Marit Kirkevold
Biographic Data
| ID | 126475 |
|---|---|
| NAME | Marit Kirkevold |
| GIVEN NAMES | Marit |
| FAMILY NAME | Kirkevold |
| SIGNATURE | KIRKEVOLD M |
| AFFILIATIONS | University of Oslo |
| ORCID | 0000-0002-3979-0631 |
| VERIFIED | Yes |
| TOTAL WORKS | 25 |
| TOTAL CITATIONS | 27 |
| AUTHOR COUNT | 25 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2003 |
| LATEST PUBLICATION YEAR | 2025 |
| H-INDEX | 4 |
What is helpful in everyday living with dementia at home? Learning from families’ diverse scenarios
As the population ages and the prevalence of dementia increases, caring for a relative living at home with dementia has become a reality for many families worldwide. Studies have shown that families are confronted with diverse difficulties as they try to address the challenges involved in providing care. By understanding how they manage daily life, formal service providers become better equipped to meet the diverse needs of these families. Learni…
This Disease Is a Verdict You Must Live With for the Rest of Your Life: Experiences and Perspectives From People Living With Adult-Onset Myotonic Dystrophy Type 1
Myotonic dystrophy type 1 (DM1) is a progressive, multisystemic neuromuscular disease. DM1 has a biopsychosocial impact, causing physical and cognitive impairment and limitations in activity and participation as well as having social consequences. The aim of our study was to investigate experiences of and perspectives on living and coping with adult-onset DM1 to inform future targeted rehabilitation services. We conducted semi-structured individu…
Users' Perspectives on the Organization of Rehabilitation Services – A Focus Group Study of User Organization Representatives in Norway
BACKGROUND: User organizations for people with disabilities in Norway work for social equality and participation, and quality of health services for people with disabilities, chronic illnesses and reduced functional capacity. Consideration of the experiences from user representatives is necessary when determining the quality and appropriateness of the rehabilitation services. Rehabilitation services constitute the provision and delivery of intang…
Community‐based dementia care re‐defined: Lessons from Iceland
Studies of families caring for persons with dementia living at home often reflect feelings of being forgotten and abandoned by the authorities to shoulder the responsibility for care-giving. This has increased interest in how formal services can better support these families. This article analyses how health and social care professionals envision the needs of families of persons with dementia living in the community. It also describes the contrib…
How patient and community involvement in diabetes research influences health outcomes: A realist review
The General Health Questionnaire-28 (GHQ-28) as an outcome measurement in a randomized controlled trial in a Norwegian stroke population
ClinicalTrials.gov, NCT02338869 , registered 10/04/2014
Finding the Way Forward: The Lived Experience of People With Stroke After Participation in a Complex Psychosocial Intervention
Stroke patients' well-being is threatened after stroke. A psychosocial intervention was developed for Norwegian stroke patients living in the community. Eight individual sessions between people with stroke and a trained health care professional were conducted 1 to 6 months post-stroke with one group of participants and 6 to 12 months post-stroke with another group. Subsequently, 19 of these stroke patients were interviewed to gain an in-depth und…
Exploring narratives of resilience among seven males living with spinal cord injury: A qualitative study
The findings of the present study show similarities to those of previous studies with regard to the participants' attribution of their resilience and wellbeing to their innate personal abilities and strong connection to their family and friends. In addition, the current participants provide enlightening nuances and depth that expand our understanding of the construct of resilience by highlighting the importance of continuously exerting agency, wi…
Promoting psychosocial well-being following stroke: Study protocol for a randomized, controlled trial
NCT02338869 ; registered 10/04/2014 (On-going trial)
Factors impacting the illness trajectory of post-infectious fatigue syndrome: A qualitative study of adults’ experiences
Unmet needs may result in unnecessary disability and high societal and personal costs. Enhanced knowledge of impacting factors in each phase of the trajectory may contribute to more timely and tailored health care services and less use of health services. Increased functional capacity, improved health and ability to work or study may reduce the societal costs and the economic burden for the affected individuals
Staying Healthy From Fibromyalgia Is Ongoing Hard Work
Fibromyalgia syndrome (FMS) is a chronic musculoskeletal pain condition. Although studies have reported that some patients can become healthy again, little is known about what they tell about their lives after having FMS. In this study, we interviewed eight Norwegian women who had all recovered from FMS about their experiences when ill and subsequently being healthy. Inspired by narrative methods, we then conducted a thematic narrative analysis. …
Promoting psychosocial wellbeing following stroke using narratives and guided self-determination: A feasibility study
ClinicalTrials.gov Identifier: NCT01912014
Masculinity and strokes: The Challenges Presented to Younger Men by Chronic Illness
Stroke is a major cause of disability in the Western world, changing not only to the victim's body but also his or her lifestyle. Men tend to experience stroke at a younger age than women. Most people understand stroke as a disease of the elderly, however, this study looks at the effects of stroke on the young adult male. Adolescence, and young- and middle-adulthood are the periods in which the intergenerational dialectics and the interactions be…
