Kelly K O’brien
Datos Biográficos
| ID | 142292 |
|---|---|
| NOMBRE | Kelly K O’brien |
| NOMBRES | Kelly K |
| APELLIDO | O’brien |
| FIRMA | O’BRIEN K K |
| AFILIACIONES | University of Toronto |
| ORCID | 0000-0002-1632-6537 |
| VERIFICADO | Sí |
| TOTAL DE OBRAS | 23 |
| TOTAL DE CITAS | 5 |
| TOTAL COMO AUTOR | 23 |
| TOTAL COMO EDITOR | 0 |
| PRIMER AÑO DE PUBLICACIÓN | 2009 |
| AÑO MÁS RECIENTE DE PUBLICACIÓN | 2025 |
| ÍNDICE H | 2 |
Community Engagement in Long Covid Research
INTRODUCTION: Long Covid and other infection-associated chronic condition communities have been integral in advocating for patient engagement in all stages of research, from design and conduct, and implementation, through to interpretation and knowledge translation; nevertheless, the process varies across research teams. In this paper, we (1) describe our process undertaking a community-engaged Long Covid research study; (2) evaluate our communit…
Priorities for HIV and chronic pain research
The Global Task Force on Chronic Pain in HIV published seven research priorities in the field of HIV-associated chronic pain in 2019: (1) causes; (2) management; (3) treatment individualization and integration with addiction treatment; (4) mental and social health factors; (5) prevalence; (6) treatment cost effectiveness; and (7) prevention. The current study used a web-based survey to determine whether the research topics were aligned with the p…
Conceptualising the episodic nature of disability among adults living with Long Covid
INTRODUCTION: Our aim was to describe episodic nature of disability among adults living with Long COVID. METHODS: We conducted a community-engaged qualitative descriptive study involving online semistructured interviews and participant visual illustrations. We recruited participants via collaborator community organisations in Canada, Ireland, UK and USA.We recruited adults who self-identified as living with Long COVID with diversity in age, gende…
The Global Task Force for Chronic Pain in People with HIV (PWH)
Chronic pain is a common comorbidity in people with HIV (PWH), with prevalence estimates of 25-85%. Research in this area is growing, but significant gaps remain. A Global Task Force of HIV experts was organized to brainstorm a scientific agenda and identify measurement domains critical to advancing research in this field. Experts were identified through literature searches and snowball sampling. Two online questionnaires were developed by Task F…
Systematic review on reducing missed opportunities for vaccinations in Latin America
Objectives. To estimate the prevalence of missed opportunities for vaccination (MOV) in Latin America and the effect of interventions targeting health systems, health workers, patients, and communities on MOV. Methods. Searches were conducted in MEDLINE, EMBASE, CINAHL, and LILACS electronic databases and relevant organizations were contacted, including the Pan American Health Organization (PAHO), to identify studies meeting eligibility criteria.…
Scoping reviews
Scoping reviews are an increasingly common approach to evidence synthesis with a growing suite of methodological guidance and resources to assist review authors with their planning, conduct and reporting. The latest guidance for scoping reviews includes the JBI methodology and the Preferred Reporting Items for Systematic Reviews and Meta-Analyses—Extension for Scoping Reviews. This paper provides readers with a brief update regarding ongoing work…
Conceptualising Long Covid as an episodic health condition
box Globally growing numbers of individuals are living with persistent signs and symptoms following infection consistent with COVID-19, referred to as Long COVID or Post-COVID Conditions. An estimated 6.2% of the U K population self-identified experiencing Long COVID, which negatively affected their general well-being and ability to exercise and work.1 Long COVID symptoms also adversely affected day-to-day activities among 64.7% of those self-rep…
Help-Seeking to Cope With Experiences of Violence Among Women Living With HIV in Canada
Using baseline data from a community-collaborative cohort of women living with HIV in Canada, we assessed the prevalence and correlates of help-seeking among 1,057 women who reported experiencing violence in adulthood (≥16 years). After violence, 447 (42%) sought help, while 610 (58%) did not. Frequently accessed supports included health care providers ( n = 313, 70%), family/friends ( n = 244, 55%), and non-HIV community organizations ( n = 235,…
Aidsimpact special issue – broadening the lens
People living with HIV are ageing with a combination of physical, mental and social health challenges, known as disability. Although rehabilitation can address disability, the field is still emerging. Our aim was to identify similar disability experiences across complex chronic conditions and establish recommendations for future rehabilitation research and practice to advance healthy ageing with HIV. We conducted a consultation with 77 stakeholde…
Evolution of an International Research Collaborative in HIV and Rehabilitation
