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Stephanie R Carroll

Biographic Data

ID139132
NAMEStephanie R Carroll
GIVEN NAMESStephanie R
FAMILY NAMECarroll
SIGNATURECARROLL S R
AFFILIATIONSUniversity of Arizona
ORCID0000-0002-8996-8071
VERIFIEDYes
TOTAL WORKS19
TOTAL CITATIONS24
AUTHOR COUNT19
EDITOR COUNT0
FIRST PUBLICATION YEAR2019
LATEST PUBLICATION YEAR2026
H-INDEX3
  • Unearthing Indigenous Seed Collections

    Open Access•Charlotte Dawson, Jewel Cummins et al.•ARTICLE•Advances in Archaeological Practice•2026

    Indigenous communities and scholars are calling for archaeologists and museum professionals to critically assess stewardship of Indigenous agricultural seeds and ethnobotanical collections housed in museums and other institutions and the rematriation of these important cultural items. Indigenous seeds retain cultural and religious significance along with diverse genetic information that could help revitalize Indigenous agriculture systems. Many s…

  • Positive childhood experiences and mental health among Indigenous peoples

    Marlaina Maddux, Nicole P Yuan et al.•ARTICLE•Psychological Trauma Theory…•2026

    Current research suggested that PCEs serve as multisystemic pathways to supporting Indigenous well-being. PCEs are relevant to strengths and resilience-focused programs that promote the health and well-being of Indigenous Peoples. (PsycInfo Database Record (c) 2026 APA, all rights reserved)

  • Reaffirming Indigenous data sovereignty in New Mexico as a result of Covid-19

    Open Access•William O Carson, Felina M Cordova-Marks et al.•ARTICLE•Frontiers in Public Health•2025

    Despite New Mexico’s history of working with and enhancing collaboration with the 23 Tribes in the state, data sharing and collaboration with Tribes was poor during the COVID-19 pandemic. New Mexico’s policies of state collaboration with Tribes conflicts with the principles of Indigenous Data Sovereignty and fails to recognize Tribal public health authorities. New Mexico state agencies limited what data Tribes and Tribal Organizations received, r…

  • Evaluating Indigenous Identity and Stress as Potential Barriers to Accessing On-Campus Healthcare for Indigenous Students at a Large Southwestern University

    Open Access•William O Carson, Michelle Valenti et al.•ARTICLE•International Journal of…•2025

    The research findings offer many promising avenues for future work around Indigenous identity, affordability of healthcare, and importance of health literacy

  • Invisible women

    Open Access•Bailey Lockwood, Heather J Williamson et al.•ARTICLE•Critical Public Health•2025

    Public health authorities recognize the need for more robust data systems to characterize health inequities, particularly among those with intersectional identities (National Center for Health Statistics, 2023). Currently, it is difficult to describe the health outcomes of Native American women with intellectual and/or developmental disabilities (I/DD), a population for whom key demographic information is unavailable. In this qualitative study, w…

  • The UN Declaration on the Rights of Indigenous Peoples and Genomics

    Open Access•Ibrahim Garba, Stephanie R Carroll•ARTICLE•The Hastings Center Report•2024

    Governance of biomedical research in the United States has been characterized by ethical individualism, a mode of reasoning that treats the individual person as the center of moral concern and analysis. However, genomics research raises ethics issues that uniquely affect certain genetically related communities as collectives, not merely as aggregates of individuals. This is especially true of identifiable populations—including Indigenous Peoples—…

  • A values-centered relational science model

    Open Access•Dominique M David-Chavez, Dominique David-Chavez et al.•ARTICLE•Conservation Ecology•2024•Cited by: 3

    Addressing complex social-ecological issues requires all relevant sources of knowledge and data, especially those held by communities who remain close to the land. Centuries of oppression, extractive research practices, and misrepresentation have hindered balanced knowledge exchange with Indigenous communities and inhibited innovation and problem-solving capacity in all scientific fields. A recent shift in the research landscape reflects a growin…

  • Life and times of data access

    Open Access•Joseph P Brewer, Stephanie R Carroll et al.•ARTICLE•Environment and Planning F•2023

    It is challenging to understand the full and detailed story of Native People’s lands in the United States. In this article, we contend that reliable and accessible data regarding Native People’s lands complicate and perpetuate those challenges. Stemming from the implications of colonial ideologies, such as the General Allotment Act of 1887, Native Peoples’ land-based data are difficult to access for Tribal Nations and researchers. Land data have …

