L Mikesell
Dados Biográficos
| ID | 14044 |
|---|---|
| NOME | L Mikesell |
| PRENOMES | L |
| SOBRENOME | Mikesell |
| ASSINATURA | MIKESELL L |
| AFILIAÇÕES | Rutgers, the State University of New Jersey |
| ORCID | 0000-0001-6410-2805 |
| VERIFICADO | Sim |
| TOTAL DE OBRAS | 18 |
| TOTAL DE CITAÇÕES | 52 |
| TOTAL COMO AUTOR | 18 |
| TOTAL COMO EDITOR | 0 |
| PRIMEIRO ANO DE PUBLICAÇÃO | 2009 |
| ANO MAIS RECENTE DE PUBLICAÇÃO | 2026 |
| ÍNDICE H | 5 |
The Limits of Digital Health for Primary Care Patients and Clinicians
Patient portals have the potential to both improve and harm patient-clinician partnerships by reshaping how health information is exchanged and how patients and providers communicate. Patients (n = 20) and primary care clinicians (n = 11) purposively sampled from clinics serving diverse New Jersey communities were interviewed. Patients distinguished two portal functions – linear information exchange and bidirectional communication – but did so in…
Incorporating the Culture-Centered Approach to Support Engagement of Minoritized Youth in Mental Health Communication Research
Patient Advocacy Group Leaders' Perceptions on Primary Care's Role in Caring for Patients With a History of Breast Cancer
BACKGROUND: Cancer advocacy groups engage patients, families and caregivers in navigating the cancer landscape, with a focus on early detection/screening and providing psychosocial and financial support during and after treatment. These groups are influential among their communities, funders and policymakers. OBJECTIVE: We wished to understand perceptions of breast cancer advocacy group leaders on primary care's role in breast cancer survivorship…
Exploring the Connectivity Paradox
Even before the widespread transition to telehealth as a result of COVID-19, there was a considerable amount of research exploring its value and impact. However, telehealth research with adolescent patients is somewhat limited, with most work focusing on access, feasibility, and acceptability but reporting far less frequently on relationship building and rapport. This study examines qualitative interviews with adolescent patients (n = 14) and par…
Healthcare Providers’ Impact on the Care Experiences of Patients with Endometriosis
Endometriosis is a chronic and often painful inflammatory disease affecting one in ten biological females. It has been characterized as enigmatic and the average diagnostic delay is nearly seven years, time which patients experience as tumultuous and uncertain. This paper presents responses to a final open comment question of a large-scale survey documenting patients’ experiences with (mis)diagnosis and highlights how patients perceived healthcar…
Exploring the Complexity of Telehealth Privacy Through a Lens of Adolescent Development
Many challenges exist related to ensuring adolescent privacy with health care providers (HCPs), and the rapid integration of telehealth visits has created additional complexities in organizing privacy for adolescents. Through interviews with adolescent patients and their parents ( n = 34), this qualitative analysis aimed to explore the complicated relationship and balance of adolescent alone time with HCPs, parental presence and support, and orga…
Turn-taking and the structural legitimization of bias
Ethics and Science in the Participatory Era
Participatory researchers rely on relationship-based ethical considerations to address ethical challenges, but little is known about how these considerations shape day-to-day decision-making. We presented vignettes describing ethical dilemmas to health researchers with varying degrees of experience in participatory research in an online modified-Delphi panel. Panelists rated potential solutions to dilemmas and provided rationales for choosing sol…
At the Intersection of Epistemics and Action
We examine I know as a responding action, showing that it claims to accept the grounds of the initiating action but either resists that action as unnecessary or endorses it, depending on the epistemic environment created by the initiating action. First, in responding to actions that presume an unknowing addressee (e.g., correcting, advising), speakers deploy I know to resist the action as unnecessary while accepting its grounds. Second, in respon…
Clinical Factors Associated with Successful Discharge from Assertive Community Treatment
Opposing orientations in interactions with individuals with Frontotemporal Dementia
Clinically, frontotemporal dementia (FTD) is described as primarily affecting personality and interpersonal conduct and resulting in social behavioral disruptions, thus often giving rise to interpersonal conflict. Conflict behavior in both typical and dementia populations is frequently identified as explicit physical and verbal acts such as assault, yelling or insulting, and research often situates conflict and collaboration as opposing dimension…
