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Pamela Sankar

Biographic Data

ID143965
NAMEPamela Sankar
GIVEN NAMESPamela
FAMILY NAMESankar
SIGNATURESANKAR P
AFFILIATIONSUniversity of Pennsylvania
ORCID0000-0002-7780-9655
VERIFIEDYes
TOTAL WORKS18
TOTAL CITATIONS39
WORKS AS AUTHOR18
WORKS AS EDITOR0
FIRST PUBLICATION YEAR1997
LATEST PUBLICATION YEAR2026
H-INDEX4
  • Effects of caregiving experience on expectations of becoming an Alzheimer’s disease caregiver in the future

    Open Access•Shana D Stite, Carolyn Kuz et al.•ARTICLE•The Journals of Gerontology…•2026•References: 4

    Caregiving experience is a strong predictor of a person's expectations of becoming one in the future, which runs counter to observed caregiving patterns, suggesting that for most people, becoming a caregiver is unexpected. Helping individuals set more accurate expectations for future caregiving roles is essential to support planning and preparation. Specific findings may inform the content of support and education programs that could accompany di…

  • Are knowledge and interpersonal contact cures for Alzheimer’s stigma? Data from caregivers offer clues

    Open Access•Shana D Stite, Rosalie Schumann et al.•ARTICLE•Stigma and Health•2025

    Research on caregivers suggests interpersonal contact with persons with Alzheimer's disease (AD) and higher disease-oriented knowledge may heighten AD stigma, though these same mechanisms are often employed in anti-stigma campaigns. If we better understand associations among caregiver experience, interpersonal contact, AD knowledge and AD stigma, we can develop improved ways of reducing stigma and avoid unintended consequences. In a factorial des…

  • A survey study of Alzheimer’s stigma among Black adults

    Shana D Stite, Sharnita Midgett et al.•ARTICLE•Ethnicity and Health•2024•References: 7

    While older adults reported less AD stigma than younger adults, AD biomarker testing caused similarly high concerns about structural discrimination and negative severity attributions. Thus, use of AD biomarker diagnosis may increase AD stigma and exacerbate healthcare disparities known to effect AD diagnosis in some Black adults. Advances in AD diagnosis may interact with social and structural factors to differentially affect groups of Black adul…

  • Double-Edged Sword

    Open Access•Shana D Stite, Brian N Lee et al.•ARTICLE•The Journals of Gerontology…•2024•References: 6

    A positive biomarker result heightens AD diagnosis confidence but also correlates with more AD stigma. Our findings inform strategies to promote early diagnosis and clinical discussions with individuals undergoing AD biomarker testing

  • The relative contributions of biomarkers, disease modifying treatment, and dementia severity to Alzheimer's stigma

    Open Access•Shana D Stite, Jeanine Gill et al.•ARTICLE•Social Science & Medicine•2022•Cited by: 5•References: 40

  • Bipolar Disorder, Genetic Risk, and Reproductive Decision-Making

    Open Access•Puneet Sahota, Pamela L Sankar et al.•ARTICLE•Qualitative Health Research•2020

    In this study, we present views on bipolar disorder and reproductive decision-making through an analysis of posts on RedditTM, a major Internet discussion forum. Prior research has shown that the Internet is a useful source of data on sensitive topics. This study used qualitative textual analysis to analyze posts on RedditTM bipolar discussion boards that dealt with genetics and related topics. All thread titles over 4 years were reviewed ( N = 1…

  • What Is the FDA Going to Think

    Open Access•Katherine Weatherford Darling, Angie M Boyce et al.•ARTICLE•Science Technology & Human Values•2015•Cited by: 1•References: 26

    The US National Institute of Health's Human Microbiome Project aims to use genomic techniques to understand the microbial communities that live on the human body. The emergent field of microbiome science brought together diverse disciplinary perspectives and technologies, thus facilitating the negotiation of differing values. Here, we describe how values are conceptualized and negotiated within microbiome research. Analyzing discussions from a se…

  • The relative contributions of disease label and disease prognosis to Alzheimer's stigma

    Open Access•R A Johnson, Rebecca Johnson et al.•ARTICLE•Social Science & Medicine•2015•Cited by: 13•References: 53

  • Differences in the Patterns of Health Care System Distrust Between Blacks and Whites

    Open Access•Katrina Armstrong, Suzanne McMurphy et al.•ARTICLE•Journal of General Internal…•2008