Neurorehabilitation analysed through ‘situated learning’ theory
This paper proposes a perspective of learning in the context of neurorehabilitation. Central concepts from Lave and Wenger's theory of situated learning are presented as a promising theoretical perspective to grasp the problems typically encountered by professionals and a strategy to analyse the effectiveness of rehabilitation strategies aimed at everyday activities. Empirical data from field studies and focus group interviews describing rehabili…
Informal caregivers' participation when older adults in Norway are discharged from the hospital
This paper describes the participation of informal caregivers in the discharge process when patients aged 80 and over who were admitted from home to different hospitals in Norway were discharged to long-term community care. Data for this cross-sectional survey were collected through telephone interviews with a consecutive sample of 262 caregivers recruited between October 2007 and May 2009. The Discharge of Elderly Questionnaire was developed by …
Factors predicting a successful post-discharge outcome for individuals aged 80 years and over
Having someone at home upon return from hospital and having adequate formal home-care services are significantly associated with patient-reported success in managing well
Realizing Empowerment in Difficult Diabetes Care: A Guided Self-Determination Intervention
Although health professionals advocate empowerment in patient care, they often fail to realize it in practice. Through grounded theories we previously explained why barriers to empowerment were seldom overcome in diabetes care. Zoffmann used these theories as a basis for developing a decision-making and problem-solving method called guided self-determination (GSD). To realize empowerment, health professionals need detailed knowledge of the barrie…
Breaking the Silence: Integration of Facial Disfigurement After Surgical Treatment for Cancer
Little is known about the psychosocial effects of facial disfigurement. We present the results of a qualitative study following 15 patients who had been surgically treated for head, neck, or eye cancer over the course of their first postoperative year. Taped nurse-patient conversations and individual interviews were analyzed using the grounded theory method. The findings revealed that the main concern of the patients was feeling isolated, which w…
The Aphasic Storyteller: Coconstructing Stories to Promote Psychosocial Well-Being After Stroke
Telling stories is essential to the continuous process of creating meaning and to self-understanding. Persons with aphasia are vulnerable to psychosocial problems by their limited ability to talk and interact with others. This single-case study illustrates how a young woman with aphasia and a trained nurse interacted to coconstruct stories within the context of a longitudinal clinical intervention aimed at promoting psychosocial well-being in the…
A Person-Centered Communication and Reflection Model: Sharing Decision-Making in Chronic Care
Shared decision making (SDM) is regarded as an ideal in chronic illness care but is difficult to implement in practice. Communication and reflection play an important role and need further investigation. Using grounded theory, we studied patient-provider interaction in a difficult and advanced area: managing poorly controlled diabetes. A person-centered communication and reflection model was developed, identifying SDM in chronic care to be a ques…
Relationships and Their Potential for Change Developed in Difficult Type 1 Diabetes
Few researchers have explored how relationships between patients and providers might change problem solving in clinical practice. The authors used grounded theory to study dyads of 11 people with diabetes and poor glycemic control, and 8 nurses interacting in diabetes teams. Relational Potential for Change was identified as a core category that involved three types of relationships. Professionals mostly shifted between less effective relationship…
Participatory Design in Health Sciences: Using Cooperative Experimental Methods in Developing Health Services and Computer Technology
Participatory design (PD) is a research approach to the development of technological solutions to real-world problems, an approach that shares manyconcerns and some of its roots with action research. In this article, the authors discuss their experience in conducting a PD research project intended to develop a technological and a related organizational intervention to support the treatment of foot ulcers for people with diabetes at home. They pro…
Life Versus Disease in Difficult Diabetes Care: Conflicting Perspectives Disempower Patients and Professionals in Problem Solving
Conflicts in problem solving are known from diabetes research on patients with good glycemic control but have rarely been studied in the care of patients with poor glycemic control. Equally, the different perspectives of health care providers and patients have not been a focus in previous studies. The authors studied the interactions between health care providers and 11 diabetes patients with poor glycemic control in a grounded theory study at a …
Fighting Back—struggling to Continue Life and Preserve the Self Following a Stroke
The aim of this longitudinal phenomenological study was to explore how female stroke survivors experienced their life following a stroke and how they managed their altered situation. Twenty-five women suffering first-time stroke were interviewed in depth three times during the first one and a half years after the stroke. Applying the method of Giorgi, we found that there was a lengthy struggle to continue life and preserve the self following the …