Research networks involving community-academic-clinical partnerships can help to promote KTE and establish a coordinated response for addressing priorities in an emerging field
I'm Just Forgetting and I Don't Know Why
HIV-associated neurocognitive disorder (HAND) is common, but the lived experience of HAND is not well-understood. In this descriptive qualitative study, we explored how adults with HAND view, manage, and obtain support for cognitive difficulties. We interviewed 25 participants (20% female; median age = 51 years) who were diagnosed with HAND using neuropsychological assessment and a clinical interview. Semistructured interviews, co-developed with …
Envisioning Women-Centered HIV Care
A scoping review on the conduct and reporting of scoping reviews
BACKGROUND: Scoping reviews are used to identify knowledge gaps, set research agendas, and identify implications for decision-making. The conduct and reporting of scoping reviews is inconsistent in the literature. We conducted a scoping review to identify: papers that utilized and/or described scoping review methods; guidelines for reporting scoping reviews; and studies that assessed the quality of reporting of scoping reviews. METHODS: We search…
Community Involvement in Development of Evidence-Informed Recommendations for Rehabilitation for Older Adults Living With HIV
Meaningful inclusion of community can improve the quality of practice guidelines
Is any job better than no job? Labor market experiences and depressive symptoms in people living with HIV
The purpose of this study is to determine the relationship between the psychosocial work environment and labor market experiences (including unemployment) on mental health among adults living with HIV. We used data provided by 538 participants at clinical and community sites across Ontario, Canada. Generalized estimating equation models showed that employment was associated with lower depressive symptoms. For employed participants, adverse psycho…
Scoping reviews
Aging with HIV and disability
Due to advances in treatment, people with HIV are living longer and developing disabilities related to the virus, adverse side effects of medications, and aging. Illness-related uncertainty has been shown to contribute to disablement; however, there is little understanding of the uncertainties related to aging with HIV. The purpose of this research was to describe the contribution of uncertainty to the disability experienced by older adults livin…
Community Engagement in Health Status Instrument Development
The HDQ is the first HIV-specific questionnaire to describe disability experienced by adults with HIV. Engaging community research partners in the development of the HDQ enhanced the questionnaire's relevance, feasibility, and face and content validities. This approach may be considered by others interested in health status instrument development
Using Qualitative Methods to Assess the Measurement Property of a New HIV Disability Questionnaire
The purpose of this article is to describe our experience using a qualitative team approach and predetermined theoretical framework to assess sensibility of a newly developed HIV disability questionnaire. Two interviewers conducted structured qualitative interviews with 22 adults living with HIV, asking participants how well the questionnaire characterized the disability they experienced living with HIV. Data collection and analysis occurred over…
Relationships Between Dimensions of Disability Experienced by Adults Living with HIV
Impact of hepatitis B and C co-infection on health-related quality of life in HIV positive individuals
Scoping studies
BACKGROUND: Scoping studies are an increasingly popular approach to reviewing health research evidence. In 2005, Arksey and O'Malley published the first methodological framework for conducting scoping studies. While this framework provides an excellent foundation for scoping study methodology, further clarifying and enhancing this framework will help support the consistency with which authors undertake and report scoping studies and may encourage…
Expanding the lens of HIV services provision in Canada
Those living with HIV may experience a range of disabilities, including body impairments, activity limitations, and social participation restrictions. The aim of this study was to examine HIV services provision in Canada by exploring practices, referrals, and service delivery challenges from the perspective of HIV health professionals (including nurses, physicians, social workers, pharmacists, psychologists, and dieticians), and to explore differ…
Using Qualitative Methods to Assess the Measurement Property of a New HIV Disability Questionnaire
The purpose of this article is to describe our experience using a qualitative team approach and predetermined theoretical framework to assess sensibility of a newly developed HIV disability questionnaire. Two interviewers conducted structured qualitative interviews with 22 adults living with HIV, asking participants how well the questionnaire characterized the disability they experienced living with HIV. Data collection and analysis occurred over…