  • Hasty generalisation and exaggerated certainties

    Open Access•Pamela Sankar•ARTICLE•New Genetics and Society•2006

    In the United States, research that examines potential genetic contributions to health disparities often relies on racial categories. Some see benefit in this research especially for conditions where disparities in health status seem strongly associated with racial identity, such as heart disease and prostate cancer. But this research calls for close scrutiny. First, despite common optimism about genetic research, it may not be the most productiv…

  • Response from Jon F. Merz, Glenn E. McGee, and Pamela Sankar to Hoeyer and Lynöe's commentary on their article “‘Iceland Inc.’? On the Ethics of Commercial Genomics”

    Open Access•Jon F Merz, Glenn McGee et al.•ARTICLE•Social Science & Medicine•2004

  • Communication and Miscommunication in Informed Consent to Research

    Open Access•Pamela Sankar•ARTICLE•Medical Anthropology Quarterly•2004•Cited by: 14•References: 31

    Biomedical ethics require that research subjects be aware that the drugs they take or procedures they undergo are designed to fulfill the conditions of the experiment and not to benefit a subject's health. This apparently straightforward distinction between research and treatment is a source of much controversy and misunderstanding. Ethicists have labeled this problem the "therapeutic misconception." This misconception and, more broadly, informed…

  • Conducting Empirical Research on Informed Consent

    Greg A Sachs, Gavin W Hougham et al.•ARTICLE•IRB Ethics and Human Research•2003

    Greg A. Sachs, Gavin W. Hougham, Jeremy Sugarman, Patricia Agre, Marion E. Broome, Gail Geller, Nancy Kass, Eric Kodish, Jim Mintz, Laura W. Roberts, Pamela Sankar, Laura A. Siminoff, James Sorenson, Anita Weiss, Conducting Empirical Research on Informed Consent: Challenges and Questions, IRB: Ethics & Human Research, Vol. 25, No. 5, Supplement (Sep. - Oct., 2003), pp. S4-S10

  • Iceland Inc.”

    Open Access•Jon F Merz, Glenn McGee et al.•ARTICLE•Social Science & Medicine•2003•Cited by: 6•References: 2

  • Pilot Study

    Jon F Merz, Timothy R Rebbeck et al.•ARTICLE•IRB Ethics and Human Research•2002

    Jon F. Merz, Timothy R. Rebbeck, Pamela Sankar, Emma A. Meagher, Pilot Study: Does the White Coat Influence Research Participation?, IRB: Ethics & Human Research, Vol. 24, No. 4 (Jul. - Aug., 2002), pp. 6-8

  • Open Label Extension Studies & the Ethical Design of Clinical Trials

    David Casarett, Jason Karlawish et al.•ARTICLE•IRB Ethics and Human Research•2001

    David Casarett, Jason Karlawish, Pamela Sankar, Karen B. Hirschman, David A. Asch, Open Label Extension Studies & the Ethical Design of Clinical Trials, IRB: Ethics & Human Research, Vol. 23, No. 4 (Jul. - Aug., 2001), pp. 1-5

  • Bringing down Barriers

    Pamela Sankar, A Kleinman•ARTICLE•The Hastings Center Report•1997

    rthur Kleinman, medical anthropologist and psychiatrist, prefaces a collection of his recent essays, Writing At the Margin: Discourse Between Anthropology and Medicine with a meditation on margins. He traces the cultural invocations of margins as borders, such as those that distinguish China or North America, and then moves on to margins as periphery or edges. Here he locates his discipline, medical anthropology, at the intersection of the edges …

  • The proliferation and risks of government DNA databases

    Pamela Sankar•ARTICLE•American Journal of Public Health•1997•References: 3

    The proliferation and risks of government DNA databases. P SankarCopyRight https://doi.org/10.2105/AJPH.87.3.336 Published Online: October 07, 2011

  • Communication and Miscommunication in Informed Consent to Research

    Open Access•Pamela Sankar•ARTICLE•Medical Anthropology Quarterly•2004•Cited by: 14•References: 31

    Biomedical ethics require that research subjects be aware that the drugs they take or procedures they undergo are designed to fulfill the conditions of the experiment and not to benefit a subject's health. This apparently straightforward distinction between research and treatment is a source of much controversy and misunderstanding. Ethicists have labeled this problem the "therapeutic misconception." This misconception and, more broadly, informed…

  • The relative contributions of disease label and disease prognosis to Alzheimer's stigma

    Open Access•R A Johnson, Rebecca Johnson et al.•ARTICLE•Social Science & Medicine•2015•Cited by: 13•References: 53

  • Iceland Inc.”