The Use of Directives to Repair Embodied (Mis)Understandings in Interactions with Individuals Diagnosed with Frontotemporal Dementia
This paper investigates caregivers’ use of directives to repair embodied engagements of individuals diagnosed with frontotemporal dementia. High entitlement/low contingency (HE/LC) formats (e.g., imperatives) are consistently employed to elicit an alternative engagement in a current course of action that is treated as required for the accomplishment of an ongoing activity. In selecting directive formats, caregivers appear to orient to whether the…
From Subject to Participant
Belmont Report principles focus on the well-being of the research subject, yet community-engaged investigators often eschew the role of subject for that of participant. We conducted semistructured interviews with 29 community and academic investigators working on 10 community-engaged studies. Interviews elicited perspectives on ethical priorities and ethical challenges. Interviewees drew on the Belmont Report to describe 4 key principles of ethic…
Flexibility and Structure May Enhance Implementation of Family-Focused Therapy in Community Mental Health Settings
Ethical Community-Engaged Research
Health research has relied on ethical principles, such as those of the Belmont Report, to protect the rights and well-being of research participants. Community-based participatory research (CBPR), however, must also consider the rights and well-being of communities. This requires additional ethical considerations that have been extensively discussed but not synthesized in the CBPR literature. We conducted a comprehensive thematic literature revie…
Patient Centered, Nurse Averse? Nurses' Care Experiences in a 21st-Century Hospital
Implementations of patient centeredness can vary tremendously across settings, yet we know little about how clinicians experience local interpretations of patient centeredness. In this article, we investigate nurses' experiences in a hospital designed to be patient centered in its emphasis on patient amenities and customer service. This environment altered nurses' articulation work by shifting the visibility of a number of nursing tasks; customer…
Repetitional responses in frontotemporal dementia discourse
Frontotemporal dementia (FTD) is a young-onset neurodegenerative dementia that primarily affects social behaviors. This paper examines the use of repetitional responses in FTD discourse, finding that patients often use repeats to assert agency or epistemic authority (i.e. to claim rights to knowledge). For example, repetitional responses are often used by patients to exert some autonomy when their interlocutors display a belief about the patients…
Conversational Practices of a Frontotemporal Dementia Patient and His Interlocutors
Frontotemporal dementia (FTD) is a dementia difficult to diagnose because, in the early stages, it leaves patients with intact cognitive functioning and a range of social deficits. For example, FTD causes changes in tactfulness and manners, violations of interpersonal space, and emotional appropriateness (Jagust, Reed, Seab, Kramer, & Budinger, 1989 Jagust, W. J., Reed, B. R., Seab, J. P., Kramer, J. H. and Budinger, T. F. 1989. Clinical-physiolo…
At the Intersection of Epistemics and Action
We examine I know as a responding action, showing that it claims to accept the grounds of the initiating action but either resists that action as unnecessary or endorses it, depending on the epistemic environment created by the initiating action. First, in responding to actions that presume an unknowing addressee (e.g., correcting, advising), speakers deploy I know to resist the action as unnecessary while accepting its grounds. Second, in respon…
From Subject to Participant
Belmont Report principles focus on the well-being of the research subject, yet community-engaged investigators often eschew the role of subject for that of participant. We conducted semistructured interviews with 29 community and academic investigators working on 10 community-engaged studies. Interviews elicited perspectives on ethical priorities and ethical challenges. Interviewees drew on the Belmont Report to describe 4 key principles of ethic…
Conversational Practices of a Frontotemporal Dementia Patient and His Interlocutors
Frontotemporal dementia (FTD) is a dementia difficult to diagnose because, in the early stages, it leaves patients with intact cognitive functioning and a range of social deficits. For example, FTD causes changes in tactfulness and manners, violations of interpersonal space, and emotional appropriateness (Jagust, Reed, Seab, Kramer, & Budinger, 1989 Jagust, W. J., Reed, B. R., Seab, J. P., Kramer, J. H. and Budinger, T. F. 1989. Clinical-physiolo…
Turn-taking and the structural legitimization of bias
Patient Centered, Nurse Averse? Nurses' Care Experiences in a 21st-Century Hospital
