Pamela Sankar
Biographic Data
| ID | 143965 |
|---|---|
| NAME | Pamela Sankar |
| GIVEN NAMES | Pamela |
| FAMILY NAME | Sankar |
| SIGNATURE | SANKAR P |
| AFFILIATIONS | University of Pennsylvania |
| ORCID | 0000-0002-7780-9655 |
| VERIFIED | Yes |
| TOTAL WORKS | 18 |
| TOTAL CITATIONS | 39 |
| WORKS AS AUTHOR | 18 |
| WORKS AS EDITOR | 0 |
| FIRST PUBLICATION YEAR | 1997 |
| LATEST PUBLICATION YEAR | 2026 |
| H-INDEX | 4 |
Effects of caregiving experience on expectations of becoming an Alzheimer’s disease caregiver in the future
Caregiving experience is a strong predictor of a person's expectations of becoming one in the future, which runs counter to observed caregiving patterns, suggesting that for most people, becoming a caregiver is unexpected. Helping individuals set more accurate expectations for future caregiving roles is essential to support planning and preparation. Specific findings may inform the content of support and education programs that could accompany di…
Are knowledge and interpersonal contact cures for Alzheimer’s stigma? Data from caregivers offer clues
Research on caregivers suggests interpersonal contact with persons with Alzheimer's disease (AD) and higher disease-oriented knowledge may heighten AD stigma, though these same mechanisms are often employed in anti-stigma campaigns. If we better understand associations among caregiver experience, interpersonal contact, AD knowledge and AD stigma, we can develop improved ways of reducing stigma and avoid unintended consequences. In a factorial des…
A survey study of Alzheimer’s stigma among Black adults
While older adults reported less AD stigma than younger adults, AD biomarker testing caused similarly high concerns about structural discrimination and negative severity attributions. Thus, use of AD biomarker diagnosis may increase AD stigma and exacerbate healthcare disparities known to effect AD diagnosis in some Black adults. Advances in AD diagnosis may interact with social and structural factors to differentially affect groups of Black adul…
Double-Edged Sword
A positive biomarker result heightens AD diagnosis confidence but also correlates with more AD stigma. Our findings inform strategies to promote early diagnosis and clinical discussions with individuals undergoing AD biomarker testing
The relative contributions of biomarkers, disease modifying treatment, and dementia severity to Alzheimer's stigma
Bipolar Disorder, Genetic Risk, and Reproductive Decision-Making
In this study, we present views on bipolar disorder and reproductive decision-making through an analysis of posts on RedditTM, a major Internet discussion forum. Prior research has shown that the Internet is a useful source of data on sensitive topics. This study used qualitative textual analysis to analyze posts on RedditTM bipolar discussion boards that dealt with genetics and related topics. All thread titles over 4 years were reviewed ( N = 1…
What Is the FDA Going to Think
The US National Institute of Health's Human Microbiome Project aims to use genomic techniques to understand the microbial communities that live on the human body. The emergent field of microbiome science brought together diverse disciplinary perspectives and technologies, thus facilitating the negotiation of differing values. Here, we describe how values are conceptualized and negotiated within microbiome research. Analyzing discussions from a se…
The relative contributions of disease label and disease prognosis to Alzheimer's stigma
Differences in the Patterns of Health Care System Distrust Between Blacks and Whites
Hasty generalisation and exaggerated certainties
In the United States, research that examines potential genetic contributions to health disparities often relies on racial categories. Some see benefit in this research especially for conditions where disparities in health status seem strongly associated with racial identity, such as heart disease and prostate cancer. But this research calls for close scrutiny. First, despite common optimism about genetic research, it may not be the most productiv…
Response from Jon F. Merz, Glenn E. McGee, and Pamela Sankar to Hoeyer and Lynöe's commentary on their article “‘Iceland Inc.’? On the Ethics of Commercial Genomics”
Communication and Miscommunication in Informed Consent to Research
Biomedical ethics require that research subjects be aware that the drugs they take or procedures they undergo are designed to fulfill the conditions of the experiment and not to benefit a subject's health. This apparently straightforward distinction between research and treatment is a source of much controversy and misunderstanding. Ethicists have labeled this problem the "therapeutic misconception." This misconception and, more broadly, informed…
Conducting Empirical Research on Informed Consent
Greg A. Sachs, Gavin W. Hougham, Jeremy Sugarman, Patricia Agre, Marion E. Broome, Gail Geller, Nancy Kass, Eric Kodish, Jim Mintz, Laura W. Roberts, Pamela Sankar, Laura A. Siminoff, James Sorenson, Anita Weiss, Conducting Empirical Research on Informed Consent: Challenges and Questions, IRB: Ethics & Human Research, Vol. 25, No. 5, Supplement (Sep. - Oct., 2003), pp. S4-S10
Iceland Inc.”