    Open Access•Jon F Merz, Glenn McGee et al.•ARTICLE•Social Science & Medicine•2003•Cited by: 6•References: 2

  • The relative contributions of biomarkers, disease modifying treatment, and dementia severity to Alzheimer's stigma

    Open Access•Shana D Stite, Jeanine Gill et al.•ARTICLE•Social Science & Medicine•2022•Cited by: 5•References: 40

  • What Is the FDA Going to Think

    Open Access•Katherine Weatherford Darling, Angie M Boyce et al.•ARTICLE•Science Technology & Human Values•2015•Cited by: 1•References: 26

    The US National Institute of Health's Human Microbiome Project aims to use genomic techniques to understand the microbial communities that live on the human body. The emergent field of microbiome science brought together diverse disciplinary perspectives and technologies, thus facilitating the negotiation of differing values. Here, we describe how values are conceptualized and negotiated within microbiome research. Analyzing discussions from a se…

  • Bringing down Barriers

    Pamela Sankar, A Kleinman•ARTICLE•The Hastings Center Report•1997

    rthur Kleinman, medical anthropologist and psychiatrist, prefaces a collection of his recent essays, Writing At the Margin: Discourse Between Anthropology and Medicine with a meditation on margins. He traces the cultural invocations of margins as borders, such as those that distinguish China or North America, and then moves on to margins as periphery or edges. Here he locates his discipline, medical anthropology, at the intersection of the edges …

  • The proliferation and risks of government DNA databases

    Pamela Sankar•ARTICLE•American Journal of Public Health•1997•References: 3

    The proliferation and risks of government DNA databases. P SankarCopyRight https://doi.org/10.2105/AJPH.87.3.336 Published Online: October 07, 2011

  • Open Label Extension Studies & the Ethical Design of Clinical Trials

    David Casarett, Jason Karlawish et al.•ARTICLE•IRB Ethics and Human Research•2001

    David Casarett, Jason Karlawish, Pamela Sankar, Karen B. Hirschman, David A. Asch, Open Label Extension Studies & the Ethical Design of Clinical Trials, IRB: Ethics & Human Research, Vol. 23, No. 4 (Jul. - Aug., 2001), pp. 1-5

  • Pilot Study

    Jon F Merz, Timothy R Rebbeck et al.•ARTICLE•IRB Ethics and Human Research•2002

    Jon F. Merz, Timothy R. Rebbeck, Pamela Sankar, Emma A. Meagher, Pilot Study: Does the White Coat Influence Research Participation?, IRB: Ethics & Human Research, Vol. 24, No. 4 (Jul. - Aug., 2002), pp. 6-8

  • Conducting Empirical Research on Informed Consent

    Greg A Sachs, Gavin W Hougham et al.•ARTICLE•IRB Ethics and Human Research•2003

    Greg A. Sachs, Gavin W. Hougham, Jeremy Sugarman, Patricia Agre, Marion E. Broome, Gail Geller, Nancy Kass, Eric Kodish, Jim Mintz, Laura W. Roberts, Pamela Sankar, Laura A. Siminoff, James Sorenson, Anita Weiss, Conducting Empirical Research on Informed Consent: Challenges and Questions, IRB: Ethics & Human Research, Vol. 25, No. 5, Supplement (Sep. - Oct., 2003), pp. S4-S10

  • Iceland Inc.”

    Open Access•Jon F Merz, Glenn McGee et al.•ARTICLE•Social Science & Medicine•2003•Cited by: 6•References: 2

  • Response from Jon F. Merz, Glenn E. McGee, and Pamela Sankar to Hoeyer and Lynöe's commentary on their article “‘Iceland Inc.’? On the Ethics of Commercial Genomics”

    Open Access•Jon F Merz, Glenn McGee et al.•ARTICLE•Social Science & Medicine•2004

  • Communication and Miscommunication in Informed Consent to Research

    Open Access•Pamela Sankar•ARTICLE•Medical Anthropology Quarterly•2004•Cited by: 14•References: 31

    Biomedical ethics require that research subjects be aware that the drugs they take or procedures they undergo are designed to fulfill the conditions of the experiment and not to benefit a subject's health. This apparently straightforward distinction between research and treatment is a source of much controversy and misunderstanding. Ethicists have labeled this problem the "therapeutic misconception." This misconception and, more broadly, informed…

