Laura E Navne
Biographic Data
| ID | 130990 |
|---|---|
| NAME | Laura E Navne |
| GIVEN NAMES | Laura E |
| FAMILY NAME | Navne |
| SIGNATURE | NAVNE L E |
| AFFILIATIONS | VIVE - The Danish Center for Social Science Research |
| ORCID | 0000-0001-8996-3222 |
| VERIFIED | Yes |
| TOTAL WORKS | 14 |
| TOTAL CITATIONS | 60 |
| AUTHOR COUNT | 14 |
| EDITOR COUNT | 0 |
| FIRST PUBLICATION YEAR | 2017 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 4 |
Introduction to the special issue: The Near Human in life science, biomedicine, and care
cells become humanized through socio-material practices (e.g
Whole genome, part population: Protection, representation and postcolonial politics in precision medicine
The Best I Could: Future Orientations for Danish Women with Gestational Diabetes
The introduction of personalized medicine marks a shift in pregnancy-related screening, from fetal to maternal health risks putting the pregnant woman's future orientations center stage. Drawing on fieldwork from pregnancy outpatient clinics and 11 interviews with pregnant women diagnosed with gestational diabetes and offered genetic testing, we use their experiences of time to explore how futurity is reshaped by notions of early detection and at…
Citizen-Person: The "Me" in the "We" in Danish Precision Medicine
The genome has become a crucial component in precision medicine aimed at tailoring medical treatment to the individual. To the extent that social science studies of genomics have explored questions related to the individual, these studies have focused on how the governance regarding genomes facilitates individuals' rights, choices, and responsibilities. By contrast, we approach genomic governance by investigating how enactments of the person in p…
Making Sense of New Disease Categories: Naming, Spatialising, and Serialising in Genomic Medicine
Intrigued by geneticists' framing of new gene names as somehow devoid of meaning, I set out to explore how patients and families make sense of naming practices in the field of genomic medicine. The aim for ever-more precise disease categorisation has resulted in names for medical conditions that are more akin to car-licence plates, such as DPF2 and G246A. Conducting fieldwork in Denmark, I followed the introduction of personalised medicine-that i…
Good conduct in a context of rationing: A case study of how frontline professionals deal with distributive dilemmas of novel gene therapies
Classical dilemmas of how to distribute limited resources have been rekindled by the rise of advanced, high-cost therapies. Building on a case study of a novel gene therapy in neuropaediatric care, this article explores the dilemmas that explicit priority setting can create for frontline professionals and develops a typology of professionals' responses to these dilemmas. Despite political attempts to centralise priority setting and spare health p…
Moral Ambiguities: Fleshy and Digital Substitutes in the Life Sciences: Personhood
De novo kin: Sharing Data, Shielding Persons, and Forging Relatedness in Precision Medicine
Comparing, sharing, and shielding children's biological and biographical data in genetic databases and on Facebook are central moves when geneticists and families search for diagnoses for children with rare diseases. Based on ethnographic fieldwork in Denmark, we show that the work of linking children carrying the same genetic mutations forges new sibling-like forms of relatedness between them. With the concept of 'datasociality', we add new laye…
Child Abandonment and Anonymous Surrendering of Babies: Experiences in Ten High-income Countries
In 2017 the Danish Parliament considered introducing baby hatches in Denmark and asked the authors to investigate the extent and causes of child abandonment and various practices and services in relation to prevention of child abandonment in Denmark and other high-income countries. We conducted a literature study and interviewed experts from Denmark, Sweden, Norway, Germany, the Netherlands, France, Poland, Austria, the UK, and the US. In additio…
Life-and-Death Decisions in a Neonatal Intensive Care Unit in Denmark: The Discrete Authority of Origin Stories
In what ways are care and compassion implicated in efforts to establish lives worth living? Drawing on fieldwork in a Danish Neonatal Intensive Care Unit (NICU), in this article we investigate the role of family biographies in conducting life-and-death decisions around premature infants. Guided by a larger literature on citizenship, we view decisions in the NICU as political acts of assigning citizenship. We ask what bodies and biographies can ge…
The Attachment Imperative: Parental Experiences of Relation-making in a Danish Neonatal Intensive Care Unit
In this article, we explore how parents establish relations with extremely premature infants whose lives and futures are uncertain. Drawing on ethnographic fieldwork in a Danish Neonatal Intensive Care Unit (NICU), we engage recent discussions of the limits of conventional anthropological thinking on social relations and point to the productive aspects of practices of distance and detachment. We show that while the NICU upholds an imperative of a…
A life worth living: Temporality, care, and personhood in the Danish welfare state
Caregiving can be conceptualized as involving practices of substitution, in which doctors, nurses, and health assistants step into the subject positions of their charges in order to sustain their personhood and compensate for their reduced capacities. Fieldwork in Denmark at three sites-a neonatal intensive care unit, a research laboratory using piglets as animal models, and a dementia nursing home-shows that temporality is a key component in sub…
Careography: Staff Experiences of Navigating Decisions in Neonatology in Denmark