I'm Just Forgetting and I Don't Know Why
HIV-associated neurocognitive disorder (HAND) is common, but the lived experience of HAND is not well-understood. In this descriptive qualitative study, we explored how adults with HAND view, manage, and obtain support for cognitive difficulties. We interviewed 25 participants (20% female; median age = 51 years) who were diagnosed with HAND using neuropsychological assessment and a clinical interview. Semistructured interviews, co-developed with …
Expanding the lens of HIV services provision in Canada
Those living with HIV may experience a range of disabilities, including body impairments, activity limitations, and social participation restrictions. The aim of this study was to examine HIV services provision in Canada by exploring practices, referrals, and service delivery challenges from the perspective of HIV health professionals (including nurses, physicians, social workers, pharmacists, psychologists, and dieticians), and to explore differ…
Scoping studies
BACKGROUND: Scoping studies are an increasingly popular approach to reviewing health research evidence. In 2005, Arksey and O'Malley published the first methodological framework for conducting scoping studies. While this framework provides an excellent foundation for scoping study methodology, further clarifying and enhancing this framework will help support the consistency with which authors undertake and report scoping studies and may encourage…
Relationships Between Dimensions of Disability Experienced by Adults Living with HIV
Impact of hepatitis B and C co-infection on health-related quality of life in HIV positive individuals
Using Qualitative Methods to Assess the Measurement Property of a New HIV Disability Questionnaire
The purpose of this article is to describe our experience using a qualitative team approach and predetermined theoretical framework to assess sensibility of a newly developed HIV disability questionnaire. Two interviewers conducted structured qualitative interviews with 22 adults living with HIV, asking participants how well the questionnaire characterized the disability they experienced living with HIV. Data collection and analysis occurred over…
Scoping reviews
Aging with HIV and disability
Due to advances in treatment, people with HIV are living longer and developing disabilities related to the virus, adverse side effects of medications, and aging. Illness-related uncertainty has been shown to contribute to disablement; however, there is little understanding of the uncertainties related to aging with HIV. The purpose of this research was to describe the contribution of uncertainty to the disability experienced by older adults livin…
Community Engagement in Health Status Instrument Development
The HDQ is the first HIV-specific questionnaire to describe disability experienced by adults with HIV. Engaging community research partners in the development of the HDQ enhanced the questionnaire's relevance, feasibility, and face and content validities. This approach may be considered by others interested in health status instrument development
Is any job better than no job? Labor market experiences and depressive symptoms in people living with HIV
The purpose of this study is to determine the relationship between the psychosocial work environment and labor market experiences (including unemployment) on mental health among adults living with HIV. We used data provided by 538 participants at clinical and community sites across Ontario, Canada. Generalized estimating equation models showed that employment was associated with lower depressive symptoms. For employed participants, adverse psycho…
A scoping review on the conduct and reporting of scoping reviews
BACKGROUND: Scoping reviews are used to identify knowledge gaps, set research agendas, and identify implications for decision-making. The conduct and reporting of scoping reviews is inconsistent in the literature. We conducted a scoping review to identify: papers that utilized and/or described scoping review methods; guidelines for reporting scoping reviews; and studies that assessed the quality of reporting of scoping reviews. METHODS: We search…
Community Involvement in Development of Evidence-Informed Recommendations for Rehabilitation for Older Adults Living With HIV
Meaningful inclusion of community can improve the quality of practice guidelines
Envisioning Women-Centered HIV Care
Evolution of an International Research Collaborative in HIV and Rehabilitation
Research networks involving community-academic-clinical partnerships can help to promote KTE and establish a coordinated response for addressing priorities in an emerging field
I'm Just Forgetting and I Don't Know Why
HIV-associated neurocognitive disorder (HAND) is common, but the lived experience of HAND is not well-understood. In this descriptive qualitative study, we explored how adults with HAND view, manage, and obtain support for cognitive difficulties. We interviewed 25 participants (20% female; median age = 51 years) who were diagnosed with HAND using neuropsychological assessment and a clinical interview. Semistructured interviews, co-developed with …