  • Hasty generalisation and exaggerated certainties

    Open Access•Pamela Sankar•ARTICLE•New Genetics and Society•2006

    In the United States, research that examines potential genetic contributions to health disparities often relies on racial categories. Some see benefit in this research especially for conditions where disparities in health status seem strongly associated with racial identity, such as heart disease and prostate cancer. But this research calls for close scrutiny. First, despite common optimism about genetic research, it may not be the most productiv…

  • Differences in the Patterns of Health Care System Distrust Between Blacks and Whites

    Open Access•Katrina Armstrong, Suzanne McMurphy et al.•ARTICLE•Journal of General Internal…•2008

  • What Is the FDA Going to Think

    Open Access•Katherine Weatherford Darling, Angie M Boyce et al.•ARTICLE•Science Technology & Human Values•2015•Cited by: 1•References: 26

    The US National Institute of Health's Human Microbiome Project aims to use genomic techniques to understand the microbial communities that live on the human body. The emergent field of microbiome science brought together diverse disciplinary perspectives and technologies, thus facilitating the negotiation of differing values. Here, we describe how values are conceptualized and negotiated within microbiome research. Analyzing discussions from a se…

  • The relative contributions of disease label and disease prognosis to Alzheimer's stigma

    Open Access•R A Johnson, Rebecca Johnson et al.•ARTICLE•Social Science & Medicine•2015•Cited by: 13•References: 53

  • Bipolar Disorder, Genetic Risk, and Reproductive Decision-Making

    Open Access•Puneet Sahota, Pamela L Sankar et al.•ARTICLE•Qualitative Health Research•2020

    In this study, we present views on bipolar disorder and reproductive decision-making through an analysis of posts on RedditTM, a major Internet discussion forum. Prior research has shown that the Internet is a useful source of data on sensitive topics. This study used qualitative textual analysis to analyze posts on RedditTM bipolar discussion boards that dealt with genetics and related topics. All thread titles over 4 years were reviewed ( N = 1…

  • The relative contributions of biomarkers, disease modifying treatment, and dementia severity to Alzheimer's stigma

    Open Access•Shana D Stite, Jeanine Gill et al.•ARTICLE•Social Science & Medicine•2022•Cited by: 5•References: 40

  • A survey study of Alzheimer’s stigma among Black adults

    Shana D Stite, Sharnita Midgett et al.•ARTICLE•Ethnicity and Health•2024•References: 7

    While older adults reported less AD stigma than younger adults, AD biomarker testing caused similarly high concerns about structural discrimination and negative severity attributions. Thus, use of AD biomarker diagnosis may increase AD stigma and exacerbate healthcare disparities known to effect AD diagnosis in some Black adults. Advances in AD diagnosis may interact with social and structural factors to differentially affect groups of Black adul…

  • Double-Edged Sword

    Open Access•Shana D Stite, Brian N Lee et al.•ARTICLE•The Journals of Gerontology…•2024•References: 6

    A positive biomarker result heightens AD diagnosis confidence but also correlates with more AD stigma. Our findings inform strategies to promote early diagnosis and clinical discussions with individuals undergoing AD biomarker testing

  • Are knowledge and interpersonal contact cures for Alzheimer’s stigma? Data from caregivers offer clues

    Open Access•Shana D Stite, Rosalie Schumann et al.•ARTICLE•Stigma and Health•2025

    Research on caregivers suggests interpersonal contact with persons with Alzheimer's disease (AD) and higher disease-oriented knowledge may heighten AD stigma, though these same mechanisms are often employed in anti-stigma campaigns. If we better understand associations among caregiver experience, interpersonal contact, AD knowledge and AD stigma, we can develop improved ways of reducing stigma and avoid unintended consequences. In a factorial des…

  • Effects of caregiving experience on expectations of becoming an Alzheimer’s disease caregiver in the future

    Open Access•Shana D Stite, Carolyn Kuz et al.•ARTICLE•The Journals of Gerontology…•2026•References: 4

    Caregiving experience is a strong predictor of a person's expectations of becoming one in the future, which runs counter to observed caregiving patterns, suggesting that for most people, becoming a caregiver is unexpected. Helping individuals set more accurate expectations for future caregiving roles is essential to support planning and preparation. Specific findings may inform the content of support and education programs that could accompany di…

Medicine (12 works) · Psychology (11 works) · Psychiatry (7 works) · Disease (6 works) · Ethics in Clinical Research (6 works) · Sociology (6 works) · Biology (5 works) · Clinical Psychology (5 works) · Computer Science (5 works) · Mental Health Treatment and Access (5 works)

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