In this article, we explore medical doctors' moral experiences of being responsible for decisions on the lives and sometimes deaths of infants in a Danish Neonatal Intensive Care Unit (NICU). Drawing on fieldwork, we investigate how clinicians navigate the tension between exercising medical authority and enabling parental involvement in decisions. Introducing the term "careography", we call attention to how the doctors steer this tension through …
Humanity at the Edge: The Moral Laboratory of Feeding Precarious Lives
A life worth living: Temporality, care, and personhood in the Danish welfare state
Caregiving can be conceptualized as involving practices of substitution, in which doctors, nurses, and health assistants step into the subject positions of their charges in order to sustain their personhood and compensate for their reduced capacities. Fieldwork in Denmark at three sites-a neonatal intensive care unit, a research laboratory using piglets as animal models, and a dementia nursing home-shows that temporality is a key component in sub…
Careography: Staff Experiences of Navigating Decisions in Neonatology in Denmark
In this article, we explore medical doctors' moral experiences of being responsible for decisions on the lives and sometimes deaths of infants in a Danish Neonatal Intensive Care Unit (NICU). Drawing on fieldwork, we investigate how clinicians navigate the tension between exercising medical authority and enabling parental involvement in decisions. Introducing the term "careography", we call attention to how the doctors steer this tension through …
Good conduct in a context of rationing: A case study of how frontline professionals deal with distributive dilemmas of novel gene therapies
Classical dilemmas of how to distribute limited resources have been rekindled by the rise of advanced, high-cost therapies. Building on a case study of a novel gene therapy in neuropaediatric care, this article explores the dilemmas that explicit priority setting can create for frontline professionals and develops a typology of professionals' responses to these dilemmas. Despite political attempts to centralise priority setting and spare health p…
The Attachment Imperative: Parental Experiences of Relation-making in a Danish Neonatal Intensive Care Unit
In this article, we explore how parents establish relations with extremely premature infants whose lives and futures are uncertain. Drawing on ethnographic fieldwork in a Danish Neonatal Intensive Care Unit (NICU), we engage recent discussions of the limits of conventional anthropological thinking on social relations and point to the productive aspects of practices of distance and detachment. We show that while the NICU upholds an imperative of a…
Life-and-Death Decisions in a Neonatal Intensive Care Unit in Denmark: The Discrete Authority of Origin Stories
In what ways are care and compassion implicated in efforts to establish lives worth living? Drawing on fieldwork in a Danish Neonatal Intensive Care Unit (NICU), in this article we investigate the role of family biographies in conducting life-and-death decisions around premature infants. Guided by a larger literature on citizenship, we view decisions in the NICU as political acts of assigning citizenship. We ask what bodies and biographies can ge…
Citizen-Person: The "Me" in the "We" in Danish Precision Medicine
The genome has become a crucial component in precision medicine aimed at tailoring medical treatment to the individual. To the extent that social science studies of genomics have explored questions related to the individual, these studies have focused on how the governance regarding genomes facilitates individuals' rights, choices, and responsibilities. By contrast, we approach genomic governance by investigating how enactments of the person in p…
Making Sense of New Disease Categories: Naming, Spatialising, and Serialising in Genomic Medicine
Intrigued by geneticists' framing of new gene names as somehow devoid of meaning, I set out to explore how patients and families make sense of naming practices in the field of genomic medicine. The aim for ever-more precise disease categorisation has resulted in names for medical conditions that are more akin to car-licence plates, such as DPF2 and G246A. Conducting fieldwork in Denmark, I followed the introduction of personalised medicine-that i…
De novo kin: Sharing Data, Shielding Persons, and Forging Relatedness in Precision Medicine
Comparing, sharing, and shielding children's biological and biographical data in genetic databases and on Facebook are central moves when geneticists and families search for diagnoses for children with rare diseases. Based on ethnographic fieldwork in Denmark, we show that the work of linking children carrying the same genetic mutations forges new sibling-like forms of relatedness between them. With the concept of 'datasociality', we add new laye…
The Best I Could: Future Orientations for Danish Women with Gestational Diabetes
The introduction of personalized medicine marks a shift in pregnancy-related screening, from fetal to maternal health risks putting the pregnant woman's future orientations center stage. Drawing on fieldwork from pregnancy outpatient clinics and 11 interviews with pregnant women diagnosed with gestational diabetes and offered genetic testing, we use their experiences of time to explore how futurity is reshaped by notions of early detection and at…
Humanity at the Edge: The Moral Laboratory of Feeding Precarious Lives
The Attachment Imperative: Parental Experiences of Relation-making in a Danish Neonatal Intensive Care Unit