Living with Bodily Strangeness: Women's Experiences of their Changing and Unpredictable Body Following a Stroke
The authors' aim in this phenomenologial and feminist study was to gain a deeper under-standing of how female stroke survivors experienced their body after a stroke. They recruited 25 women in a rural area in eastern Norway who had suffered a first-time stroke and inter-viewed them in depth three times each during the first 1 1 /2to 2 years following the stroke. The data analysis was inspired by phenomenological method. The stroke survivors' expe…
The Aphasic Storyteller: Coconstructing Stories to Promote Psychosocial Well-Being After Stroke
Telling stories is essential to the continuous process of creating meaning and to self-understanding. Persons with aphasia are vulnerable to psychosocial problems by their limited ability to talk and interact with others. This single-case study illustrates how a young woman with aphasia and a trained nurse interacted to coconstruct stories within the context of a longitudinal clinical intervention aimed at promoting psychosocial well-being in the…
Finding the Way Forward: The Lived Experience of People With Stroke After Participation in a Complex Psychosocial Intervention
Stroke patients' well-being is threatened after stroke. A psychosocial intervention was developed for Norwegian stroke patients living in the community. Eight individual sessions between people with stroke and a trained health care professional were conducted 1 to 6 months post-stroke with one group of participants and 6 to 12 months post-stroke with another group. Subsequently, 19 of these stroke patients were interviewed to gain an in-depth und…
Realizing Empowerment in Difficult Diabetes Care: A Guided Self-Determination Intervention
Although health professionals advocate empowerment in patient care, they often fail to realize it in practice. Through grounded theories we previously explained why barriers to empowerment were seldom overcome in diabetes care. Zoffmann used these theories as a basis for developing a decision-making and problem-solving method called guided self-determination (GSD). To realize empowerment, health professionals need detailed knowledge of the barrie…
Breaking the Silence: Integration of Facial Disfigurement After Surgical Treatment for Cancer
Little is known about the psychosocial effects of facial disfigurement. We present the results of a qualitative study following 15 patients who had been surgically treated for head, neck, or eye cancer over the course of their first postoperative year. Taped nurse-patient conversations and individual interviews were analyzed using the grounded theory method. The findings revealed that the main concern of the patients was feeling isolated, which w…
Community‐based dementia care re‐defined: Lessons from Iceland
Studies of families caring for persons with dementia living at home often reflect feelings of being forgotten and abandoned by the authorities to shoulder the responsibility for care-giving. This has increased interest in how formal services can better support these families. This article analyses how health and social care professionals envision the needs of families of persons with dementia living in the community. It also describes the contrib…
Staying Healthy From Fibromyalgia Is Ongoing Hard Work
Fibromyalgia syndrome (FMS) is a chronic musculoskeletal pain condition. Although studies have reported that some patients can become healthy again, little is known about what they tell about their lives after having FMS. In this study, we interviewed eight Norwegian women who had all recovered from FMS about their experiences when ill and subsequently being healthy. Inspired by narrative methods, we then conducted a thematic narrative analysis. …
Masculinity and strokes: The Challenges Presented to Younger Men by Chronic Illness
Stroke is a major cause of disability in the Western world, changing not only to the victim's body but also his or her lifestyle. Men tend to experience stroke at a younger age than women. Most people understand stroke as a disease of the elderly, however, this study looks at the effects of stroke on the young adult male. Adolescence, and young- and middle-adulthood are the periods in which the intergenerational dialectics and the interactions be…
Participatory Design in Health Sciences: Using Cooperative Experimental Methods in Developing Health Services and Computer Technology
Participatory design (PD) is a research approach to the development of technological solutions to real-world problems, an approach that shares manyconcerns and some of its roots with action research. In this article, the authors discuss their experience in conducting a PD research project intended to develop a technological and a related organizational intervention to support the treatment of foot ulcers for people with diabetes at home. They pro…
Factors predicting a successful post-discharge outcome for individuals aged 80 years and over
Having someone at home upon return from hospital and having adequate formal home-care services are significantly associated with patient-reported success in managing well
Living with Bodily Strangeness: Women's Experiences of their Changing and Unpredictable Body Following a Stroke
The authors' aim in this phenomenologial and feminist study was to gain a deeper under-standing of how female stroke survivors experienced their body after a stroke. They recruited 25 women in a rural area in eastern Norway who had suffered a first-time stroke and inter-viewed them in depth three times each during the first 1 1 /2to 2 years following the stroke. The data analysis was inspired by phenomenological method. The stroke survivors' expe…