  • Reclaiming Indigenous Health in the US

    Open Access•Stephanie R Carroll, Michele Suina et al.•ARTICLE•International Journal of…•2022

    The lack of literature on Indigenous conceptions of health and the social determinants of health (SDH) for US Indigenous communities limits available information for Indigenous nations as they set policy and allocate resources to improve the health of their citizens. In 2015, eight scholars from tribal communities and mainstream educational institutions convened to examine: the limitations of applying the World Health Organization's (WHO) SDH fra…

  • Archaeology and Social Justice in Native America

    Open Access•Nicholas C Laluk, L M Montgomery et al.•ARTICLE•American Antiquity•2022•Cited by: 15•References: 66

    Over the past 20 years, collaboration has become an essential aspect of archaeological practice in North America. In paying increased attention to the voices of descendant and local communities, archaeologists have become aware of the persistent injustices these often marginalized groups face. Building on growing calls for a responsive and engaged cultural heritage praxis, this forum article brings together a group of Native and non-Native schola…

  • Operationalizing the Care and Fair Principles for Indigenous data futures

    Open Access•Stephanie R Carroll, Edit Herczog et al.•ARTICLE•Scientific Data•2021

    This discussion emerged from two joint, virtual conference sessions that integrated parallel processes at the Research Data Alliance (RDA): “Operationalising Be FAIR and CARE” ( https://www.rd-alliance.org/operationalising-be-fair-and-care ) and “Implementing the CARE Principles: The CARE-full Process” ( https://www.rd-alliance.org/implementing-care-principles-care-full-process ). The FAIR Data Maturity Model Working Group, hosted by the Research…

  • Case Report

    Open Access•Danielle Hiraldo, Kyra James et al.•ARTICLE•Frontiers in Sociology•2021•Cited by: 2•References: 3

    Indigenous Peoples globally and in the United States have combatted and continue to face disease, genocide, and erasure, often the systemic result of settler colonial policies that seek to eradicate Indigenous communities. Many Native nations in the United States have asserted their inherent sovereign authority to protect their citizens by passing tribal public health and emergency codes to support their public health infrastructures. While the c…

  • Indigenous Peoples' Data During Covid-19

    Open Access•Stephanie R Carroll, Randall Akee et al.•ARTICLE•Frontiers in Sociology•2021•Cited by: 3•References: 3

    Global disease trackers quantifying the size, spread, and distribution of COVID-19 illustrate the power of data during the pandemic. Data are required for decision-making, planning, mitigation, surveillance, and monitoring the equity of responses. There are dual concerns about the availability and suppression of COVID-19 data; due to historic and ongoing racism and exclusion, publicly available data can be both beneficial and harmful. Systemic po…

  • The Care Principles for Indigenous Data Governance

    Open Access•Stephanie R Carroll, Ibrahim Garba et al.•ARTICLE•Data Science Journal•2020

    Concerns about secondary use of data and limited opportunities for benefit-sharing have focused attention on the tension that Indigenous communities feel between (1) protecting Indigenous rights and interests in Indigenous data (including traditional knowledges) and (2) supporting open data, machine learning, broad data sharing, and big data initiatives. The International Indigenous Data Sovereignty Interest Group (within the Research Data Allian…

  • Indigenous Data Sovereignty and Policy

    M Walter, Desi Rodriguez-Lonebear et al.•BOOK•Indigenous Data Sovereignty and…•2020

  • Tools to Promote Equity and Best Practices

    Open Access•Randall Akee, Stephanie R Carroll et al.•ARTICLE•American Indian Culture and…•2020

    This is the second volume of a two-volume special issue of the American Indian Culture and Research Journal dedicated to the indirect impact of COVID-19 on Indigenous Peoples. The first, 44.2, reports on COVID-19’s extensive impact on Indigenous Peoples and the resulting variety of responses at community and local levels. This second volume, 44.3, provides specific research and insights for improving reporting, identification, and prevention of C…

  • Introduction

    Open Access•Randall Akee, Stephanie R Carroll et al.•ARTICLE•American Indian Culture and…•2020•Cited by: 1

    In a two-volume, special edition, AICRJ volume 44, issues 2 and 3, we examine COVID-19’s unique implications for Indigenous Peoples, nations, and communities. Within the United States, African Americans, Hispanics, and American Indians have experienced substantially higher levels of COVID-19 infection and death. The impact of COVID-19 on Indigenous Peoples residing in other countries differs according to the overall national strategy for dealing …