Pilot Study
Jon F. Merz, Timothy R. Rebbeck, Pamela Sankar, Emma A. Meagher, Pilot Study: Does the White Coat Influence Research Participation?, IRB: Ethics & Human Research, Vol. 24, No. 4 (Jul. - Aug., 2002), pp. 6-8
Open Label Extension Studies & the Ethical Design of Clinical Trials
David Casarett, Jason Karlawish, Pamela Sankar, Karen B. Hirschman, David A. Asch, Open Label Extension Studies & the Ethical Design of Clinical Trials, IRB: Ethics & Human Research, Vol. 23, No. 4 (Jul. - Aug., 2001), pp. 1-5
Bringing down Barriers
rthur Kleinman, medical anthropologist and psychiatrist, prefaces a collection of his recent essays, Writing At the Margin: Discourse Between Anthropology and Medicine with a meditation on margins. He traces the cultural invocations of margins as borders, such as those that distinguish China or North America, and then moves on to margins as periphery or edges. Here he locates his discipline, medical anthropology, at the intersection of the edges …
The proliferation and risks of government DNA databases
The proliferation and risks of government DNA databases. P SankarCopyRight https://doi.org/10.2105/AJPH.87.3.336 Published Online: October 07, 2011
Communication and Miscommunication in Informed Consent to Research
Biomedical ethics require that research subjects be aware that the drugs they take or procedures they undergo are designed to fulfill the conditions of the experiment and not to benefit a subject's health. This apparently straightforward distinction between research and treatment is a source of much controversy and misunderstanding. Ethicists have labeled this problem the "therapeutic misconception." This misconception and, more broadly, informed…
The relative contributions of disease label and disease prognosis to Alzheimer's stigma
Iceland Inc.”
The relative contributions of biomarkers, disease modifying treatment, and dementia severity to Alzheimer's stigma
What Is the FDA Going to Think
The US National Institute of Health's Human Microbiome Project aims to use genomic techniques to understand the microbial communities that live on the human body. The emergent field of microbiome science brought together diverse disciplinary perspectives and technologies, thus facilitating the negotiation of differing values. Here, we describe how values are conceptualized and negotiated within microbiome research. Analyzing discussions from a se…
Bringing down Barriers
rthur Kleinman, medical anthropologist and psychiatrist, prefaces a collection of his recent essays, Writing At the Margin: Discourse Between Anthropology and Medicine with a meditation on margins. He traces the cultural invocations of margins as borders, such as those that distinguish China or North America, and then moves on to margins as periphery or edges. Here he locates his discipline, medical anthropology, at the intersection of the edges …
The proliferation and risks of government DNA databases
The proliferation and risks of government DNA databases. P SankarCopyRight https://doi.org/10.2105/AJPH.87.3.336 Published Online: October 07, 2011
Open Label Extension Studies & the Ethical Design of Clinical Trials
David Casarett, Jason Karlawish, Pamela Sankar, Karen B. Hirschman, David A. Asch, Open Label Extension Studies & the Ethical Design of Clinical Trials, IRB: Ethics & Human Research, Vol. 23, No. 4 (Jul. - Aug., 2001), pp. 1-5
Pilot Study
Jon F. Merz, Timothy R. Rebbeck, Pamela Sankar, Emma A. Meagher, Pilot Study: Does the White Coat Influence Research Participation?, IRB: Ethics & Human Research, Vol. 24, No. 4 (Jul. - Aug., 2002), pp. 6-8
Conducting Empirical Research on Informed Consent
Greg A. Sachs, Gavin W. Hougham, Jeremy Sugarman, Patricia Agre, Marion E. Broome, Gail Geller, Nancy Kass, Eric Kodish, Jim Mintz, Laura W. Roberts, Pamela Sankar, Laura A. Siminoff, James Sorenson, Anita Weiss, Conducting Empirical Research on Informed Consent: Challenges and Questions, IRB: Ethics & Human Research, Vol. 25, No. 5, Supplement (Sep. - Oct., 2003), pp. S4-S10
Iceland Inc.”