Fighting Back—struggling to Continue Life and Preserve the Self Following a Stroke
The aim of this longitudinal phenomenological study was to explore how female stroke survivors experienced their life following a stroke and how they managed their altered situation. Twenty-five women suffering first-time stroke were interviewed in depth three times during the first one and a half years after the stroke. Applying the method of Giorgi, we found that there was a lengthy struggle to continue life and preserve the self following the …
Life Versus Disease in Difficult Diabetes Care: Conflicting Perspectives Disempower Patients and Professionals in Problem Solving
Conflicts in problem solving are known from diabetes research on patients with good glycemic control but have rarely been studied in the care of patients with poor glycemic control. Equally, the different perspectives of health care providers and patients have not been a focus in previous studies. The authors studied the interactions between health care providers and 11 diabetes patients with poor glycemic control in a grounded theory study at a …
Relationships and Their Potential for Change Developed in Difficult Type 1 Diabetes
Few researchers have explored how relationships between patients and providers might change problem solving in clinical practice. The authors used grounded theory to study dyads of 11 people with diabetes and poor glycemic control, and 8 nurses interacting in diabetes teams. Relational Potential for Change was identified as a core category that involved three types of relationships. Professionals mostly shifted between less effective relationship…
Participatory Design in Health Sciences: Using Cooperative Experimental Methods in Developing Health Services and Computer Technology
Participatory design (PD) is a research approach to the development of technological solutions to real-world problems, an approach that shares manyconcerns and some of its roots with action research. In this article, the authors discuss their experience in conducting a PD research project intended to develop a technological and a related organizational intervention to support the treatment of foot ulcers for people with diabetes at home. They pro…
A Person-Centered Communication and Reflection Model: Sharing Decision-Making in Chronic Care
Shared decision making (SDM) is regarded as an ideal in chronic illness care but is difficult to implement in practice. Communication and reflection play an important role and need further investigation. Using grounded theory, we studied patient-provider interaction in a difficult and advanced area: managing poorly controlled diabetes. A person-centered communication and reflection model was developed, identifying SDM in chronic care to be a ques…
Factors predicting a successful post-discharge outcome for individuals aged 80 years and over
Having someone at home upon return from hospital and having adequate formal home-care services are significantly associated with patient-reported success in managing well
Realizing Empowerment in Difficult Diabetes Care: A Guided Self-Determination Intervention
Although health professionals advocate empowerment in patient care, they often fail to realize it in practice. Through grounded theories we previously explained why barriers to empowerment were seldom overcome in diabetes care. Zoffmann used these theories as a basis for developing a decision-making and problem-solving method called guided self-determination (GSD). To realize empowerment, health professionals need detailed knowledge of the barrie…
Breaking the Silence: Integration of Facial Disfigurement After Surgical Treatment for Cancer
Little is known about the psychosocial effects of facial disfigurement. We present the results of a qualitative study following 15 patients who had been surgically treated for head, neck, or eye cancer over the course of their first postoperative year. Taped nurse-patient conversations and individual interviews were analyzed using the grounded theory method. The findings revealed that the main concern of the patients was feeling isolated, which w…
The Aphasic Storyteller: Coconstructing Stories to Promote Psychosocial Well-Being After Stroke
Telling stories is essential to the continuous process of creating meaning and to self-understanding. Persons with aphasia are vulnerable to psychosocial problems by their limited ability to talk and interact with others. This single-case study illustrates how a young woman with aphasia and a trained nurse interacted to coconstruct stories within the context of a longitudinal clinical intervention aimed at promoting psychosocial well-being in the…
Neurorehabilitation analysed through ‘situated learning’ theory
This paper proposes a perspective of learning in the context of neurorehabilitation. Central concepts from Lave and Wenger's theory of situated learning are presented as a promising theoretical perspective to grasp the problems typically encountered by professionals and a strategy to analyse the effectiveness of rehabilitation strategies aimed at everyday activities. Empirical data from field studies and focus group interviews describing rehabili…
Informal caregivers' participation when older adults in Norway are discharged from the hospital
This paper describes the participation of informal caregivers in the discharge process when patients aged 80 and over who were admitted from home to different hospitals in Norway were discharged to long-term community care. Data for this cross-sectional survey were collected through telephone interviews with a consecutive sample of 262 caregivers recruited between October 2007 and May 2009. The Discharge of Elderly Questionnaire was developed by …