  • Indigenous Data Governance

    Open Access•Stephanie R Carroll, Desi Rodriguez-Lonebear et al.•ARTICLE•Data Science Journal•2019

    Data have become the new global currency, and a powerful force in making decisions and wielding power. As the world engages with open data, big data reuse, and data linkage, what do data-driven futures look like for communities plagued by data inequities? Indigenous data stakeholders and non-Indigenous allies have explored this question over the last three years in a series of meetings through the Research Data Alliance (RDA). Drawing on RDA and …

  • Access and Management

    Open Access•Nanibaa’ A Garrison, Krysta S Barton et al.•ARTICLE•Ethnicity & Disease•2019

    As genomic researchers are encouraged to engage in broad genomic data sharing, American Indian/Alaska Native/Native Hawaiian (AI/AN/NH) leaders have raised questions about ownership of data and biospecimens and concerns over emerging challenges and potential threats to tribal sovereignty. Using a community-engaged research approach, we conducted 42 semi-structured interviews with tribal leaders, clinicians, researchers, policy makers, and tribal …

  • Archaeology and Social Justice in Native America

    Open Access•Nicholas C Laluk, L M Montgomery et al.•ARTICLE•American Antiquity•2022•Cited by: 15•References: 66

    Over the past 20 years, collaboration has become an essential aspect of archaeological practice in North America. In paying increased attention to the voices of descendant and local communities, archaeologists have become aware of the persistent injustices these often marginalized groups face. Building on growing calls for a responsive and engaged cultural heritage praxis, this forum article brings together a group of Native and non-Native schola…

  • A values-centered relational science model

    Open Access•Dominique M David-Chavez, Dominique David-Chavez et al.•ARTICLE•Conservation Ecology•2024•Cited by: 3

    Addressing complex social-ecological issues requires all relevant sources of knowledge and data, especially those held by communities who remain close to the land. Centuries of oppression, extractive research practices, and misrepresentation have hindered balanced knowledge exchange with Indigenous communities and inhibited innovation and problem-solving capacity in all scientific fields. A recent shift in the research landscape reflects a growin…

  • Indigenous Peoples' Data During Covid-19

    Open Access•Stephanie R Carroll, Randall Akee et al.•ARTICLE•Frontiers in Sociology•2021•Cited by: 3•References: 3

    Global disease trackers quantifying the size, spread, and distribution of COVID-19 illustrate the power of data during the pandemic. Data are required for decision-making, planning, mitigation, surveillance, and monitoring the equity of responses. There are dual concerns about the availability and suppression of COVID-19 data; due to historic and ongoing racism and exclusion, publicly available data can be both beneficial and harmful. Systemic po…

  • Case Report

    Open Access•Danielle Hiraldo, Kyra James et al.•ARTICLE•Frontiers in Sociology•2021•Cited by: 2•References: 3

    Indigenous Peoples globally and in the United States have combatted and continue to face disease, genocide, and erasure, often the systemic result of settler colonial policies that seek to eradicate Indigenous communities. Many Native nations in the United States have asserted their inherent sovereign authority to protect their citizens by passing tribal public health and emergency codes to support their public health infrastructures. While the c…

  • Introduction

    Open Access•Randall Akee, Stephanie R Carroll et al.•ARTICLE•American Indian Culture and…•2020•Cited by: 1

    In a two-volume, special edition, AICRJ volume 44, issues 2 and 3, we examine COVID-19’s unique implications for Indigenous Peoples, nations, and communities. Within the United States, African Americans, Hispanics, and American Indians have experienced substantially higher levels of COVID-19 infection and death. The impact of COVID-19 on Indigenous Peoples residing in other countries differs according to the overall national strategy for dealing …

  • Indigenous Data Governance

    Open Access•Stephanie R Carroll, Desi Rodriguez-Lonebear et al.•ARTICLE•Data Science Journal•2019

    Data have become the new global currency, and a powerful force in making decisions and wielding power. As the world engages with open data, big data reuse, and data linkage, what do data-driven futures look like for communities plagued by data inequities? Indigenous data stakeholders and non-Indigenous allies have explored this question over the last three years in a series of meetings through the Research Data Alliance (RDA). Drawing on RDA and …

  • Access and Management

    Open Access•Nanibaa’ A Garrison, Krysta S Barton et al.•ARTICLE•Ethnicity & Disease•2019