Response from Jon F. Merz, Glenn E. McGee, and Pamela Sankar to Hoeyer and Lynöe's commentary on their article “‘Iceland Inc.’? On the Ethics of Commercial Genomics”
Communication and Miscommunication in Informed Consent to Research
Biomedical ethics require that research subjects be aware that the drugs they take or procedures they undergo are designed to fulfill the conditions of the experiment and not to benefit a subject's health. This apparently straightforward distinction between research and treatment is a source of much controversy and misunderstanding. Ethicists have labeled this problem the "therapeutic misconception." This misconception and, more broadly, informed…
Hasty generalisation and exaggerated certainties
In the United States, research that examines potential genetic contributions to health disparities often relies on racial categories. Some see benefit in this research especially for conditions where disparities in health status seem strongly associated with racial identity, such as heart disease and prostate cancer. But this research calls for close scrutiny. First, despite common optimism about genetic research, it may not be the most productiv…
Differences in the Patterns of Health Care System Distrust Between Blacks and Whites
What Is the FDA Going to Think
The US National Institute of Health's Human Microbiome Project aims to use genomic techniques to understand the microbial communities that live on the human body. The emergent field of microbiome science brought together diverse disciplinary perspectives and technologies, thus facilitating the negotiation of differing values. Here, we describe how values are conceptualized and negotiated within microbiome research. Analyzing discussions from a se…
The relative contributions of disease label and disease prognosis to Alzheimer's stigma
Bipolar Disorder, Genetic Risk, and Reproductive Decision-Making
In this study, we present views on bipolar disorder and reproductive decision-making through an analysis of posts on RedditTM, a major Internet discussion forum. Prior research has shown that the Internet is a useful source of data on sensitive topics. This study used qualitative textual analysis to analyze posts on RedditTM bipolar discussion boards that dealt with genetics and related topics. All thread titles over 4 years were reviewed ( N = 1…
The relative contributions of biomarkers, disease modifying treatment, and dementia severity to Alzheimer's stigma
A survey study of Alzheimer’s stigma among Black adults
While older adults reported less AD stigma than younger adults, AD biomarker testing caused similarly high concerns about structural discrimination and negative severity attributions. Thus, use of AD biomarker diagnosis may increase AD stigma and exacerbate healthcare disparities known to effect AD diagnosis in some Black adults. Advances in AD diagnosis may interact with social and structural factors to differentially affect groups of Black adul…
Double-Edged Sword
A positive biomarker result heightens AD diagnosis confidence but also correlates with more AD stigma. Our findings inform strategies to promote early diagnosis and clinical discussions with individuals undergoing AD biomarker testing
Are knowledge and interpersonal contact cures for Alzheimer’s stigma? Data from caregivers offer clues
Research on caregivers suggests interpersonal contact with persons with Alzheimer's disease (AD) and higher disease-oriented knowledge may heighten AD stigma, though these same mechanisms are often employed in anti-stigma campaigns. If we better understand associations among caregiver experience, interpersonal contact, AD knowledge and AD stigma, we can develop improved ways of reducing stigma and avoid unintended consequences. In a factorial des…
Effects of caregiving experience on expectations of becoming an Alzheimer’s disease caregiver in the future
Caregiving experience is a strong predictor of a person's expectations of becoming one in the future, which runs counter to observed caregiving patterns, suggesting that for most people, becoming a caregiver is unexpected. Helping individuals set more accurate expectations for future caregiving roles is essential to support planning and preparation. Specific findings may inform the content of support and education programs that could accompany di…
Medicine (12 works) · Psychology (11 works) · Psychiatry (7 works) · Disease (6 works) · Ethics in Clinical Research (6 works) · Sociology (6 works) · Biology (5 works) · Clinical Psychology (5 works) · Computer Science (5 works) · Mental Health Treatment and Access (5 works)