Aidsimpact special issue – broadening the lens
People living with HIV are ageing with a combination of physical, mental and social health challenges, known as disability. Although rehabilitation can address disability, the field is still emerging. Our aim was to identify similar disability experiences across complex chronic conditions and establish recommendations for future rehabilitation research and practice to advance healthy ageing with HIV. We conducted a consultation with 77 stakeholde…
Scoping reviews
Scoping reviews are an increasingly common approach to evidence synthesis with a growing suite of methodological guidance and resources to assist review authors with their planning, conduct and reporting. The latest guidance for scoping reviews includes the JBI methodology and the Preferred Reporting Items for Systematic Reviews and Meta-Analyses—Extension for Scoping Reviews. This paper provides readers with a brief update regarding ongoing work…
Conceptualising Long Covid as an episodic health condition
box Globally growing numbers of individuals are living with persistent signs and symptoms following infection consistent with COVID-19, referred to as Long COVID or Post-COVID Conditions. An estimated 6.2% of the U K population self-identified experiencing Long COVID, which negatively affected their general well-being and ability to exercise and work.1 Long COVID symptoms also adversely affected day-to-day activities among 64.7% of those self-rep…
Help-Seeking to Cope With Experiences of Violence Among Women Living With HIV in Canada
Using baseline data from a community-collaborative cohort of women living with HIV in Canada, we assessed the prevalence and correlates of help-seeking among 1,057 women who reported experiencing violence in adulthood (≥16 years). After violence, 447 (42%) sought help, while 610 (58%) did not. Frequently accessed supports included health care providers ( n = 313, 70%), family/friends ( n = 244, 55%), and non-HIV community organizations ( n = 235,…
Systematic review on reducing missed opportunities for vaccinations in Latin America
Objectives. To estimate the prevalence of missed opportunities for vaccination (MOV) in Latin America and the effect of interventions targeting health systems, health workers, patients, and communities on MOV. Methods. Searches were conducted in MEDLINE, EMBASE, CINAHL, and LILACS electronic databases and relevant organizations were contacted, including the Pan American Health Organization (PAHO), to identify studies meeting eligibility criteria.…
Conceptualising the episodic nature of disability among adults living with Long Covid
INTRODUCTION: Our aim was to describe episodic nature of disability among adults living with Long COVID. METHODS: We conducted a community-engaged qualitative descriptive study involving online semistructured interviews and participant visual illustrations. We recruited participants via collaborator community organisations in Canada, Ireland, UK and USA.We recruited adults who self-identified as living with Long COVID with diversity in age, gende…
The Global Task Force for Chronic Pain in People with HIV (PWH)
Chronic pain is a common comorbidity in people with HIV (PWH), with prevalence estimates of 25-85%. Research in this area is growing, but significant gaps remain. A Global Task Force of HIV experts was organized to brainstorm a scientific agenda and identify measurement domains critical to advancing research in this field. Experts were identified through literature searches and snowball sampling. Two online questionnaires were developed by Task F…
Priorities for HIV and chronic pain research
The Global Task Force on Chronic Pain in HIV published seven research priorities in the field of HIV-associated chronic pain in 2019: (1) causes; (2) management; (3) treatment individualization and integration with addiction treatment; (4) mental and social health factors; (5) prevalence; (6) treatment cost effectiveness; and (7) prevention. The current study used a web-based survey to determine whether the research topics were aligned with the p…
Community Engagement in Long Covid Research
INTRODUCTION: Long Covid and other infection-associated chronic condition communities have been integral in advocating for patient engagement in all stages of research, from design and conduct, and implementation, through to interpretation and knowledge translation; nevertheless, the process varies across research teams. In this paper, we (1) describe our process undertaking a community-engaged Long Covid research study; (2) evaluate our communit…
Medicine (21 obras) · Psychology (15 obras) · Family medicine (13 obras) · Political science (10 obras) · Psychiatry (10 obras) · Gerontology (9 obras) · HIV/AIDS Research and Interventions (9 obras) · Human immunodeficiency virus (HIV (8 obras) · HIV-related health complications and treatments (7 obras) · Sociology (7 obras)