Implementations of patient centeredness can vary tremendously across settings, yet we know little about how clinicians experience local interpretations of patient centeredness. In this article, we investigate nurses' experiences in a hospital designed to be patient centered in its emphasis on patient amenities and customer service. This environment altered nurses' articulation work by shifting the visibility of a number of nursing tasks; customer…
Repetitional responses in frontotemporal dementia discourse
Frontotemporal dementia (FTD) is a young-onset neurodegenerative dementia that primarily affects social behaviors. This paper examines the use of repetitional responses in FTD discourse, finding that patients often use repeats to assert agency or epistemic authority (i.e. to claim rights to knowledge). For example, repetitional responses are often used by patients to exert some autonomy when their interlocutors display a belief about the patients…
Clinical Factors Associated with Successful Discharge from Assertive Community Treatment
The Use of Directives to Repair Embodied (Mis)Understandings in Interactions with Individuals Diagnosed with Frontotemporal Dementia
This paper investigates caregivers’ use of directives to repair embodied engagements of individuals diagnosed with frontotemporal dementia. High entitlement/low contingency (HE/LC) formats (e.g., imperatives) are consistently employed to elicit an alternative engagement in a current course of action that is treated as required for the accomplishment of an ongoing activity. In selecting directive formats, caregivers appear to orient to whether the…
Flexibility and Structure May Enhance Implementation of Family-Focused Therapy in Community Mental Health Settings
Conversational Practices of a Frontotemporal Dementia Patient and His Interlocutors
Frontotemporal dementia (FTD) is a dementia difficult to diagnose because, in the early stages, it leaves patients with intact cognitive functioning and a range of social deficits. For example, FTD causes changes in tactfulness and manners, violations of interpersonal space, and emotional appropriateness (Jagust, Reed, Seab, Kramer, & Budinger, 1989 Jagust, W. J., Reed, B. R., Seab, J. P., Kramer, J. H. and Budinger, T. F. 1989. Clinical-physiolo…
Repetitional responses in frontotemporal dementia discourse
Frontotemporal dementia (FTD) is a young-onset neurodegenerative dementia that primarily affects social behaviors. This paper examines the use of repetitional responses in FTD discourse, finding that patients often use repeats to assert agency or epistemic authority (i.e. to claim rights to knowledge). For example, repetitional responses are often used by patients to exert some autonomy when their interlocutors display a belief about the patients…
Patient Centered, Nurse Averse? Nurses' Care Experiences in a 21st-Century Hospital
Implementations of patient centeredness can vary tremendously across settings, yet we know little about how clinicians experience local interpretations of patient centeredness. In this article, we investigate nurses' experiences in a hospital designed to be patient centered in its emphasis on patient amenities and customer service. This environment altered nurses' articulation work by shifting the visibility of a number of nursing tasks; customer…
Ethical Community-Engaged Research
Health research has relied on ethical principles, such as those of the Belmont Report, to protect the rights and well-being of research participants. Community-based participatory research (CBPR), however, must also consider the rights and well-being of communities. This requires additional ethical considerations that have been extensively discussed but not synthesized in the CBPR literature. We conducted a comprehensive thematic literature revie…
Flexibility and Structure May Enhance Implementation of Family-Focused Therapy in Community Mental Health Settings
From Subject to Participant
Belmont Report principles focus on the well-being of the research subject, yet community-engaged investigators often eschew the role of subject for that of participant. We conducted semistructured interviews with 29 community and academic investigators working on 10 community-engaged studies. Interviews elicited perspectives on ethical priorities and ethical challenges. Interviewees drew on the Belmont Report to describe 4 key principles of ethic…
Opposing orientations in interactions with individuals with Frontotemporal Dementia
Clinically, frontotemporal dementia (FTD) is described as primarily affecting personality and interpersonal conduct and resulting in social behavioral disruptions, thus often giving rise to interpersonal conflict. Conflict behavior in both typical and dementia populations is frequently identified as explicit physical and verbal acts such as assault, yelling or insulting, and research often situates conflict and collaboration as opposing dimension…