In this article, we explore how parents establish relations with extremely premature infants whose lives and futures are uncertain. Drawing on ethnographic fieldwork in a Danish Neonatal Intensive Care Unit (NICU), we engage recent discussions of the limits of conventional anthropological thinking on social relations and point to the productive aspects of practices of distance and detachment. We show that while the NICU upholds an imperative of a…
A life worth living: Temporality, care, and personhood in the Danish welfare state
Caregiving can be conceptualized as involving practices of substitution, in which doctors, nurses, and health assistants step into the subject positions of their charges in order to sustain their personhood and compensate for their reduced capacities. Fieldwork in Denmark at three sites-a neonatal intensive care unit, a research laboratory using piglets as animal models, and a dementia nursing home-shows that temporality is a key component in sub…
Careography: Staff Experiences of Navigating Decisions in Neonatology in Denmark
In this article, we explore medical doctors' moral experiences of being responsible for decisions on the lives and sometimes deaths of infants in a Danish Neonatal Intensive Care Unit (NICU). Drawing on fieldwork, we investigate how clinicians navigate the tension between exercising medical authority and enabling parental involvement in decisions. Introducing the term "careography", we call attention to how the doctors steer this tension through …
Life-and-Death Decisions in a Neonatal Intensive Care Unit in Denmark: The Discrete Authority of Origin Stories
In what ways are care and compassion implicated in efforts to establish lives worth living? Drawing on fieldwork in a Danish Neonatal Intensive Care Unit (NICU), in this article we investigate the role of family biographies in conducting life-and-death decisions around premature infants. Guided by a larger literature on citizenship, we view decisions in the NICU as political acts of assigning citizenship. We ask what bodies and biographies can ge…
Child Abandonment and Anonymous Surrendering of Babies: Experiences in Ten High-income Countries
In 2017 the Danish Parliament considered introducing baby hatches in Denmark and asked the authors to investigate the extent and causes of child abandonment and various practices and services in relation to prevention of child abandonment in Denmark and other high-income countries. We conducted a literature study and interviewed experts from Denmark, Sweden, Norway, Germany, the Netherlands, France, Poland, Austria, the UK, and the US. In additio…
Moral Ambiguities: Fleshy and Digital Substitutes in the Life Sciences: Personhood
De novo kin: Sharing Data, Shielding Persons, and Forging Relatedness in Precision Medicine
Comparing, sharing, and shielding children's biological and biographical data in genetic databases and on Facebook are central moves when geneticists and families search for diagnoses for children with rare diseases. Based on ethnographic fieldwork in Denmark, we show that the work of linking children carrying the same genetic mutations forges new sibling-like forms of relatedness between them. With the concept of 'datasociality', we add new laye…
Citizen-Person: The "Me" in the "We" in Danish Precision Medicine
The genome has become a crucial component in precision medicine aimed at tailoring medical treatment to the individual. To the extent that social science studies of genomics have explored questions related to the individual, these studies have focused on how the governance regarding genomes facilitates individuals' rights, choices, and responsibilities. By contrast, we approach genomic governance by investigating how enactments of the person in p…
Making Sense of New Disease Categories: Naming, Spatialising, and Serialising in Genomic Medicine
Intrigued by geneticists' framing of new gene names as somehow devoid of meaning, I set out to explore how patients and families make sense of naming practices in the field of genomic medicine. The aim for ever-more precise disease categorisation has resulted in names for medical conditions that are more akin to car-licence plates, such as DPF2 and G246A. Conducting fieldwork in Denmark, I followed the introduction of personalised medicine-that i…
Good conduct in a context of rationing: A case study of how frontline professionals deal with distributive dilemmas of novel gene therapies
Classical dilemmas of how to distribute limited resources have been rekindled by the rise of advanced, high-cost therapies. Building on a case study of a novel gene therapy in neuropaediatric care, this article explores the dilemmas that explicit priority setting can create for frontline professionals and develops a typology of professionals' responses to these dilemmas. Despite political attempts to centralise priority setting and spare health p…
The Best I Could: Future Orientations for Danish Women with Gestational Diabetes
The introduction of personalized medicine marks a shift in pregnancy-related screening, from fetal to maternal health risks putting the pregnant woman's future orientations center stage. Drawing on fieldwork from pregnancy outpatient clinics and 11 interviews with pregnant women diagnosed with gestational diabetes and offered genetic testing, we use their experiences of time to explore how futurity is reshaped by notions of early detection and at…
Whole genome, part population: Protection, representation and postcolonial politics in precision medicine
Introduction to the special issue: The Near Human in life science, biomedicine, and care
cells become humanized through socio-material practices (e.g
Law (7 works) · Medicine (7 works) · Political science (7 works) · Sociology (7 works) · Psychology (6 works) · Danish (5 works) · Philosophy (5 works) · Biomedical Ethics and Regulation (4 works) · Law (4 works) · Politics (4 works)