    As genomic researchers are encouraged to engage in broad genomic data sharing, American Indian/Alaska Native/Native Hawaiian (AI/AN/NH) leaders have raised questions about ownership of data and biospecimens and concerns over emerging challenges and potential threats to tribal sovereignty. Using a community-engaged research approach, we conducted 42 semi-structured interviews with tribal leaders, clinicians, researchers, policy makers, and tribal …

  • The Care Principles for Indigenous Data Governance

    Open Access•Stephanie R Carroll, Ibrahim Garba et al.•ARTICLE•Data Science Journal•2020

    Concerns about secondary use of data and limited opportunities for benefit-sharing have focused attention on the tension that Indigenous communities feel between (1) protecting Indigenous rights and interests in Indigenous data (including traditional knowledges) and (2) supporting open data, machine learning, broad data sharing, and big data initiatives. The International Indigenous Data Sovereignty Interest Group (within the Research Data Allian…

  • Indigenous Data Sovereignty and Policy

    M Walter, Desi Rodriguez-Lonebear et al.•BOOK•Indigenous Data Sovereignty and…•2020

  • Tools to Promote Equity and Best Practices

    Open Access•Randall Akee, Stephanie R Carroll et al.•ARTICLE•American Indian Culture and…•2020

    This is the second volume of a two-volume special issue of the American Indian Culture and Research Journal dedicated to the indirect impact of COVID-19 on Indigenous Peoples. The first, 44.2, reports on COVID-19’s extensive impact on Indigenous Peoples and the resulting variety of responses at community and local levels. This second volume, 44.3, provides specific research and insights for improving reporting, identification, and prevention of C…

  • Introduction

    Open Access•Randall Akee, Stephanie R Carroll et al.•ARTICLE•American Indian Culture and…•2020•Cited by: 1

    In a two-volume, special edition, AICRJ volume 44, issues 2 and 3, we examine COVID-19’s unique implications for Indigenous Peoples, nations, and communities. Within the United States, African Americans, Hispanics, and American Indians have experienced substantially higher levels of COVID-19 infection and death. The impact of COVID-19 on Indigenous Peoples residing in other countries differs according to the overall national strategy for dealing …

  • Operationalizing the Care and Fair Principles for Indigenous data futures

    Open Access•Stephanie R Carroll, Edit Herczog et al.•ARTICLE•Scientific Data•2021

    This discussion emerged from two joint, virtual conference sessions that integrated parallel processes at the Research Data Alliance (RDA): “Operationalising Be FAIR and CARE” ( https://www.rd-alliance.org/operationalising-be-fair-and-care ) and “Implementing the CARE Principles: The CARE-full Process” ( https://www.rd-alliance.org/implementing-care-principles-care-full-process ). The FAIR Data Maturity Model Working Group, hosted by the Research…

  • Case Report

    Open Access•Danielle Hiraldo, Kyra James et al.•ARTICLE•Frontiers in Sociology•2021•Cited by: 2•References: 3

    Indigenous Peoples globally and in the United States have combatted and continue to face disease, genocide, and erasure, often the systemic result of settler colonial policies that seek to eradicate Indigenous communities. Many Native nations in the United States have asserted their inherent sovereign authority to protect their citizens by passing tribal public health and emergency codes to support their public health infrastructures. While the c…

  • Indigenous Peoples' Data During Covid-19

    Open Access•Stephanie R Carroll, Randall Akee et al.•ARTICLE•Frontiers in Sociology•2021•Cited by: 3•References: 3

    Global disease trackers quantifying the size, spread, and distribution of COVID-19 illustrate the power of data during the pandemic. Data are required for decision-making, planning, mitigation, surveillance, and monitoring the equity of responses. There are dual concerns about the availability and suppression of COVID-19 data; due to historic and ongoing racism and exclusion, publicly available data can be both beneficial and harmful. Systemic po…

  • Reclaiming Indigenous Health in the US

    Open Access•Stephanie R Carroll, Michele Suina et al.•ARTICLE•International Journal of…•2022

    The lack of literature on Indigenous conceptions of health and the social determinants of health (SDH) for US Indigenous communities limits available information for Indigenous nations as they set policy and allocate resources to improve the health of their citizens. In 2015, eight scholars from tribal communities and mainstream educational institutions convened to examine: the limitations of applying the World Health Organization's (WHO) SDH fra…

  • Archaeology and Social Justice in Native America

    Open Access•Nicholas C Laluk, L M Montgomery et al.•ARTICLE•American Antiquity•2022•Cited by: 15•References: 66