Promoting psychosocial wellbeing following stroke using narratives and guided self-determination: A feasibility study
ClinicalTrials.gov Identifier: NCT01912014
Masculinity and strokes: The Challenges Presented to Younger Men by Chronic Illness
Stroke is a major cause of disability in the Western world, changing not only to the victim's body but also his or her lifestyle. Men tend to experience stroke at a younger age than women. Most people understand stroke as a disease of the elderly, however, this study looks at the effects of stroke on the young adult male. Adolescence, and young- and middle-adulthood are the periods in which the intergenerational dialectics and the interactions be…
Staying Healthy From Fibromyalgia Is Ongoing Hard Work
Fibromyalgia syndrome (FMS) is a chronic musculoskeletal pain condition. Although studies have reported that some patients can become healthy again, little is known about what they tell about their lives after having FMS. In this study, we interviewed eight Norwegian women who had all recovered from FMS about their experiences when ill and subsequently being healthy. Inspired by narrative methods, we then conducted a thematic narrative analysis. …
Factors impacting the illness trajectory of post-infectious fatigue syndrome: A qualitative study of adults’ experiences
Unmet needs may result in unnecessary disability and high societal and personal costs. Enhanced knowledge of impacting factors in each phase of the trajectory may contribute to more timely and tailored health care services and less use of health services. Increased functional capacity, improved health and ability to work or study may reduce the societal costs and the economic burden for the affected individuals
Exploring narratives of resilience among seven males living with spinal cord injury: A qualitative study
The findings of the present study show similarities to those of previous studies with regard to the participants' attribution of their resilience and wellbeing to their innate personal abilities and strong connection to their family and friends. In addition, the current participants provide enlightening nuances and depth that expand our understanding of the construct of resilience by highlighting the importance of continuously exerting agency, wi…
Promoting psychosocial well-being following stroke: Study protocol for a randomized, controlled trial
NCT02338869 ; registered 10/04/2014 (On-going trial)
How patient and community involvement in diabetes research influences health outcomes: A realist review
The General Health Questionnaire-28 (GHQ-28) as an outcome measurement in a randomized controlled trial in a Norwegian stroke population
ClinicalTrials.gov, NCT02338869 , registered 10/04/2014
Finding the Way Forward: The Lived Experience of People With Stroke After Participation in a Complex Psychosocial Intervention
Stroke patients' well-being is threatened after stroke. A psychosocial intervention was developed for Norwegian stroke patients living in the community. Eight individual sessions between people with stroke and a trained health care professional were conducted 1 to 6 months post-stroke with one group of participants and 6 to 12 months post-stroke with another group. Subsequently, 19 of these stroke patients were interviewed to gain an in-depth und…
Community‐based dementia care re‐defined: Lessons from Iceland
Studies of families caring for persons with dementia living at home often reflect feelings of being forgotten and abandoned by the authorities to shoulder the responsibility for care-giving. This has increased interest in how formal services can better support these families. This article analyses how health and social care professionals envision the needs of families of persons with dementia living in the community. It also describes the contrib…
Users' Perspectives on the Organization of Rehabilitation Services – A Focus Group Study of User Organization Representatives in Norway
BACKGROUND: User organizations for people with disabilities in Norway work for social equality and participation, and quality of health services for people with disabilities, chronic illnesses and reduced functional capacity. Consideration of the experiences from user representatives is necessary when determining the quality and appropriateness of the rehabilitation services. Rehabilitation services constitute the provision and delivery of intang…
What is helpful in everyday living with dementia at home? Learning from families’ diverse scenarios
As the population ages and the prevalence of dementia increases, caring for a relative living at home with dementia has become a reality for many families worldwide. Studies have shown that families are confronted with diverse difficulties as they try to address the challenges involved in providing care. By understanding how they manage daily life, formal service providers become better equipped to meet the diverse needs of these families. Learni…
This Disease Is a Verdict You Must Live With for the Rest of Your Life: Experiences and Perspectives From People Living With Adult-Onset Myotonic Dystrophy Type 1
Myotonic dystrophy type 1 (DM1) is a progressive, multisystemic neuromuscular disease. DM1 has a biopsychosocial impact, causing physical and cognitive impairment and limitations in activity and participation as well as having social consequences. The aim of our study was to investigate experiences of and perspectives on living and coping with adult-onset DM1 to inform future targeted rehabilitation services. We conducted semi-structured individu…
Psychology (22 works) · Medicine (19 works) · Sociology (12 works) · Qualitative research (11 works) · Psychiatry (10 works) · Political science (9 works) · Gerontology (8 works) · Nursing (8 works) · Computer Science (7 works) · Social Psychology (7 works)