking of genetic traits to particular geographical locations, has resurfaced as both a scientific and political site of interest more recently through the study of population genetics in both humans and non‐humans. This article…
Constructing populations in biobanking
This article poses the question of whether biobanking practices and standards are giving rise to the construction of populations from which various biobanking initiatives increasingly draw on for legitimacy? We argue that although recent biobanking policies encourage various forms of engagement with publics to ensure legitimacy, different biobanks conceptualize their engagement strategies very differently. We suggest that biobanks undertake a bro…
Genetic Romanticism-Constructing the Corpus in Finnish Folklore and Rare Diseases
The role that national epic poetry has played in romantic nationalism during the nineteenth and twentieth centuries is well documented. The role that the new genetics has played in such processes, however, is less well known and understood as a form of writing national narratives of origin. This article compares and contrasts the work of two doctors in Finland, Elias Lönnrot and Reijo Norio, working over a century and a half apart, to examine the…
Rethinking Therapeutic Misconception in Biobanking – Ambivalence Between Research and Treatment
Some authors have noted that in biobank re search participants may be guided by what is called therapeutic misconception, whereby participants attribute therapeutic intent to research procedures (Zawati and Knoppers, 2012; Lidz and Appelbaum, 2002). This article argues that the notion of therapeutic misconception is increasingly less justified when evaluating biobanks. We present four examples taken from recent developments in biobanking to argue…
Populations as brands in medical research: Placing genes on the global genetic atlas
Ethical sharing of health data in online platforms – which values should be considered
Intensified and extensive data production and data storage are characteristics of contemporary western societies. Health data sharing is increasing with the growth of Information and Communication Technology (ICT) platforms devoted to the collection of personal health and genomic data. However, the sensitive and personal nature of health data poses ethical challenges when data is disclosed and shared even if for scientific research purposes.With …
Ethics Policies and Ethics Work in Cross-national Genetic Research and Data Sharing: Flows, Nonflows, and Overflows
In recent years, cross-national collaboration in medical research has gained increased policy attention. Policies are developed to enhance data sharing, ensure open-access, and harmonize international standards and ethics rules in order to promote access to existing resources and increase scientific output. In tandem with this promotion of data sharing, numerous ethics policies are developed to control data flows and protect privacy and confident…
Shortcut to success? Negotiating genetic uniqueness in global biomedicine
Since the sequencing of the human genome, as well as the completion of the first Human Genome Diversity Project, the benefits of studying one human population over another has been an ongoing debate relating to the replicability of findings in other populations. The leveraging of specific populations into research markets has made headlines in cases such as deCode in Iceland, Quebec Founder Population, and Generation Scotland. In such cases, rese…
Codes d'éthique et travail éthique dans la recherche et le partage des données génétiques transnationales: Flux, non-flux et débordements
Depuis quelques années, les collaborations internationales dans la recherche médicale font l'objet d'une attention stratégique accrue. Un certain nombre de codes ont ainsi été élaborés afin d'améliorer le partage des données, d'assurer le libre accès et d'harmoniser les normes internationales et les principes éthiques dans l'idée de promouvoir l'accès aux ressources existantes et de favoriser la production de découvertes scientifiques. Parallèlem…
Concordance as evidence in the Watson for Oncology decision-support system
Machine learning platforms have emerged as a new promissory technology that some argue will revolutionize work practices across a broad range of professions, including medical care. During the past few years, IBM has been testing its Watson for Oncology platform at several oncology departments around the world. Published reports, news stories, as well as our own empirical research show that in some cases, the levels of concordance over recommende…
The Nordic data imaginary
The Nordic countries aim to have a unique place within the European and global health data economy. They have extensive nationally maintained and centralized health data records, as well as numerous biobanks where data from individuals can be connected based on personal identification numbers. Much of this phenomenon can be attributed to the emergence and development of the Nordic welfare state, where Nordic countries sought to systematically col…
Data Hugging in European Biobank Networks
The sharing, circulation, distribution, and use of human tissue samples and related data have become a major political and scientific pre-occupation during the past two decades. In the age of big data, the political, scientific, and economic momentum around the need to increasingly collect and collate massive amounts of data has intensified. At the same time, the control and sharing of samples and data have become increasingly strategic in positi…
Older people and the smart city – Developing inclusive practices to protect and serve a vulnerable population
The use of new technologies, such as location-based information devices, can provide up-to-date and precise information regarding the challenges that older people face while moving around the city, but they pose privacy concerns at the same time
A solidarity paradox - welfare state data in global health data economy
Nordic welfare states have well institutionalised practises of gathering health and social wellbeing data from their citizens. The establishment of population registers coincided with the building of welfare state institutions and a social contract relying on solidarity. During the last decade, the significance of Nordic registers and health data has increased and they have become sources of economic value. Recent policies expect registers, healt…
The politics of constructing health data spaces: Border work and the stickiness of fragmentation
This article explores the construction of health data spaces through the lens of border work. It provides insights into the complex attachments and detachments that come to the fore when establishing centralized health data access bodies in the Nordic countries. By comparing Denmark, Norway, and Finland, the study unveils a variety of border work practices. These practices include the complex interplay between national infrastructures, local prac…
Re-enchanted by AuroraAI: AI Policy and its Implementation in Finland
In 2020, Finland launched its own national Artificial Intelligence (AI) program called AuroraAI. The goal of the program was to develop a more human-centric approach to public and private services using AI. AuroraAI was conceptualized as a type of AI assistant for citizens, which would help improve the human condition and at the same time help alleviate the financial burden of the state through more efficient service provision and empowering indi…
Political science (16 works) · Ethics in Clinical Research (13 works) · Sociology (11 works) · Law (10 works) · Computer Science (8 works) · Biomedical Ethics and Regulation (7 works) · Biobank (6 works) · Biology (6 works) · Economics (6 works) · Politics (6 works)