The Use of Directives to Repair Embodied (Mis)Understandings in Interactions with Individuals Diagnosed with Frontotemporal Dementia
This paper investigates caregivers’ use of directives to repair embodied engagements of individuals diagnosed with frontotemporal dementia. High entitlement/low contingency (HE/LC) formats (e.g., imperatives) are consistently employed to elicit an alternative engagement in a current course of action that is treated as required for the accomplishment of an ongoing activity. In selecting directive formats, caregivers appear to orient to whether the…
Ethics and Science in the Participatory Era
Participatory researchers rely on relationship-based ethical considerations to address ethical challenges, but little is known about how these considerations shape day-to-day decision-making. We presented vignettes describing ethical dilemmas to health researchers with varying degrees of experience in participatory research in an online modified-Delphi panel. Panelists rated potential solutions to dilemmas and provided rationales for choosing sol…
At the Intersection of Epistemics and Action
We examine I know as a responding action, showing that it claims to accept the grounds of the initiating action but either resists that action as unnecessary or endorses it, depending on the epistemic environment created by the initiating action. First, in responding to actions that presume an unknowing addressee (e.g., correcting, advising), speakers deploy I know to resist the action as unnecessary while accepting its grounds. Second, in respon…
Clinical Factors Associated with Successful Discharge from Assertive Community Treatment
Turn-taking and the structural legitimization of bias
Exploring the Connectivity Paradox
Even before the widespread transition to telehealth as a result of COVID-19, there was a considerable amount of research exploring its value and impact. However, telehealth research with adolescent patients is somewhat limited, with most work focusing on access, feasibility, and acceptability but reporting far less frequently on relationship building and rapport. This study examines qualitative interviews with adolescent patients (n = 14) and par…
Healthcare Providers’ Impact on the Care Experiences of Patients with Endometriosis
Endometriosis is a chronic and often painful inflammatory disease affecting one in ten biological females. It has been characterized as enigmatic and the average diagnostic delay is nearly seven years, time which patients experience as tumultuous and uncertain. This paper presents responses to a final open comment question of a large-scale survey documenting patients’ experiences with (mis)diagnosis and highlights how patients perceived healthcar…
Exploring the Complexity of Telehealth Privacy Through a Lens of Adolescent Development
Many challenges exist related to ensuring adolescent privacy with health care providers (HCPs), and the rapid integration of telehealth visits has created additional complexities in organizing privacy for adolescents. Through interviews with adolescent patients and their parents ( n = 34), this qualitative analysis aimed to explore the complicated relationship and balance of adolescent alone time with HCPs, parental presence and support, and orga…
Patient Advocacy Group Leaders' Perceptions on Primary Care's Role in Caring for Patients With a History of Breast Cancer
BACKGROUND: Cancer advocacy groups engage patients, families and caregivers in navigating the cancer landscape, with a focus on early detection/screening and providing psychosocial and financial support during and after treatment. These groups are influential among their communities, funders and policymakers. OBJECTIVE: We wished to understand perceptions of breast cancer advocacy group leaders on primary care's role in breast cancer survivorship…
The Limits of Digital Health for Primary Care Patients and Clinicians
Patient portals have the potential to both improve and harm patient-clinician partnerships by reshaping how health information is exchanged and how patients and providers communicate. Patients (n = 20) and primary care clinicians (n = 11) purposively sampled from clinics serving diverse New Jersey communities were interviewed. Patients distinguished two portal functions – linear information exchange and bidirectional communication – but did so in…
Incorporating the Culture-Centered Approach to Support Engagement of Minoritized Youth in Mental Health Communication Research
Medicine (12 obras) · Psychology (12 obras) · Language, Discourse, Communication Strategies (6 obras) · Political science (5 obras) · Dementia (4 obras) · Developmental psychology (4 obras) · Frontotemporal dementia (4 obras) · Health care (4 obras) · Mental Health and Patient Involvement (4 obras) · Nursing (4 obras)