    Over the past 20 years, collaboration has become an essential aspect of archaeological practice in North America. In paying increased attention to the voices of descendant and local communities, archaeologists have become aware of the persistent injustices these often marginalized groups face. Building on growing calls for a responsive and engaged cultural heritage praxis, this forum article brings together a group of Native and non-Native schola…

  • Life and times of data access

    Open Access•Joseph P Brewer, Stephanie R Carroll et al.•ARTICLE•Environment and Planning F•2023

    It is challenging to understand the full and detailed story of Native People’s lands in the United States. In this article, we contend that reliable and accessible data regarding Native People’s lands complicate and perpetuate those challenges. Stemming from the implications of colonial ideologies, such as the General Allotment Act of 1887, Native Peoples’ land-based data are difficult to access for Tribal Nations and researchers. Land data have …

  • The UN Declaration on the Rights of Indigenous Peoples and Genomics

    Open Access•Ibrahim Garba, Stephanie R Carroll•ARTICLE•The Hastings Center Report•2024

    Governance of biomedical research in the United States has been characterized by ethical individualism, a mode of reasoning that treats the individual person as the center of moral concern and analysis. However, genomics research raises ethics issues that uniquely affect certain genetically related communities as collectives, not merely as aggregates of individuals. This is especially true of identifiable populations—including Indigenous Peoples—…

  • A values-centered relational science model

    Open Access•Dominique M David-Chavez, Dominique David-Chavez et al.•ARTICLE•Conservation Ecology•2024•Cited by: 3

    Addressing complex social-ecological issues requires all relevant sources of knowledge and data, especially those held by communities who remain close to the land. Centuries of oppression, extractive research practices, and misrepresentation have hindered balanced knowledge exchange with Indigenous communities and inhibited innovation and problem-solving capacity in all scientific fields. A recent shift in the research landscape reflects a growin…

  • Reaffirming Indigenous data sovereignty in New Mexico as a result of Covid-19

    Open Access•William O Carson, Felina M Cordova-Marks et al.•ARTICLE•Frontiers in Public Health•2025

    Despite New Mexico’s history of working with and enhancing collaboration with the 23 Tribes in the state, data sharing and collaboration with Tribes was poor during the COVID-19 pandemic. New Mexico’s policies of state collaboration with Tribes conflicts with the principles of Indigenous Data Sovereignty and fails to recognize Tribal public health authorities. New Mexico state agencies limited what data Tribes and Tribal Organizations received, r…

  • Evaluating Indigenous Identity and Stress as Potential Barriers to Accessing On-Campus Healthcare for Indigenous Students at a Large Southwestern University

    Open Access•William O Carson, Michelle Valenti et al.•ARTICLE•International Journal of…•2025

    The research findings offer many promising avenues for future work around Indigenous identity, affordability of healthcare, and importance of health literacy

  • Invisible women

    Open Access•Bailey Lockwood, Heather J Williamson et al.•ARTICLE•Critical Public Health•2025

    Public health authorities recognize the need for more robust data systems to characterize health inequities, particularly among those with intersectional identities (National Center for Health Statistics, 2023). Currently, it is difficult to describe the health outcomes of Native American women with intellectual and/or developmental disabilities (I/DD), a population for whom key demographic information is unavailable. In this qualitative study, w…

  • Unearthing Indigenous Seed Collections

    Open Access•Charlotte Dawson, Jewel Cummins et al.•ARTICLE•Advances in Archaeological Practice•2026

    Indigenous communities and scholars are calling for archaeologists and museum professionals to critically assess stewardship of Indigenous agricultural seeds and ethnobotanical collections housed in museums and other institutions and the rematriation of these important cultural items. Indigenous seeds retain cultural and religious significance along with diverse genetic information that could help revitalize Indigenous agriculture systems. Many s…

  • Positive childhood experiences and mental health among Indigenous peoples

    Marlaina Maddux, Nicole P Yuan et al.•ARTICLE•Psychological Trauma Theory…•2026

    Current research suggested that PCEs serve as multisystemic pathways to supporting Indigenous well-being. PCEs are relevant to strengths and resilience-focused programs that promote the health and well-being of Indigenous Peoples. (PsycInfo Database Record (c) 2026 APA, all rights reserved)

Indigenous (18 works) · Political science (15 works) · Law (12 works) · Sociology (10 works) · Indigenous Health, Education, and Rights (9 works) · Sovereignty (9 works) · Medicine (7 works) · Politics (7 works) · Business (6 works) · Geography (6 works)

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